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Constant Dizziness from Meniere's

Posted , 6 users are following.

christina91807
christina91807

Hello everyone,

I've had a diagnosis of endolymphatic hydrops (from some doctors, Meniere's) but my issue is constant dizziness. I've had Betahistine which has slowed my attacks almost completely but the constant dizziness stops me from living life, I'm pretty much stuck in bed all the time. Any movement exasperates it, I can't really walk or turn my head/body at all without it making me dizzy. Most doctors think that my balance system has repaired since my last attack so it's not that, there's something else actively impeding on my inner ear. One specialist thinks it's endolymphatic fluid so my assumption is that the surgery would help?

My question is: Has anyone had endolymphatic sac decompression surgery help with their CONSTANT dizziness?

0 likes, 13 replies

13 Replies

  • Guest
    Guest christina91807

    Posted

    Hi again. BPPV affects me in that way. The eply manueuver helps to reset the inner ear crystals, at least for a while. Migraines also cause dizziness. I have learned that not all migraines cause actual headaches. Hard to tell with dizziness. I would explore more before surgery because surgery cannot be undone. 
    • christina91807
      christina91807 Guest

      Posted

      Ah okay, unfortunately I've had the epley done a few times and no success

  • gerard90471
    gerard90471 christina91807

    Posted

    After being subject to vertigo and other manifestations from my  Meniere’s over several years I began to experience chronic dizziness and feeling shakey. 

    My ENT believes that Meniere’s had damaged my vestibular system and recommended physical therapy. After nine sessions and regular homework I am free of the chronic dizziness. 

    It does not cure Meniere’s but I found that vestibular therapy can be helpful in addressing some of its secondary effects. 

    • christina91807
      christina91807 gerard90471

      Posted

      that's amazing! I only had about 5 attacks before my constant dizziness began to happen. Can I ask what PT consists of?

  • gerard90471
    gerard90471 christina91807

    Posted

    I had my vestibular training done at the Rusk Institute in New York. The exercises consisted of coordinated movements of head turning, balancing and walking. A trained therapist would know which exercises are most appropriate for you. 
    • christina91807
      christina91807 gerard90471

      Posted

      so it was vestibular training that helped rather than physical therapy? How soon did it take for you to realise it was working? thank you smile
    • Guest
      Guest gerard90471

      Posted

      I recommend vestibular therapy also. I have gone through  serveral sessions. It is helpful. My latest sessions were done after my sac decompression surgery this year. I will be probably be doing this off and on for the rest of my life. 
  • benjamin80326
    benjamin80326 christina91807

    Posted

    Ive had the decompression surgery which was effective for 1 1/2 years, then the vertigo started all over again.  My younger brother had the same procedure about 10 years ago and he has not had an episode of vertigo since.  It works differently for different people.  If I were you I would get the surgery.
    • christina91807
      christina91807 benjamin80326

      Posted

      Thanks to betahistine I haven’t had an attack for a while but I am still constantly dizzy. Would the surgery help that?
    • mowmow
      mowmow christina91807

      Posted

      The surgery might help it want hurt. Have you lost your hearing in one or both ears? If you still have hearing, I don't know if you should have this surgery!

  • mowmow
    mowmow christina91807

    Posted

    Hi Christina! Yes! I had the surgery in 2009 I think it was, anyway it really helped my veritgo attacks! I do still have some dizziness but not like before the surgery. If my dizziness gets to bad my doctor does the drops procedure and that helps! I usually have to have that at least once a year. When I had my surgery it took almost 5 weeks before it started helping me! I hope you will go on and have it, I don't think you will be able to get better until you do! Let me know, I will be praying for you!

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