Constant Pain/Pressure Behind Both Eyes (Help Needed)

Posted , 2 users are following.

Bio: Hello, I'm Jim. I'm 28 and I live near Tampa, Florida. I'm seeking help with regards to eye pain. I've had constant pain behind both eyes for as long as I can remember; 8+ years. I cannot cope well with life like this anymore sad I'd appreciate your time; I know it's a long read, but this means more than you can imagine!

Pain (scale 1-10): The pain level behind both eyes is 3-4 on bad days and .5 to 1 on good days. I feel constant pressure behind both of my eyes (feels like it's on the top/behind my eye lids). The feeling is like a light to medium pinching sensation (like if you pinch your skin before it hurts too much) and is 24/7. The pain is the worst in the morning when waking up and is less at night.

Contributing Factors: 

SLEEP (main): A good night's sleep will determine the day's pain level. Sleep less than 9 hours will result in a pain level of 3-4 and the entire day is hard to grind through.

LIGHT: Sensitive to light; must wear sunglasses outside (even if cloudy) and sometimes inside (hockey game/bright lights and at casino playing slot machines).

COMPUTER: Cannot be on the computer more than 15 minutes in the morning or afternoons. 

READING: Cannot be on the computer more than 15 minutes in the morning or afternoons.

Remedies: A well night's sleep is most important. Used sleep medication in past, but do not want to become addicted (do not want pain killers either). The follow helps about half the pain: Advil, caffeine, high fat/high carb foods, putting coco butter on the top of my eyelids lightly, and/or a good nap.

Tried: Ophthalmologist(s) and had orbital cat scan. Eyes are healthy/no glaucoma. Tried various eye drops (some prescribed) and sinus techniques, all did not help. I gave up seeking more specialists because I could not afford more doctors visits (I do not have good health insurance); so I decided to accept the pain and cope with it. I remain on a good diet/exercise regimen and my vision is not rapidly deteriorating or had any vision loss.

Cannot: Travel, do anything in the mornings, use my computer IT degree (be on the computer for hours a day), or read much at a time. The pain effects my mood and morale sad

Want: I would love any suggestions/support that you can provide! I plan on paying out of pocket to speak to a neuro-ophthalmologist about my issue. After Googling, if I had to guess it's some type of nerve damage, but behind both eyes... I'm not sure how both are the same pain level. Also, I would think the pain level would be least in the mornings (after sleeping and having eyes closed), but, on the contrary, the pain level is least at night and worst in the mornings.

I would love to travel with my new girlfriend, but sleep is so paramount (to my pain level), that I must use my own bed in my blacked-out/cool room. My life revolves around me coping with this pain, and I wish I could live a normal life - wake up early, work on the computer, and just live life to the fullest! 

Thank you for reading and God bless smile

-Jim

1 like, 3 replies

3 Replies

  • Posted

    I am struggling with the same exact thing! my boyfriend of 11 1/2 years broke up with me because of my chronic pain. He couldn't deal with it anymore(   we stopped going out because everything caused the pain).  I am still searching for answers. I know that forward head posture is a contributor because when I lean my head forwards at all the pain behind my eyes come. I have been dealing with this since march 2009.

    • Posted

      Thanks Kathy,

      Really appreciate your response. I personally havn't noticed my head posture being an issue, but I really appreciate you relating to me. It's hard when the doctors say it's "sinus'" but it clearly isn't (ct scan results attached). Best wishes and hope we can get get support that'll help <3

      -Jim

  • Posted

    Hello everyone,

    I do have one more thing to include. In another post, I did have someone ask about my thyroid, and here was my response:

    "I have not tested my thyroid, but I just googled it and it's very interesting because I do have throat pain not in the morning weirdly, but at nighttime (the feeling if I was to push out my adam's apple a little bit but permanently). I did see a general practitioner for that, and they ruled out depression, so I didn't pursue it further.."

    Do you think my eye pain issue could be related? If so, any suggestions on what to do? 

    Thank you so much everyone!

    -Jim

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