Consultant suspects mild Crohns

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Hi , following bloody stools , first had a flex sygmoidoscopy , which indicated a patch of inflammation , symptoms continued , a full colonoscopy was done , again the small area of inflammation was evident and biopsies were clear .

i was started of Mezastalin tabs as surgeon suspected ulcerative colitis . I was then referred to a gastro enterologist , who has started me on Prednisalone , starting on a 40mg course & winding down , which , he said , he felt would sort it out . I'm on my 2nd week now , still have bleeding , is this normal ? Does it take a while to kick in ? I haven't had any pain at all at any time with this . Also , I feel REALLY well , however , my sleep is dreadful , normally I sleep very well , he did say this could happen & should regulate in time . 

Am I expecting miracles too soon ?

thanks in advance 

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  • Posted

    Im sorry that the pred hasnt helped the bleeding.

    I cant give any advice, pred didnt do anything for me but my symptoms werent the same.

    May be worth ringing the nurse and asking them though.

    Good luck to you

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  • Posted

    Hi,  Sorry to hear of your problems, they are much the same as I was five years ago.  I was put on Prednisalone and Pentasa.  My consultant put me on the Prednisalone for 8 months then weaned me off, as you have to, then he put me on Azathiprine for 4 years as this is not as strong as the Prednisalone.  I am now only on Pentasa (says me touching wood as I am now so to speak under control).  It does take time for the Prednisalone to work especially if you have been suffering for a little while with the symptoms.  Everyone suffers differently with medication and what suits one person doesn't suite someone else as I have found out with my brother who suffers the same. He is on different medication to me.  Be a little patient and see what happens.  But please also talk to your nurse who will reassure you.  They are there for you, so speak to them.  Good luck and I do hope the medication you are on works for you as it has me. 

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    • Posted

      Good luck for next week.  Try and stay positive because stressing over things will not help.  I will not say there is a satisfactory end to this illness but things do get much much better. !!  Fingers crossed for you
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