consultants suspects fibroid may now be sarcoma
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So, iv had (what I was told to be) a fibroid for 2.5yrs. In that time it has doubled in size - I have had blood tests, biopsy and mri scan. Bloods and biopsy were fine - they even removes some smaller fibroids at the same time. The problem is with the large one as it is growing in the top of the wall of my uterus - therefore they cannot get a biopsy from it. So, they are concerned that it may be a sarcoma. I have been advised to have a hysterectomy in the hope they can leave my ovaries. I'm kind of adjusted to that - but what I don't understand is if the fibroid is actually cancerous - can I really of had it for over 2.5 yrs and feel fine. I just would of thought it would of had the better of me by now. It's all a bit surreal - im 41 and getting married in 3 weeks. My hysterectomy is booked for one week after the wedding as they want to do it asap! 😣
1 like, 17 replies
deanne2 ali86305
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I'm not a doctor of course although I am a health professional, but I wouldn't have thought it could be a sarcoma. Surely there would be signs in your blood tests especially as you have had the fibroid for so long and as you say I think you would have other signs by now. What a worry though. I don't know why they say these things sometimes, it just seems an unecessary stress.
Good Luck. Let us know how you get on.
ali86305 deanne2
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deanne2 ali86305
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ali86305 deanne2
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Jessible ali86305
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ali86305 Jessible
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Kaliana ali86305
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sara80820 ali86305
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so sorry about your diagnosis and the timing too - i would definately seek opinions before surgery - its been there for 2.5 years already and your health is not pressing i think you should have bloods redone, mri/ultra's rescanned and research well before this surgical step - bad to say but it favours the system to have patients opt for surgery although if sarcoma is what second and third opinions sugest then surgery is the best route - kaliana would you please give details what were the parameters that pointed to sarcoma in oyur case and what determined the diagnosis? it would certaily help keep us all informed and to be prepared
Kaliana sara80820
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sara80820 Kaliana
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Kaliana sara80820
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ali86305 Kaliana
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Kaliana ali86305
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I had weird periods and other symptoms for 6 months. It got so bad the last month I demaned an ultrasound. They then saw what they thought was a orange sized fibroid. I was scheduled for surgery 2 days later. Mine was perfectly round and it was attached to a stalk.
Kaliana ali86305
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ali86305 Kaliana
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