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Continual Diziness

Posted , 8 users are following.

mickaneye
mickaneye

Can anybody help. Do I have to live with permant dizziness I am on betahistine and cinnarizine or is it likely to ease off. I have it every day and have to use a stick when walking, its making me very depressed, and I cant do all the things that I want to do I seem to of lost all my self confidence. Thanks for any sugestions.Mick

 

0 likes, 11 replies

11 Replies

  • eleftherio33095
    eleftherio33095 mickaneye

    Posted

    Has intratympanic steriod injections been discussed with your physicians, assuming that your diagnosis is Meniere's disease?

    Eleftherios S. Papathanasiou, PhD, FEAN

    Clinical Neurophysiologist

    Fellow of the European Academy of Neurology

  • tanney
    tanney mickaneye

    Posted

    Hi Mick.  what is dose/frequency of betahistine you are taking?  what other symptoms do you have in addition to dizziness (tinnitus, ear fullness, ear pain, sound distortion, etc)?  How severe is the dizziness....is everything spinning around and you have to lie down...or is it dizziness that you can still walk with?  .

    Are you on a diuretic (water pill)....what dose....how often do you take it?

    What are your rescue meds....how often do you take them?

    Please be as specific as possible to above questions.

    thanks

    • mickaneye
      mickaneye tanney

      Posted

      Hi I now am on 16 mg three times a day which my ENT consultant says is the largest dose I can have. Am on salt and cafeine free diet .

      No diuretic pills did have cinarazine but have been told to stop it .

      I dont have any rescue meds what ever they are.

      now suffering deafness in both ears left side is the worst, very unstable when walking have to use a stick to help keep balance. Had two two terrible attacks of vertigo which came on quite quickly and I cant stand up or walk, rooms just keeps spinning round, have to lay down and sleep has been for two days then I still don't feel right kind of dizzy 

      can you help

  • NeddyO
    NeddyO mickaneye

    Posted

    As earlier replies point out we need more information.

    At this stage the most helpful thing I can say is that for betahistine to be effective the dose has to be high enough and it needs at least a month to become effective. My ENT consultant started me on 16mg three times daily, which he said was a modest dose! He was right because when I saw an Aural physiologist he tripled the dose.

    There are not many Aural physiologists seeing adults in the UK and most are based in London!

    Stugeron ( cinnarizine ) is an antihistamine that can make you very drowsy which is not helpful for balance so if you dizziness improves try to get off it. Its the betahistine that will really help if A. you have Meniere's and B you are on a high enough dose.

    Good Luck.

    • mickaneye
      mickaneye NeddyO

      Posted

      Just got round to replying to your post I am on betahistine 16 mg three times a day stopped taking cinarazine.

      What dosage are you on? hopping you can help 

    • mickaneye
      mickaneye NeddyO

      Posted

      I have this spaced out feeling every day so am a bit unsteady do you have this? My ENT consultant gave me the Cooksey Cawthorn Vestibular Exercises to do three times a day but this is not all ways easy to fit in.

      What dose of betahistine are you on.

      Thanks Mick

    • mickaneye
      mickaneye

      Posted

      I am also on 24mg betahistine three times a day
  • Bmac339
    Bmac339 mickaneye

    Posted

    I would try small dose of Valium and vestibular therapy. 
  • arax19947
    arax19947 mickaneye

    Posted

    I have had quite a few episodes of vertigo myself within the past 15 years or so. The last episode I had was in 2007. and it was triggered by alcohol. I started researching and I have been on a diet of no sugars (sweets of any kind, alcohol) and staying clear of wheat and other grains as much as I can. The only grain I eat is oats and some corn. Please research on your own because not everyone is affected the same way and not everything works the same for everyone. Good luck. I hope you find a way to control your situation
    • kd17
      kd17 arax19947

      Posted

      Hi arax, it is very reassuring to hear that you have the vertigo under control for nearly a decade through dietary modifications. I am in a similar journey (no salt, no caffeine, no alcohol, no processed foods etc.) and haven't had vertigo since April of this year. Of course I have had only 2 episodes of vertigo since my menieres began in 2016. But loss of hearing in my left ear. Would you be kind enough to share the foods including any vitamins and supplements you have been taking? That would be very helpful for folks like me. Thanks and all the best.

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