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At the time of my symptom onset, I was a very healthy and active 24 year old. I have since lost weight, energy, muscle mass, libido, exercise endurance, etc.
I had previously been diagnosed with what a doctor assumed was gastritis-- he prescribed 30 days worth of omeprazole, and within that time frame, I felt better. This occurred 1-2x more, and I was able to manage/treat on my own. These occurred at ages 22-23.
I then moved cities at age 24. On my first night, after taking an NSAID dose due to headache following a beer/dinner in the sun, the same symptoms associated with the speculated gastritis diagnosis emerged. I knew how to treat it. No problem. At the time, I starting my career. With moving and work, it was the most stressful point of my life. Before the familiar symptoms went away (gnawing abdominal pain/discomfort), a secondary abdominal discomfort emerged, right below/between my ribs. The initial symptoms went away, and the secondary symptom remained. It has remained for over a year.
At the time it started, I was taking a high dose of esomeprazole (nexium), and previously omeprazole (prilosec). I was also taking sucralfate. I am still unsure whether or not the dosage or combination of these medications caused my problem. Though prescribed to me, I always worry they are the cause. Nothing I've done can relieve my singular symptom.
I have seen two gastroenterologists and one hematologist. I have had normal blood draws, stool samples, EGD (x2) with biopsy, gastric-emptying study. An ultrasound and a CT revealed I have a slightly enlarged spleen, but everything else normal; the hematologist was not worried about infections as I have no other symptoms, save occasional nausea.
I have been prescribed amitriptyline, but was told to discontinue if no improvement after 10 days. There was none.
I tried two weeks of only organic, no sugar, etc. I have eliminated coffee. I average 0-2 alcoholic beverages a week. After discontinuing the strict 2-week diet, I have realized that the types of food I eat have no bearing. I can eat a plate of veggies, a box of cookies, a big burger, or drink a glass of water or perhaps a six pack of beer, and my symptom(s) remain. Sometimes, when I eat larger meals, the discomfort worsens for several days before returning to baseline. I have even tried going 1-2 days without eating, and the discomfort remains.
I have not received a diagnosis of any type at this time. My doctors are scratching their heads, probably trying to figure out what to try next. I most recently saw the hematologist, and she drafted the possibility of functional abdominal pain. I fear this diagnosis is coming. I've read many stories on here regarding the diagnosis, and there are definitely similarities.
Has anyone experienced this main symptom (constant upper abdominal bloating/pain/discomfort)? Has anyone had similar experiences with PPI usage and/or sucralfate?
Best of luck, all.
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