Constant dizziness, disorientation after wearing contacts
Posted , 25 users are following.
Hi everyone,
I went to thailand two months ago, and on my connecting flight in South Korea, I decided to put in my contact lenses. After putting them in, I felt a sense of disorientation, dizziness, where I thought I was having heat exhaustion. It happened for an hour and I forgot about it. When I arrived in Thailand, it happened twice more, every other morning when I first put them in, a sense of wooziness and dizziness occured but would go away. My very last night in Thailand i put my contacts in and felt dizzy again for an hour, and was fine, later went out to dinner then all of a sudden I got so dizzy, I started having a panic attack. I didn't know what was going on and went to the ER. No one knew what was wrong with me...that night I took my contact lenses out and still felt horrible. Like I was disoriented, couldn't focus, like my vision was weird, I started having head pressure as well. This feeling never went away and I still have it two months later straight. I do notice the sensation is less prominent either at night or when I have my glasses off. I feel less of the sensation, but the mornings are the worst.
Any ideas? I've seen a neurologist, ENT, everything, was checked for ear problems Vestibular Neurtis. I'm so stuck here...however I never mentioned my eyes were involved because today it just clicked with the whole contact lense thing.
0 likes, 73 replies
davisltx stufon
Posted
Not coincidence. It happens to me too. I feel dizzy, disoriented and almost totally out of my mind sometimes - from the moment I put my contacts in until I take them out. It's very weird.
A news anchor somewhere in the US committed suicide after having LASIK not too long ago. She apparently felt 'weird' after her surgery and never recovered from it. I've wondered if she felt what I feel when I put in my contacts. If so, I almost can't blame her. The prospect of having to live like that every day for the rest of your life with no relief would be an absolute nightmare.
jack18521 stufon
Posted
hello I have the same exact symptoms and issues you are having. Before I started having these symptoms I had taken a new job in a grungy machine shop. This shop had no ventilation, and I noticed in the mornings that my contact lenses would get stuck to my eyes. This has never happened before, unless I have been wearing my contact lenses for 15+ hours or if they were getting Old. I actually quit this job very quickly, and my contact lenses stop sticking to my eyes. However a few months after I quit I started to notice I was getting slightly dizzy at random times. It began to get worse and worse until finally when I was running on a treadmill I thought I was going to throw up. Now I can’t wear contact lenses at all, when I put them on, I start to feel sick. But even when I’m not wearing contact lenses I have these weird dizzy spells and also random sharp pains in my eyes and head. I had been to Indonesia 12 months prior. I’m just mentioning that because you mentioned you were in Thailand. And I don’t rule out the idea that I got some bacteria in my eyes or ears? so far my doctors have been useless and they keep telling me how healthy my eyes are. I noticed there is a gray line where my contact lenses always got stuck. I have brown eyes but right above this line is gray. The doctor said it’s likely because my contact lenses were keeping oxygen from getting to my eyes. But he’s offered no solutions. I’ve googled my symptoms several times and it seems like I may have an auto immune disease but that is just from matching up the symptoms on web MD and google. I would be interested to follow your progress. It’s funny that you mentioned panic attacks, because I feel like that is also happens to me, as I get short of breath. So when you add the shortness of breath to the dizziness, it makes me feel like something is terribly wrong. I actually called an ambulance one day, and went to the hospital. But the hospital said I was fine. It’s very frustrating it’s funny that you mentioned panic attacks, because I feel like that is also happens to me, as I get short of breath. So when you add the shortness of breath to the dizziness, it makes me feel like something is terribly wrong. I actually called an ambulance one day, and went to the hospital. But the hospital said I was fine. It’s very frustrating
stufon jack18521
Posted
Hi!
sorry for the very very late responses. Im currently in medical school. But i wanted to come back and speak to everyone. Update is that im 90-95% back to normal! im on amitryline and things have falling back into place. i was diagnosed with a migraine variant which may been triggered due to flying or pretty much anything on the trip. contacts made it worse. it used to feel like i couldnt focus on anyrhing, very dizzy, i couldnt go to grocery stores without feeling sick, very sensitive to fast motion, head pressure.
So far ive been great and have gotten my anxiety in control as well. Please have hope though that youll get better. it will happen and this is NOT forever!
Check all areas to make sure eyes are functioning normally, see doctors but make sure you dont go down a rabbit hole. Did that way too many times.
Please check for possibilites for vestibular neuritis, vestibular migraine or migraine variant, labryinthitis, the problem can be centrally located (brain) or peripherally (eyes, ears) located. Theres a problem in at least one of them.
jack18521 stufon
Posted
Thank you so much! Good luck in school! Jack
theresa12345 stufon
Posted
which migraine tyoe did they say you have my neurologist is awful and just gave me a low dose beta blocker for symptom relief and wont look further into it the cause my symptoms are identical to yours and causing dizziness that leads to full blown panic attacks. its been a year and a half of seeing every single specialist possible and im feeling so helpless
stufon theresa12345
Posted
hey send me a private message so i can send you my email. i can talk easier through email about what helped me
conner05803 stufon
Posted
Hi,
I am just seeing this thread and it sounds a lot like what I've been dealing with. Over a year ago I randomly had a few bouts of extreme vertigo and experienced shortness of breath like a panic attack. Prior to that I had never had vertigo/panic attacks etc and it came out of nowhere. I thought I had some sort of sickness but the Dr didn't find anything and it ultimately subsided after a few weeks.
Since then, I've had on and off periods of vertigo (not spinning, hard to describe) where I feel extremely spaced out, brain fog, and tiredness. It has made is extremely hard to concentrate on my job and I've been to a lot of DRs trying to figure out the cause. In the past month, my ears started to ring and I have the feeling of fullness in my left ear. After going to an ENT, we found some slight reduced hearing in that ear, but the ENT was under the assumption that the hearing may have already been like that and the feeling of fullness was something else. I've also noticed that wearing my contacts makes it worse, even though I used to wear these contacts without any problem. I am now going to make an appointment with a neurologist since it sounds a lot like what everyone else here is describing.
stufon conner05803
Posted
hi sorry im replying so late. i think you have a migraine variant of some sort. i felt the same way as you. try amitrypline and see if it helps. if you guys want to contact me by email then let me know. its hard for me to type on this website
theresa12345 stufon
Edited
Hi Stufon, my symptoms are identical to yours. Did you ever find any answers? I have been to every specialist possible and no answers MRI and CT scans if my brain are fine, eye doctor says my eyes are fine, saw a neuro opthomologist that diagnose me the binocular vision disorder but some of my sunotoms didnt add up. ENT said ears are ok no major vestibular stuff, neurologist just gave me propranol low dose for symptom relief. i found out later my eye doctor gave me the complete wrong rx a year later and it has comoletley messed me up even being in the right glasses now i cant switch back and forth from glasses to contacts without getting intense dizziness and nausea and causing full on panic attacks its terrifying. im going to a new eye doctor this week to see if they can more closely match my glasses and contact rx as i went a whole month wearing glasses only and actually felt ok .
mandeep89375 stufon
Posted
hi guys ... i have come across this blog from my own issues. i dont even know kf the blog is still open
i have this and its is a nightmare for the last 18 months. i never go checked out because this started when i had a cochlear implant. all the doctors have put this down to this and told me wait as the brain will get used to it.
18 months down the line i feel like there is no hope. i feel like my verison is dizzy, i feel weak , i have foaters and flashes. it is a constant nightmare. i have got my eyes checked and told there are fine. i am doing balance excises which dont work. i am now going to a dizzy doctor in harley street ... and looking for hope. we always put this down to hearing loss and things are not getting better for me
jenna49869 stufon
Posted
I have been having the same issue. Do you feel like, wobbly? Like you're swaying on a boat? Or, like the feeling of being in the ocean all day and then later in the day you get a random wave of still feeling like you're literally riding a wave? I had my eyes checked and just started with contacts 2 months ago with a much stronger RX and ever since then it's been really bad. My head feels heavy and I just feel off balance - physically and mentally. I notice it gets worse throughout the day - especially after I've been at work staring at my computer screen at work all day. And I only feel somewhat better when I'm laying down.
I've been googling and something called "Persistent postural-perceptual dizziness (PPPD)" came up so I've been doing some exercise to "retrain my brain" that I found on Youtube. It was the closest thing that matched all of my symptoms. I started doing the exercises about a week ago and no relief yet but after extensive research I've seen that it may take a little while to get any relief. Hope this helps a little.
samantha00474 stufon
Posted
did you ever find real answers for this?
ive been having vertigo and not sure if its caused by severe stress, inner ear, my contacts prescription being off (i havent had my eyes checked in quite a while) but was told it sounds like bppv by a doctor and prescribed meclizine... i need to know the root problem so i can fix it!
i hope you got relief. i am looking for it right now too. thank you so much
malorieyoung22 stufon
Posted
I know this thread is 3 years old, but by the chance you see this, did you ever figure it out??? i swear i could have written this word for word except my trip just before my episodes started was to Arizona, and I just made the connection to my contacts today! I've been feeling like this for 3 months now, and none of my doctors are taking me seriously. Hoping and praying you see this and have something to report after all this time!
errayn90660 stufon
Posted
I'm in with the same .... Any update here? thank you!