Constant neck pain caused by spinal fusion surgery? I need pain relief, nothing works. Help?

I had a spinal fusion about 7 years ago due to accidental discovery of klippel-feil. I was born with it (obv.) and in the past year or two the part of my spine that was further fused keeps getting worse and worse. I've taken medications for nerve pain, for arthritis, and naproxen. I have had a little of a lot. But nothing seems to help this pain. I've even tried hot, cold, and stuff like Voltaren and Icy Hot. Nothing. Works.

Whenever the back of my neck gets hot the pain gets worse. Like, if my hair is down all day or I am sitting with a pillow on the back of my head and my neck is resting on it.

I've seen many doctors, mine is useless and I'm trying to a neurologist but it's not working. So I'm wonder if anyone has ever experienced the same and has any advice?

(A little bonus info about the surgery. My bones were fused from birth. They accidentally discovered the bone clump and decided it needed to be further fused. I was 17 when I got the surgery. They put metal over the already fused bone to fuse it more, then put bone shaved off my hip over it.

I've seen an orthopedic surgeon, a pain clinic, my regular doctor and a chiropractor and nothing and no one seems to be able to help whatsoever. I'm a little desperate right now...)

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