1. Community
  2. Bones, joints and muscles
  3. Polymyalgia Rheumatica and GCA

Control !

Posted , 10 users are following.

judytal
judytal

just thought of this...  With this " demon" you have no control and I'm a control freak!!  I want to control my life not see how the " beast" will affect me today , this minute , this hour, this second... Whatever...  Getting a bit crazy!!!

0 likes, 38 replies

38 Replies

Prev
  • faye______00403
    faye______00403 judytal

    Posted

    I keep telling everyone that I "want my life back"    I manage to do

    most of the things I've always done but just a lot slower.

    As for exercise:  I bought one of those elliptical portable floor

    thingys and just sit in chair and sort of pedal.  I can't walk far

    so this seems like at least one option for me.  I was getting afraid

    of losing the use of my legs from lack of moving.....

    • MrsO-UK_Surrey
      MrsO-UK_Surrey faye______00403

      Posted

      Faye, the pedalling machine whilst sitting is a great idea.  I know two people who resorted to such machines to help them when they found walking too difficult or when the weather was inclement.  Both have now recovered, by the way!
  • Mrs.Mac-Canada
    Mrs.Mac-Canada judytal

    Posted

    Hi Judy,  

    Don't you just love this sight. You can vent all you want and have so much support.

    i think all of us have been where you are at some point but it does get better with acceptance. You really have little choice so it's practice at letting it go.

    there are days when I get so angry with this damn PMR but I have a friend that is very ill and won't be getting better and thinking of her brings me back pretty quickly to thankful this is all I have.

    I hope you feel better soon.  Maybe beat your pillow up for a bit😡

    hugs, Diana🌸

    • judytal
      judytal Mrs.Mac-Canada

      Posted

      Morning Diana,

          Thanks for your thoughts.  I hear you.. I know some others who are suffering far more than I. 

        My friends don't seem to understand and just want me to get moving!!  Easy to say but doing is another thing.  I move for my dogs!!  I was just thinking how isolating you can become with this crazy "stuff".  I used to volunteer for FISH ( drive people who can't drive to their doctors appts.) but I had to give that up... I'm not dependable anymore.  I miss it.  Some really sweet people I met..

      Have a peaceful day.   judy

    • Mrs.Mac-Canada
      Mrs.Mac-Canada judytal

      Posted

      Hi Judy,

      Maybe be you could just go and visit some of those people when you're up to it. I'm sure it would make their day. I think most of us feel alone sometimes and there's nothing like someone showing they care to lift our spirits.

      hugs,

      Diana🌸

Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.