Constant Burning For Over A Year Now...

i also forgot to mention for two years i have constant recurrent utis.

I had this it's horrendous. The worst part is not knowing what's wrong.

Do you have any co-occurring illnesses? How are your periods? I ask this because I was shrugged off with mysterious vulvodynia for over a year before I demanded some scans. Surprise surprise an MRI showed suspected endometriosis lesions. One of which is rather large and positioned on my vaginal wall between my vagina and bladder. It is pressing on my pelvic nerves as well as creating general inflammation all over the area - the vulvodynia isn't so mysterious anymore. The only thing is no doctor or gynaecologist put two and two together (collapsing when on period, heavy bleeding, debilitating cramps, the fact that initially the burning was only during ovulation and before my period). I was the one who connected the dots.

If you do have any other symptoms, regardless of where they are, ask for scans before a biopsy. They're far less invasive and rule out a lot. They may show nothing but at least you've covered all bases.

Amitriptyline has stopped my burning (although sex is still painful because it pulls the endometriosis lesion), so there is treatment. Push to see someone who understands these kinds of problems, get referred to the gynaecology unit, often treatment options are not solely for this so it takes an experienced professional to know which to use.

Please ask for a biopsy it could determine why you have this burning I to suffer from this symptom and I had biopsy done it came back i have in fact got a condition called Linchen Planus I I use a steroid cream for this also a moisturizer

Hi, I have and am going through the exact thing, kept changing soap at first thinking it was that., swimming pool etc. then itching came too., all infection s cleared still suffering. Now estrogen cream , sometimes steroid cream but continues , maybe due to cream IDK, told water only washes, and back to dr again in few weeks dr didn't do biopsy cause too inflamed,Im tired and feel like stopping everything, been using vaseline now outside. Hope you find the right help too, and will keep reading on these threads, alot of caring advice. This came after my Hysterectomy, before never a problem

I've been having the same issue for almost 2 years now, been tested for everything and everything comes back negative initially when i went in the said I had BV the dr prescribed cream i used it the first night and broke out in hives all over my thighs and it was horrible the nurse told me to discontinue and to come back in for testing and everything was negative. I've been to several doctors since then, numerous urgent care visit and everyone telling me there is nothing wrong still but clearly something is because this is not normal for me. I only use baking soda to wash my clothes in, I use dr bronners Unscented to wash in and I have switched to reusable pads. Because I diagnosed myself with having vulvodynia i changed the foods i eat that are high in oxalates and I have seen some improvement. I wear loose fitting pants and change into a big night shirt when i get home from work. I also notice when i try to wear jeans thats when the burning is the worst. It's like friction irritates me and as long its nothing is rubbing up against me I'm fine. All my symptoms started around the same time I had other issues with tongue numbness etc. which I later found out was food allergies so I don't know if there is any connection there. I went to all kinds of specialist for that as well and everyone told me nothing was wrong but clearly it was I finally made myself an appt to see a allergist which is how I found out about the food allergies the list is so long that i need to see a nutritionist because i don't even know what to eat and because i still tend to eat some of the things i have allergies to ( the ones where the reaction is not so bad but enough to notice) I'm wondering if thats why I'm still having some burning still. I did cut back and I have to say that in the last 4 weeks I've been free from burning although my clitoris burns slightly sometimes it could be from wearing underwear because I don't feel comfortable not wearing any to work. My allergies are not limited to food either I cant even use toothpaste i have to use baking soda and I can barely take medicine because things like RED40 and Blue6 i guess additives and things also affects me so basically anything thats not natural and has preservatives so you can imagine what my life has been like and no one to help me know whats going on. I talked to a homeopathic dr and she said when you are nearing the age of 40 your hormones start to change to get ready for menopause so your body will start rejecting things and you will experience things you never did before so this could be the cause she told me to stick with organic food and try to elimination diet thing and then try reintroducing the foods back one by one also to try acupuncture and massages to help with the pain because alot of it might stem from stress. Anyway, i feel like I'm rambling on but I hope this helps you and others out there.

hello LittleOne9! please let me know when you see this reply -your symptoms are exactly like mine (burning not itching, fine with sex and tampons) and currently being investigated (4 months and counting). Have you got to the bottom of it? I don't burn until i walk for 15minutes or more which is every day. Annoying but I think I'll just have to accept it as long as I know my health isn't in danger.... Mine don't itch but burns and gets red in the evening. Tested for a lot of things, stopped using shower gel, white cotton pants- all the usual suspects have been eliminated... Three different doctors looked at my vulva skin and they all said there's absolutely no changes and reluctant to do a biopsy. All the best!