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I need Ideas people! Anything, we are desperate. My husband has been ill with this for around 10 yrs. It was manageable and mis-diagnosed as ibs/anxiety until about 1 year ago when it got much worse. He has a hard time describing it but says it feels like knots in stomach, nervous stomach, extreme hunger, a gnawing feeling or like adrenaline. It' so bad to the point he cannot function. He is only 41 and his quality of life right now is ziltch. He wakes up through the night with it, it is there 24/7 and never relents. He is under the care of a gastro and has had numerous tests (mri, scopes (no ulcers), pill cam, ultrasounds, etc... all come up with nothing) Bloodwork so far has shown anemia, slight elevated lipase and he has recently been diagnosed with sibo and hypothrryoidism. We used to think it was GI related but we are starting to wonder if it is related to his adrenals/hormones maybe? Anyone ever heard of anything like this? Almost like he is having a constant flight or fight response in his stomach 24/7.The rest of his body does not have this constant fight or flight feeling, ex) he is not sweating, no increased heart rate etc... I will give whoever help me crack this case the biggest super appreciative cyber hug.
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