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Consultant says I have essential tremor, I'm having brain mri next week

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mag2
mag2

Hi.

I noticed a slight tremor in my right hand about 6 months ago, it is slowly getting worse, I also have much pain in both arms, legs, hips, back... Everywhere really. I get random twitching in my eyes and randomly different spots over body. The tremors are getting worse and I can no longer hide it, they mostly happen when I'm not doing anything, although saying that I'm try to do a bit of DIY today and have dropped things and am finding it hard to do precis things.

I do a physical job housekeeping for about 5 families and am noticing it's getting more difficult with the pain in my arms, I'm not sleeping well and very tired most of the time... I will be having a brain mri scan next week and have had lots of different blood tests to rule out anything sinister. Consultant done some basic tests for parkinsons and is confident I don't have that..

Any comments suggestions help would be appreciated.

Regards

Margaret

0 likes, 5 replies

5 Replies

  • Tezes
    Tezes mag2

    Posted

    HI,

    does your neuro specialise in movement disorders .? My GP thought i had ET but when i was examined by the specialist neuro she diagnosed me with dystonia and dystonic tremor. The tremor in Et is smooth wheras the tremor in dystonia is uneven and more twitchy. if you have either of those two conditions the MRI will be clear, they are used to rule other conditions out, i also had a Dat scan to rule out parkinsons. All the best x

    • mag2
      mag2 Tezes

      Posted

      Thank you Tezes.

      It was the neuro who said ET, I think she was specialist in movement problems. I will have a read about Dystonia and see if I have the symptoms. My scan is Wednesday so I will know soon enough hopefully.

      Regards Margaret

    • Tezes
      Tezes mag2

      Posted

      thats good not too long to wait then - good luck with it all, try nor to worry and let me know how you get on x

    • mag2
      mag2 Tezes

      Posted

      Thank you.. I've looked at the Dysatonia and I don't think it's quite what I have.. The quicker I can get a diagnosis the quicker I can get on with my plans for the future.. X

    • mag2
      mag2 Tezes

      Posted

      Had mri this morning.. Awaiting results now.. Dunno how long that will take NHS.. 🙄

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