Convinced ita fibro.
Posted , 10 users are following.
hi,
iv posted onto the page in the past but my symptoms are getting more noticeable and worse.
past year or two my body seems to be giving up! sometimes i cant quite explain it. i suffer anxiety which can make my symptoms worse.
my main issue is my chest wall, shoulders, upper back and my inner elbows. my bones in my upper body feel like their giving up or like they need oiling lol! i get alot of shooting pain in my chest which has me worrying. ill give a run down of some of my symptoms;
- chest tenderness/pain breathing in deeply is sore for my full chest and back.
- shoulder pain (sometimes both shoulders) cant always lift them fully, doing simple tasks makes my upper arms feel weak and ache.
- tingling in hands, sometimes aching.
- inner elbows feel sore and ache.
- knees ache and also stiff if ive been sat for a little while.
- upper back pain..shooting pain as well as dull ache.
- if someone pokes certain parts of my body it hurts more then it should and pain lasts about a minute or so.
- i have tmj so aching jaw and pain near my glands
- neck pain, stiffness.
- general ache all over body sometimes
- IBS
- constipation occasionally
- random sore patch on my inner thigh (GP doesnt know what it is)
- brain fog
- tiredness
- never have a full nights sleep
- sore ribs.
there is other things find hard to explain. nervous to see GP incase its passed off as nothing.
anyone else experience same?
1 like, 18 replies
norma_86486 Katie111888
Posted
i feel the exact same but i have a terrible itch in my back its very annoying so trying all sorts to sooth it im now using simple soap moisturiser handwash and shower gel to see if it helps but the pain never eases you justget to live with it ,keep smiling x
sukes Katie111888
Posted
As well as my arthritis and angina, you could be describing me to a tee 😔 but unfortunately there is not a lot we can do about it. The Rheumatologist has tried me on all kinds of meds, but nothing helps. Keep your chin up x
josephine33162 sukes
Posted
Hi, I feel awful saying this but I am like you as well and I have arthritis and angina. People say how well I look and they don't understand when I say, 'I wish I felt like I look. Just keep plodding on I say.
diane47116 Katie111888
Posted
have your doctor test you for lupus. I dealt with "fibro" until it got to the point where I could barely walk without holding on to something. doctor did blood work and tested positive for lupus. the onset symptoms are very similar. I hope this helps without alarming you.
Katie111888 diane47116
Posted
what are your symptoms of lupus?
linda82701_USA diane47116
Posted
Hello, Diane,
what are the symptoms you have with lupus? AND WHAT ARE THE TESTS they did to confirm it? I have been diagnosed with fibromyalgia, PMR, and arthritis. took forever to get diagnosed. thank you for any information you can give me. ☀ Linda
diane47116 linda82701_USA
Posted
the symptoms are very similar to fibro. but EXTREME fatigue, severe depression, trouble concentrating. lupus shows up in a blood test. it's an autoimmune disease, for which there is no cure. sometimes when I have a flare up, I will be out of commission for months. but a simple blood test will verify if you have lupus.
diane47116 Katie111888
Posted
very similar to fibro, but more severe. the fatigue is debilitating. and severe depression.
linda82701_USA diane47116
Posted
Diane, thank you for your reply. PMR is an autoimmune disease also which I have. Have always felt I could have lupus. Will request a blood test from my doctor. THANK YOU SO MUCH, Linda
Sorrentogirl Katie111888
Posted
Sorry you're going through all this pain. I have fibro and had this pain for the past 6 years, taking co codamol frequently . I recently realized that certain foods seemed to cause flare ups and think rice was one of them. I now never eat rice and i don't know if it is a coincidence but the pain has subsided greatly and I have not had a pain killer in 2 weeks. Don't get me wrong, I still have a lot of background pain and fatigue but thought i would mention
Katie111888 Sorrentogirl
Posted
whats your back pain like? do you get chest pain also?
josephine33162 Sorrentogirl
Posted
Hi and thank you for that tip. Worth knowing but I hardly ever eat rice. My partner won't eat it in a meal so I don't do it just for me. It maybe helpful for someone to know. So glad it has helped you. Hope you continue to feel a lot better.
Josephine.
melanie03010 Katie111888
Posted
@Hi Kayleigh,
I was also diagnosed with fibromyalgia back in 2009. I have had many more Progressive it should have happened since then. 4 years ago I started having extreme neck pain on my left side, 3 years ago I've got a partial torn meniscus and both knees and continuous neck pain and swelling. Then I ask my doctor to see a rheumatologist because I had an A.N.A tests done which came back positive for lupus, my rheumatologist tied unless my kidneys were failing and I had bald spots on my head etcetera Etc there's no way I could have Lupus and I just had fibromyalgia. Tell me to lose weight start walking and I would feel all better. So I talk to my primary doctor went on a diet medication, lost 60 lb walk 20 minutes a day 25 minutes a day as much as I could do. Paid for it, my body would hurt so bad when I was done. But I hope my mind greatly. Then a year ago my back went out, I have extreme lower back pain I have had the test done, show severe narrowing of my spine. 2 months later after that I had a partial tear in my Achilles, and brevis on my left foot. PT for both things, back and foot. Neither have resolved themselves, my foot just happened getting out of my car didn't twist it.
I am on an array of medicines that are supposed to help with the pain , I feel like my body is completely failing me. And the past 8 months I have gained all the weight back . I can't move for exercise , my foot is now chronic tendonitis too.
I have a malar rash on my face and my chest , and toenails on my feet the get thick and yellow and fall off, have had two tests done on them that both came back non fungal. So I went to a rheumatologist again, thinking perhaps I have psoriatic arthritis. Was told I heard that since my body is not covered with psoriasis that could not be possible. So now I'm waiting on having two more tests done on my feet to see if there fungal, that would be for a total. Not cheap. I'm very frustrated, sorry for such a long reply but I completely understand how you feel. I to get sores on my inner thighs, I use the stuff called Calmoseptine. It works great if you want something to help with the pain and to help them heal. Cuz they hurt like hell. So now I'm waiting again well more body parts Fall Apart. In the morning I wake up crawl down the stairs take my medication sit on my couch for about 90 minutes before I'm even able to get ready for work.
One more thing and I promise I'm done, I also did not sleep. I recorded my sleep cuz I don't think they believe the things I did in my sleep. I bet you only stretch my arms on my legs, and get spasms in my legs sometimes up to 4 to 10 times a night.
Had a sleep study done, they put me on ropinirole which I had a severe reaction to. Now I take clonazepam at night, along with muscle relaxer and Gabapentin. I only have a muscle spasm three to four times a month, still move continuously through the night I record it so I can see it. But I sleep through it mostly. So I'm now realistically getting maybe seven to eight hours of sleep at night, even though I'm still doing the same thing I did before. But I feel like I haven't woken up. So I want you to know you're not alone, and I wish doctors would take things seriously. Because those of us who go through these different things, don't understand the anxiety and the depression a come along with it. Is in our heads we wonder if this is what we have to look forward to the rest of our lives. I used to be one who always thought things would get better, and I still preach that to other people but I sometimes wonder if that's true. I wish you the best, and hopefully you have some good doctors behind you. I feel I really don't, but I'm stuck with what I have for now.
melanie03010
Posted
I am so sorry I read through my post
Katie111888 melanie03010
Posted
wow! im so sorry to hear of all the things you've gone through. i can imagine the anxiety you must feel!
ive always had some of my symptoms from quite a young age, ive had anxiety since i was 7 so my body has been through alot of stress so i often wonder is this just the cause!? but my body has changed the past year, i thought at first is it just cos ive turned 30!! but i can feel my upper torso getting weaker and weaker. left side of my neck is often painful...the glands under my jaw get really sore. i have tmj, which doesnt help. my chest really is the worse tho...its not just pain its the soreness of my actual bones that i cant stand. my arms have become so so weak too! ive always been a pretty fit person and ive always walked alot or gone to the gym but just walking for like 30 mins is painful and makes me ache from head to toe! my ankles randomly get sore even my wrists!! my knee has been aching alot today. i get restless legs alot...affects my sleep. i get sore throats more now too as well has a constant stuffed nose. the sore spot in my inner thigh isnt a dry patch or out i meant its just sore to touch, as in the muscle? just one spot. i cant have anyone prod my upper back as it hurts and my chest is a no go!! touching my inner elbows hurts too..sometimes the glands swell! i do have sore skin patches however! i have dirmititis (not spelt right) on my hands and also had/have eczema on my head that flares up. this has all become worse past year. even breathing can hurt my back and chest breathing in especially!! im scared my doctor will pass it all off as anxiety! i know it isnt that.
melanie03010 Katie111888
Posted
I also have very painful ribs I don't know if it's the muscles that or over them or the actual rib cage itself. I'm thinking it's the muscles that are attached. I had an appointment with the rheumatologist this past week for a second opinion, I was point blank asked why I was there. Since I had already gone to 1 before 2 years ago almost. She was adamant about there is no way I could have psoriatic arthritis if I did not have psoriasis all over my body. I do believe that's what's on my toes nails.
It's difficult can you get to a point where you have a lot of anxiety, and then they think that you're just anxiety-ridden and that's what's causing your issues. I'm to the point where I have to hold onto stuff also when I walk. Not all the time mostly when I get up in the morning for about an hour or two and after I've been sitting for awhile. I've been dealing with this for so long that I sometimes feel like I'm to the point where I don't want to deal with it anymore. Just let it go, cuz I sure don't get answers from the doctors I see. I don't mean like hurt myself or anything that doesn't cross my mind, but I sure do hope I don't live to be a ripe old age of 90 or something. LOL
I just wish you could see a doctor and I'm sure you feel the same way where you could get support and get an answer. Or even be a guinea pig and try something different so you can see if it would work. This past appointment this week I asked for a dose of prednisone because it can take down the inflammation in my body so I can actually walk. She looked at me and said no and I quote I can't give you those that would make you feel better. So in the future I have decided that she will not be on rheumatologist that I will go see again. Sorry to vent, I'm just so frustrated over that appointment.
Katie111888 melanie03010
Posted
ah its okay...good to vent!
ive always suffered anxiety but only got diagnosed recently due to me clenching my teeth which led to TMJ diagnoses and also anxiety. i just know theyll go down the root of anxiety for me but ive had these pains so long now. even hurts to breath! its not unbearable but everytime i breath in my back and chest is so sore! if i put together all the aches and pains, fibromyalgia is what it links with. my cousin has it so its kind of in the family i guess. but everyday now i have pain, cant be normal for a 30 year old surly!? no obvious cause for the pains. sometimes i get electric shock feeling inside my body...like my back and ribs! its so hard to explain.
melanie03010 Katie111888
Posted
I have TMJ horribly, I tried lyrica for pain and my TMJ. It helped somewhat, but the cost was too much for my budget. Then I got these cortisone injections on the side of my neck for neck pain, my jaw pain went away for a year. Amazing!
I just started another dose of prednisone from my provider not my RA doc, and my pain and stiffness has gone down around a third. I know once I'm done, it will come back, but I'll take what I can.
Depending on your coverage Lyrica helped with fibromyalgia, gabapentin another one I take supposedly for help with spasms. I personally don't recommend for fibromyalgia, the lyrica helped much more.