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I had my appt with the consultant this week. he was nice but didn't seem clued up.
First of all he didn't know the abbreviation for Exocrine pancreas insufficiency and wen I mentioned EPI he asked wat it was which threw me a little.
I haven't been diagnosed with chronic pancreatitis or EPI but I've had 2 Elastase-1 stool tests done at the GP and a Elastase-1 blood test by the gastroentoligist 2yrs ago and all indicated moderate/severe EPI. I've not had symptoms of pancreatitis but did the test as I've had a lot of stomach problems but I also have IBS.
First of all he said they don't do a blood test for Elastase-1 and it was a stool test but I get my results online and it was definitely a blood test so very confusing.
He also said the Elastase-1 isn't always accurate and could be due to my IBS. I asked if it's common for the Elastase-1 to be inaccurate and he said yes it happens all the time. Dont understand why I went for the test in the first place if that's the case.
He don't think I have chronic pancreatitis and thinks my symptoms could be due to IBS.
Hes giving me an MRI anyway to check my pancreas as well as blood tests and a repeat of the Elastase-1 and given me Creon 10000ng to take with main meals only to see if my symptoms improve.
He told me I don't need to take any vitamins and wen asked if I could drink alcohol he said yes.
I won't be seeing him again for another 5mnths to get my results as it will take awhile to see any improvements with Creon.
Tbh he seemed clueless about it. I just hope he's sent me for the rights tests?
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