Constant Pressure headaches after orgasm thunderclap

hi all,

So much info I've been reading on pressure headaches but so far not finding anything that truly matches what I'm experiencing

I had a pre orgasmic thunderclap headache in Feb ‘21 (9.5/10 pain like I've never had) and have had a constant pressure in my head since.

I don’t even like calling it an actual headache because I’ve had migraines before decades ago and this is nothing like it. It’s like the center of my brain is about to explode. Most of the time it’s not even extremely painful but the discomfort is intense and it’s affecting all aspects of my life. I can still function but I’m irritable and just don’t enjoy regular activities lately. To be clear, I’m not depressed, I just plain don’t feel well. Its kid of like a severe sinus headache but in the middle of my head. It’s like I need a pressure release valve on my head!

-Hospitalized for 3 days. CT, MRI and spinal tap showed no abnormalities.

• over the counter headache relief does little.
• hydrocodone provides a bit of relief but I obviously can’t take that forever.
• I’ve seen several neurologists that have offered little help.
• my neurologists prescribed me and I just finished a heavy round of Indomethacin which seemed to lower my discomfort a bit but now it’s back full throttle. He says there are several other treatments he’d like to try but I have little hope.

Anyone with similar experience, please reach out with any information you may have. I’d really appreciate it.

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