Constant urge to wee

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Hi, I'm 22 and I have always had trouble with urinary infections, last year I got a very bad urinary infection was treated with antibiotics but it never really went completely away. I had a faint sensation of needing to pee all the time for about 6 months and it suddenly faded one day. I went 6 months without anything then I caught a sickness bug was very dehydrated and got a urinary infection again, went the doctors had antibiotics and from May this year I have still had symptoms. Some days are worse where it's terrible, I'm in pain and I can't move off the toilet, most days I can deal with it but it's beginning to really get me down. I have had every course of antibiotic, had an ultrasound and my bloods taken which were normal and tried the sachets in my water to calm symptoms but I still have it. It's starting to take over my life. I'm scared to get into a relationship as this is embarrassing for me and I don't want to constantly tell my partner that I can't have sex in fear of aggravating it. I don't go out anymore with my friends because drinking only makes it worse! I hate moaning because people have a lot worst to deal with but I'm starting to really get me down. I feel lost. Doctors don't know what to do, they say I'm fine. If anyone has any suggestions please let me know, I'm starting to give up😢

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  • Posted

    I wish I had an answer for you

    I am going through the same thing

    I have had a uti for a month

    I have major side pain 

    I did all blood work and came back all normal

    I was on 3 different antibiotics 

    And nothing helped

    I’m so scared it’s somethig really bad 

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  • Posted

    Hi Amy and Caterina

    I know from experience exactly what you are both going through.

    After several months of putting up with the constant urge to wee/pain and with my urine tests not always showing an infection and several courses of antibiotics, scan and blood done I was totally drained and suffering from lack of sleep.

    I returned to my GP in tears and asked for a referral to see a urologist. It was the best thing I could have done. He explained that the only way to know what was wrong with my bladder was to look inside it - a cystoscopy. I was terrified and almost cancelled several times.

    The cystoscopy was NOT painful just uncomfortable.  I got the results immediately.  I am being treated for overactive bladder with Mirabegron and inflamed bladder with low dose antiobiotics-Cefalaxin which I take each night.

    I felt better within two weeks of starting the medication and in the last few months I have been symptom free. I have had a urology review and he is happy for me to stay on the medication while it is working - I will have another review in December.

    PLEASE don't give up getting help, it is there, it is just a matter of insisting that your GP refers you to a urologist who is a specialist in bladder problems.

    Take care and keep in touch.

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    • Posted

      Thankyou! I'll make an appointment tomorrow to see my doctor and ask to be referred. That gives me a little hope that it could be something along these lines! 

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    • Posted

      Hi Amy

      Be friendly but very firm with your doctor Amy and don't hold back on the full details of exactly how you feel and if you get upset and feel like crying then don't hold back.

      Life is for living Amy, not being miserable and in pain.

      If you feel you need support then take someone with you.

      Take care of yourself.

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    • Posted

      Lynn thank you so much for responding 

      I made an appointment.. he sent me for a scan. I'm.waotong on results. I just feel so misunderstood, I called to check culture results and she tells me all clear. I know I have uti symptoms, I take a home test and it shows positive, now what? I'm so scared and I have myself believing it's something with my ovaries, I keep reading .. I feel noone is helping and  everyone around me is looking at me like .. what's wrong with this girl.

      I feel why can't antibiotics habe fixed this uti, I don't know what is going on with my body, I'm.realky really scared . And to know I have to call doctor today telling then positive for uti, they are really gonna think I'm nuts. I feel alone and don't know what to do.

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    • Posted

      Don't to scared or afraid to ring the doctor they are there to help you but you have to be truthful with them and tell them exactly how you feel.

      Waiting for results is awful especially when you are in pain, worried and upset.

      i had an ultrasound scan, an internal scan(transvaginal) both of which were clear. It was not until I had the cystoscopy that I had a diagnosis and the right treatment.

      You are not nuts you just want to know what is wrong and get it put right. If your scan is clear then ask to be referred to a urologist if the doctor believes you have bladder problems that is the specialist to see.

      Look after yourself and take care.

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