Contagious ?

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I have been diagnosed with LS and had symptoms for a couple of years . I've been using a cream with lots of aloe vera in it which soothes the itch. Recently my husband has what looks to me like LS too - a whitening on the edge of his foreskin which feels a bit rough but no itching. All the info on line and the GP has assured me it is not contagious but as far as I can read-  it is rare in men. Has anyone come across this before or is it coincidental ? 

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  • Posted

    It is a coincidence. He might not even have it. He should get checked. You need to use something like Advantan or dermovate at least a few times a week. Are you seeing a specialist or going to a clinic? You have to be careful of splitting. Hope you have good help from a reputable dr.
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    • Posted

      Not seeing a specialist or going to a clinic - was diagnosed by my GP and no splitting at the moment. I am loathe to apply steroids to the area especially if it won't 'cure' it. Hubby is going to go to get it checked out.  
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    • Posted

      It won't cure it but control it. You need a biopsy as it needs to be diagnosed as you may not even have LS if this has not been done. It depends where you are to know what facilities are available to you. Here in Australia Melbourne has hospital clinics that help manage the LS. A GP usually refers you on to gynaecologist who specialises in this or dermatologist who specialises in this. The good thing about where I go is that both are available in a clinic dedicated to LS. 
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    • Posted

      Ah ! Well it's a bit far for me as in Scotland wink 

      I certainly seem to have all the symptoms - tiny white itchy spots which I thought initially was thrush. skin looks puckered and white as if its been under water. Worse at night/ heat in bed. It doesn't seem to be getting worse though which is a relief. I make the cream i use with Shea butter, thistle oil, zinc oxide, aloe vera and vitamins & lavender oil and it's made a big difference to the itch and soreness. 

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    • Posted

      I would get a diagnosis if I were you and you may get some good news such as it is not LS. You need a specialist for this. Ask your GP for a referral. As your husband has something similar chances are you will be lucky enough to avoid this awful condition. I wish you good luck. 
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  • Posted

    Would encourage you to see a doctor/specialist, the both of you.  As far as I know LS is not contagious.  
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  • Posted

    Yes, someone else has discovered Aloe Vera for the itch...yes it works for me too. I don't use steroids either and have been quite successful keeping my condition under control. I keep looking for the magic potion...and will never stop. Steroids have nasty side effects and if you can control your symptoms without the use of them...then Yay for you. If I knew they would cure me...I wouldn't hesitate to give them a try...but they don't cure you. As long as your GP is keeping a good eye on you and you are comfortable with that...then go with you gut feelings. If your GP recommends a biopsy...then probably would be a good idea just for a definitive diagnosis. Keep a careful eye out for changes along with your doctor...and act if something really looks or feels wrong.  Your hubby could just be having an allergic reaction to something in your cream.  You might try going with organic coconut oil for moisturizing. I spray on witch hazel and then do the aloe vera. In between times I sometimes use the coconut oil.  I've used the zinc cream if I've turned raw or had splits to protect the area while it heals...but since being diligent with the witch hazel and the aloe vera I haven't had the rawness or splits...such a relief!
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    • Posted

      I love aloe Vera. I swear by it but it would never control my LS as much as I would want it to. Maybe before I was diagnosed I had a milder form of LS  and it may have done the trick then but I cannot risk it now as full blown LS has risks like cancer when not properly controlled. Dermeze is good for moisturising and if you have a specialist team they will fluctuate how much and how often you use the steroids. Sometimes, it may be once or twice a week for six months then they may say more often or later on reduce it again. That is why you go to the clinic that specialises in LS. Different areas of the LS are also treated differently. I trust my Mercy clinic to instruct me how to manage my LS and would not take chances on using my own ideas as it is a specialist area that is needed to deal with it.
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    • Posted

      There are no specialist anywhere close to where I live, so I have to depend on my regular doctors for legs and private area and periodontist...for oral LP.  They are fine with how I am controlling it. I've had it for 9 years and it was not originally well controlled at all...and was misdiagnosed for several years...now I'm in the best shape I've been in years...but know that will not be true for everyone. I have it on my legs also...and that's another story...having a time getting that to settle down. I don't do anything dangerous or foolish and keep regular appointments.  My periodontist sees that I'm controlling the oral LP as well or better than the steroids that she prescribes (which she volunteered all the nasty side effects of)...so she's fine with what I'm doing for that. I go back for 3 month check ups. There are holistic treatments and even cures for diseases...I've survived two serious illnesses by going the holistic route...but I also keep my doctor informed and he monitors my progress. He has been amazed by my recoveries...but I also trust in modern medicine when I believe it to be the best option for me. I realize you have everyones best interest at heart...but the treatments you talk of are not a cure...and we need hope...and there is information out here that has come from women investigating cures in other countries...with other physicians...so by sharing we just may stumble upon something miraculous...then we all benefit.
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    • Posted

      Hello, I was wondering if you use the Witch Hazel neet or do you dilute it (if so with what and how much) I use the coconut oil and find it really good. But I am having to use the steroid cream to control at the moment just recently diagnosed so looking for any help....thank you x
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    • Posted

      I use the witch hazel full strength in a spray bottle. After giving birth I was given pads soaked in witch hazel to apply to my stitches to hasten healing by the hospital. That is why I tried it for the LS. It will sting a little if you are having rawness or a split...but it goes away quickly and does hasten healing. The coconut oil and aloe vera gel (the aloe vera gel will stop the itch) are soothing. Be sure to use the 99% or higher aloe vera gel. I'm not cured...but my symptoms are well under control. I wash with either olive oil or coconut oil soap or a product called Cetaphil. It is important to keep really clean as bodily fluids tend to cause more irritation. If you are  having a bad flare a zinc cream/ointment may help. I've used this when I've been somewhere that I can't be tending to myself regularly and it helps keep fluids off the area while it heals. Do what works best for you and what you feel most comfortable with...and if things don't improve or get worse do see your doctor. 
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  • Posted

    If you are near the Glasgow area, there is a vulval clinic run from one of the Glasgow hospital, think it's the Southern General. Hope this helps.
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  • Posted

    Get yourself checked out properly. If it's a long wait for a GP referral then go to a sexual health clinic they will have seen this far more than a GP.
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  • Posted

    hi blondie

    it occurs to me that the two of you might be exhibiting similiar symptoms perhaps as you might possibly both have the same nutrient deficiencies?

    i gather that can be a causative factor. What do you think?

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