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Hi guys I have had continuous blood in my urine which is visible. I have had a range of tests from CT, MRI, cystoscopy, renal artery angio, ureterorenoscopy and also had a stent to see if that works.
The drs are at a loss I have no stones or other problems that they say it all looks ‘normal’. I’ve had protein and white cells and of course red cells in my urine for a year and also have to have antibiotics a lot of the time due to recurrent infections. The next stage is to do a super selective angiogram has anyone experienced this before ? They have also said I do have some mild inflammation in my left kidney. I would be really grateful if anyone has had this sort of thing to shine some light for me ?
Many thanks !!!
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Have they considered Thin basement membrane disease,? TBMD ?
This is usually diagnosed by kidney biopsy. Are you seeing a nephrologist??
Is your kidney function i.e EGFR normal?
The other thing to consider is prostate disease.
Hope you find a cause and it is not too serious!
Are you actually feeling unwell??
Have you considered the sexual health tests? Im sure you have but just throwing some ideas out there.
It is really frustrating when they cant find anything. I have similar prob and am being investigated ? The thin membrane disease as i have invisible blood in urine, however my kidney function is decreasing.. but I feel completely well..
Have you had the blood tests for immune problems?
Maybe the inlammed kidney is infected and the antibiotics are just not eradicating the infection completely?
If it was something like MRSA that may be very difficult to get rid of..
Again im sure this has been investigated too
Drink plenty fluids and I really hope you get some answers soon x
I'll keep looking for some possible answers if i come up with anything I'll let you know.
Sounds like everything is being looked at I really hope you find out soon its horrible to keep feeling unwell and worse not knowing the cause .
Good luck and keep us informed.
I just want to ask though, are you taking any kinds of medication? Some of the medications actually make your urine turn to red orange to red . My friend was really freaking out on her urine but she was taking rifampicin.
If not it could be in some kind of nephritis , you should see a specialist.
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