Contagious ?

Not seeing a specialist or going to a clinic - was diagnosed by my GP and no splitting at the moment. I am loathe to apply steroids to the area especially if it won't 'cure' it. Hubby is going to go to get it checked out.  

It won't cure it but control it. You need a biopsy as it needs to be diagnosed as you may not even have LS if this has not been done. It depends where you are to know what facilities are available to you. Here in Australia Melbourne has hospital clinics that help manage the LS. A GP usually refers you on to gynaecologist who specialises in this or dermatologist who specialises in this. The good thing about where I go is that both are available in a clinic dedicated to LS. 

Ah ! Well it's a bit far for me as in Scotland  

I certainly seem to have all the symptoms - tiny white itchy spots which I thought initially was thrush. skin looks puckered and white as if its been under water. Worse at night/ heat in bed. It doesn't seem to be getting worse though which is a relief. I make the cream i use with Shea butter, thistle oil, zinc oxide, aloe vera and vitamins & lavender oil and it's made a big difference to the itch and soreness. 

I would get a diagnosis if I were you and you may get some good news such as it is not LS. You need a specialist for this. Ask your GP for a referral. As your husband has something similar chances are you will be lucky enough to avoid this awful condition. I wish you good luck. 

I love aloe Vera. I swear by it but it would never control my LS as much as I would want it to. Maybe before I was diagnosed I had a milder form of LS  and it may have done the trick then but I cannot risk it now as full blown LS has risks like cancer when not properly controlled. Dermeze is good for moisturising and if you have a specialist team they will fluctuate how much and how often you use the steroids. Sometimes, it may be once or twice a week for six months then they may say more often or later on reduce it again. That is why you go to the clinic that specialises in LS. Different areas of the LS are also treated differently. I trust my Mercy clinic to instruct me how to manage my LS and would not take chances on using my own ideas as it is a specialist area that is needed to deal with it.

There are no specialist anywhere close to where I live, so I have to depend on my regular doctors for legs and private area and periodontist...for oral LP.  They are fine with how I am controlling it. I've had it for 9 years and it was not originally well controlled at all...and was misdiagnosed for several years...now I'm in the best shape I've been in years...but know that will not be true for everyone. I have it on my legs also...and that's another story...having a time getting that to settle down. I don't do anything dangerous or foolish and keep regular appointments.  My periodontist sees that I'm controlling the oral LP as well or better than the steroids that she prescribes (which she volunteered all the nasty side effects of)...so she's fine with what I'm doing for that. I go back for 3 month check ups. There are holistic treatments and even cures for diseases...I've survived two serious illnesses by going the holistic route...but I also keep my doctor informed and he monitors my progress. He has been amazed by my recoveries...but I also trust in modern medicine when I believe it to be the best option for me. I realize you have everyones best interest at heart...but the treatments you talk of are not a cure...and we need hope...and there is information out here that has come from women investigating cures in other countries...with other physicians...so by sharing we just may stumble upon something miraculous...then we all benefit.

Hello, I was wondering if you use the Witch Hazel neet or do you dilute it (if so with what and how much) I use the coconut oil and find it really good. But I am having to use the steroid cream to control at the moment just recently diagnosed so looking for any help....thank you x

I use Dermeze only apart from Advantan fatty ointment. It seems to be all that is needed to moisten and control,

I use the witch hazel full strength in a spray bottle. After giving birth I was given pads soaked in witch hazel to apply to my stitches to hasten healing by the hospital. That is why I tried it for the LS. It will sting a little if you are having rawness or a split...but it goes away quickly and does hasten healing. The coconut oil and aloe vera gel (the aloe vera gel will stop the itch) are soothing. Be sure to use the 99% or higher aloe vera gel. I'm not cured...but my symptoms are well under control. I wash with either olive oil or coconut oil soap or a product called Cetaphil. It is important to keep really clean as bodily fluids tend to cause more irritation. If you are  having a bad flare a zinc cream/ointment may help. I've used this when I've been somewhere that I can't be tending to myself regularly and it helps keep fluids off the area while it heals. Do what works best for you and what you feel most comfortable with...and if things don't improve or get worse do see your doctor.