Continued discomfort after a PE

why didnt the doctors do the Vac procedure in the first place? How can doctors detach the scar tissue whilst the blood is flowing and catch the old clot?

anyakesh, you mentioned on a previous post....

'When I spoke to my doctor about it a while back he said it was not related and that some pains are unexplainable....

Everything can be explained.

It's a matter of interpreting, testing and collecting information. Maybe its better for Clot doctors to have clots in the first place, then they could explain the pains & stuff for themselves.

You know I don't fully understand this yet. This is my first consultations with this specialist.  Up to this point I have been  dealing with my primary doctor who has been insisting I should just excercize which I can not do because of my breathlessness.     I srill have to go for a chest Xray next and a Lung scan.  I can not do not do a Cat Scan (which the doctor wanted)  because I have a Kidney problem/concern.  He said if he finds a blood clot or scar tissue after he examines the chest Xray and lung scan ? he will do this Vac procedure which is ony  a one day hospital stay.  My primary doctor has been saying my breathlessness is nothing and I did go to a cardiologist who found nothing.  This doctor is a Cardiologist also but a Pulmonary Hyertnsion specialist in addition.  This is the first person that has addresseed the breathlessness as a problem

I am bervus about the Vac procedure.  They go in thru the neck and it is approx a 1 hour procedure.  Its a major hospital and they do have a team.

Below is a link to some information on the Vac procedure

Perhaps it will help you uderstand this

http://www.orlandohealth.com/news-and-events/news/vacuum-technology-removes-dangerous-blood-clots-in-the-heart

i think your primary doctor is a dangerous person.

Today, I think, the whole point of pre & post clot exercise, is to ensure your muscular skeletal system/structure is supported by the relevant small and large muscle groups branching out from the spinal column, and allowing a balance muscle group development (fast & slow twitch/elastic & rigid) to fundamentally allow deep breathing and support for your internal organs to function without restriction or constriction - ie abdomanal wall. Once good posture is attained , ie  via slow relaxed walking, then that is an achievment, even if it takes a year to do. All exercise should be sensitive to blood flow and and blood flow friction of temporary to permanent tissue, abnormal tissue/clot or plaque, fat etc...think about how water can cut through a mountain..

Any type of exercise that involves impact, racket sports, boxing, mma, self defense classes, jumping, jogging could dislodge new clots that are not dissolving, and may be temporary scars loosely attached to veins etc...are in my opinion a risk not worth taking.

Cycling is another exercise, i'm not sure of, as there is a lot of blood flow in the legs. When I walk, I am doing full bodyweight exercise, developing posture and I get to listen to music, silence or radio. I try and make an afternoon of it.

When I was bed bound, I recall gentle tensioning exercises from my extremities to my core, a frequent reminder the bits and pieces are still there.

As far as breathlessnes is nothing!, it most definately is something. Your primary doctor is unqualified to advise or comment on these matters. He or she is way out of their depth, and dangerous. Change doctor and make a formal complaint. You would be surprised how some things can trigger breathlessness and other stuff. When it happens, it is real and can be disorientating to put it mildly.

Thanks for the input

But I don't know if I really understand what you are saying

I will read it again and see how much I can aborb.

I believe my breathlessness is coming from another clot fromt he original PE embolism.

My Cardiologist who is a Pulminary Hypertension specialist beleives my lung scan will show a clot or a scar on my lung from the original PE that I had many years ago.  If that proves to be correct he is probably going to reccomend a Vac instrument going into my neck artry down into th lung to vacumn out th clot.  We will see what that Lung scan that I will get along with the chest X ray shows.

Pulminary Hypertension does not occur to often and the Cardiologist I went to a few years ago bacause of my breathlessness found nothing that alerted him to any problem

My primary doctor apparently just thought that if I was on Coumadin I could not be having a blood clot problem 

"I believe my breathlessness is coming from another clot fromt he original PE embolism."

i think levels of stress can sometimes cause your windpipe-to-lungs & internal respiratory muscles to tense up, making it hard to breathe, and may also coincide with reminders, weather, humidity, diet, hydration and inadequate rest and sleep. It's really difficult to rest when you have this condition - its full-time inside you, and at times overwhelming.

Before i had dvt/pe/vte, i occasionally had tense neck and shoulders due to work stress. Exercise and taking my mind off work etc..

I don't know this positevly but the lung scan I am taking next week might tell me more.

Sometimes, i feel like i'm losing it, but i know deep down there's nothing wrong with my head, but could a little clot brake off from another circuit and get logged in my brain?

For some reason, i can't explain, i've developed tunnel vision and I can only do one thing at a time, and even the simplest things take a lot of effort. One minute, you think you can solve the biggest problems, the next minute, you forget where you left your keys, parked the car, or even attending to your most important resposibilities.

Living with VTE isn't easy, and it affects people around you, No-one should be witness to it.

Hi, it's my local doctor's opinion that the residual pain following removal of blood clots- after 4 months on Sintron( Warferan)

is caused my scaring on the linging of the lungs. I had multible small blood clots in each lung and now I can breath easy enough but if I take a sudden deep breath or get to exvited I ferl a stabbing pain under my breast. Does anyone know if it's possible to come off Warferan in time or is it a lifetime crutch as my pulmonic doctor says here in Spain. It is hard as I've sever arteritis in all my joints and can't take the natural green vege and spicy curries that used to keep arteritic pain at bay. Any help with be greatlfully received.  

Hi, it's my local doctor's opinion that the residual pain following removal of blood clots- after 4 months on Sintron( Warferan)

is caused my scaring on the linging of the lungs. I had multible small blood clots in each lung and now I can breath easy enough but if I take a sudden deep breath or get to exvited I ferl a stabbing pain under my breast. Does anyone know if it's possible to come off Warferan in time or is it a lifetime crutch as my pulmonic doctor says here in Spain. It is hard as I've sever arteritis in all my joints and can't take the natural green vege and spicy curries that used to keep arteritic pain at bay. Any help with be greatlfully received.  

Jesus Christ i've never heard a better reply in my life...NOBODY KNOWS THE PAIN....I am definitely going to use everything you guys are saying to help my situation i just had a PE 3 weeks ago and the presumption of pain is high every time i feel something in my chest/lungs and the doctors can't give me any info