Continuing Diverticulitis/osis

Posted , 4 users are following.

For the last eight years I have been dealing with diverticulitis. I have had the thin stools, pain and infection however I never seem to have a "typical" fever, no blood in my stool, and have a "clean" colonoscopy" afterwards. Many times I have gone in complaining of the pain and they just laugh (seriously) until they do blood work, or a CT and they are like "You have diverticulitis?!" I just feel like I argue every time. I am not willing to pay $6, 000 every time if they are unwilling to do something to "fix" it. What are ways I can get them to go to the next level? It isn't like I want surgery, but feel I am just getting milked for money. Its painful, exhausting and just depressing. Any thoughts would be greatly appreciated.

0 likes, 5 replies

Report / Delete

5 Replies

  • Posted

    I wish I could say no fever or no blood I get them both 😦 . Does your blood work ever show high WBC mine does with my infections. How many times you been on antibiotics in those 8 years?

    Report / Delete Reply
  • Posted

    I have had 5 bouts and four colonoscopies. I'm sure I have had more but just power through because of my s****y insurance. They only realize it is diverticulitis if they do the imaging and blood work because my attacks aren't as "acute" as others. If the doctors go on "normal" symptoms, mine aren't like others. I really have to push it and then they are surprised I am right. HELLO!?!?! It is so frustrating. Am I the only one in limbo?

    Report / Delete Reply
  • Posted

    I didnt have typical symptoms either. My gastro doc was never sure whether i had it or not. He didn't send me for ct scans, just did blood tests. They were not always definitive, so i was definitely in limbo. Until the big one. That put me in hospital and there was no doubt what it was! My bowel had perforated but when i asked him, he said it had not and it was uncomplicated diverticulitis. It was not. I had an abscess for 5 months and no one realised. All tests normal but i felt dreadful and i knew something was very wrong. I eventually had a resection after being sent to a wonderful surgeon.

    Report / Delete Reply

Join this discussion or start a new one?

New discussion Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up