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Hello! My name is Violet and I am 21 yrs old. I have passed kidney stones on a daily basis for the past almost 3 years. It took me until now to find ONE doctor who was willing to take his time and invest it in trying to find out what is wrong with me and a concrete diagnosis. He immediately tested my parathyroid levels because he had seen this happen before and that be a cause. I've done my research on this stuff and I've talked to my doctor. I think where we are stuck is that I have fluctuating PTH in my blood test results. The first time it was 87, the second 42, the third 79. This led my doctor to wonder if a messed up parathyroid was causing excess calcium in my body and my kidneys couldn't process it so they were forming stones. He really thought it had to be a tumor on the parathyroid gland and a large one to cause the amount of kidney stones I pass. He ordered a neck CT. I'm clear. No tumor. But you can still have hyperparathyroidism. The only thing is, every time I have heard of hyperparathyroidism causing severe and chronic kidney stones is when you have really high calcium levels in your blood from your malfunctioning parathyroid glands. My calcium levels have always been normal. Has anyone ever experienced this? Please. If anyone knows anything at all about my situation, I beg you to please talk to me about it. I am at a point where I am unable to function normally in any way in my day-to-day life. For the first year and a half that this was happening, I laid in a ball and puked and went to the ER. No work or school. Finally, the last year I've forced myself to get a part-time job and do school online. But I'm slipping up majorly due to the constant puking and insanity of the unbearable pain I'm in every day from the kidney stones. I need answers and help. Desperately. If anyone has ever heard of this, please talk to me about it. Please.
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