Constipation (severe), hemorrhoids, low pancreatic enzymes, and oil in urine. Why?

Posted , 4 users are following.

This is very long, the crucial parts are in bold. 

I'm 25, male, and in good shape. I've had severe digestive problems for 2-3 years now, through trial and error I've discovered the following definite sensitivies / conditions: 

-Oxalates (I think I have kind calcium oxalate stones)

-Salicylates

-Hemorrhoids 

-Pancreatic enzyme deficiency (ie: yellow, loose, poorly formed and very oily stool, pretty sure taking adderall as perscribed for 2 years did this, I don't know how exactly, but the problem is largely (70-80%) resolved by ceasing adderall and taking Creon (and I did try each independently to no success) 

Suspected:

-Amines

-Gluten 

-Kidney stones

Remaining symptoms:

-Diarrhrea followed by severe multiday constipation: After eliminating the above dietary irritants and taking Creon and a probiotic with every meal I had the closest to normal bowels moments I've had all year, for two days, then the normalcy was followed by a day of constipation followed by a morning of diarrhea (I'm guessing overflow) and now 2 going on 3 days of constipation and a dull ache on my left side (that I am very familiar with). This is despite the 3 gallons of water and fiber tab I've taken today. Enough water helps with bloating but doesn't relieve the actual constipation. 

-Constant burping: Before meals, after meals, when I wake up, after drinking plain water...

-Very oily looking urine and particles with trailing "plumes" of oil: Almost every time I urinate there is oil, the urine can be crystal clear and there will still be oil, maybe every 2nd or third time there will be a "smoke signal" of oil the source of which I cannot see. I thought these were kidney stones but the symtpoms I'm reading for that are cloudy or discolored urine, mine is neither but the oil content appears higher in the morning when dehydrated. 

-Yellow eyes and broader anemia symptoms: They alternate between yellow and white throughout the day, the broader symptoms have gotten better with dietary changes. 

-Fatigue and disorientation/confusion/clumsiness: Some itchiness too, and my limbs seem to fall asleep more than I think they should. 

-Left hand spasms: Also in my left bicep. I'm thinking this might be related to the suspected kidney stones, I will start taking potassium citrate soon. 

My biggest questions are: 

What could be causing the blockage leading to multi-day constipation and what should I do about it?

What are the "smoke signals" of oil in my urine everyday? 

I should also note that I've been seeing a gastroenterologist for months now and they have so far been useless and never have suggestions of there own, so I'm in an endless cycle of pain, hypochondrianc level googling, asking for tests, tests coming back normal, rinse and repeat. In defense of hypochodriac googling, I owe every improvement thus far to the practice.

Well, I'm off to make a midnight run to the grocery store for more water (these days I dread leaving the house almost as much as I dread lines and crowds, the midnight crew can certainly recognize me from a half mile away by now...), thank you so much to anyone who reads this and has suggesstions. It's very depressing to realize my early 20's are being defined by debilitating digestive issues but there is so much quality information out there I know I'll stumble upon a root diagnosis eventually. 

0 likes, 5 replies

5 Replies

  • Posted

    I don't see an edit button? I just wanted to add I suspect H. Pylori but have already been on antibiotics for 10 days to no benefit (I don't think the antibiotics were targeted towards H. Pylori though, not sure if all antiobiotics are created equal). 

  • Posted

    Keep drinking tge water, parcetmol for the pain. Never had oil in urine though.
  • Posted

    Drink the water.  I drink almost nothing but now.  I do understand about leaving the house.  I feel the same way although not in my 20's.  My problems started in my 30's but had to leap off buses to find a bathroom before now and worse which I will not go into here.  I had to give up work for a year as it was so bad.  In fact I have only just agreed to do a few days work a week but I have a very sick relative and already noticed my illness levels are high again. Luckily my family have not put too much pressure on me. I do not think long motorway journeys help though and in the same way you have a fear of leaving the house I also have a fear of motorways.  Nothing worse than seeing the 60, 50, 40, 30 signs when you have our problem.

    I have not had oil urine, blood yes but not oil.  Blood was related to other matter and not this problem. 

    I drink water, eat salad and take more exercise and appears to have helped.  I walk in the middle of nowhere.  I try to ensure a bm before a start walking but if not walking in the country helps.  I used to run but this was not as relaxing and could make me ill.

  • Posted

    Have a urine test yet? Relax and try meditation or exercise. Stay away from fatty food, eat slow, drink slow, no acohol or cafeinn, no processed food. hope you will ok. I really feel for you. 
    • Posted

      Thank you. I've done urine tests for UTI (an at home test and a professional test) which came back negative but not yet for kidney stones, I left a message at the nearest urology center yesterday and will hopefully get a call on Monday.

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