Posted , 6 users are following.
I hope you don't mind me posting here but I am absolutely at my wits end!
My daughter is nearly 17 and has suffered tremendously with mouth ulcers, awful stomach cramps and frequent bouts of diarrhoea since she was 11 years old. I took her to a GP, who dismissed it as "one of those things" and refused to do tests. I persisted and returned 8 weeks later as she had been on the floor screaming from the pain. He did blood tests and found low levels of inflammation and very low B12 (I believe it was 95ng/l) but said it was nothing to be too concerned over, so she was prescribed with B12 supplements in 2012 after he had established she did not have pernicious anaemia.
I assumed this would resolve the symptoms, but they persisted and actually got worse. The mouth ulcers were unrelenting and the stomach cramps would come once every few weeks and reduce her to fits of tears. I hated to see her like it. 2014 showed a B12 level of 61ng/l, despite taking supplements everyday for 2 years. Again, the GP dismissed it as nothing to worry about.
Perhaps what's most concerning more recently is the bouts are getting very severe. Today she called me from school in tears from the pain. She was extremely embarrassed as she was in class when severe cramps started and is quiet anyway so wouldn't want to cause a fuss. She got a bus back home and felt an immediate urge to use the toilet, and was in excruciating pain because of it. She's shedding weight without trying, and her appetite (especially over the last 5 days) is next to nothing. I'm getting her to drink plenty of water but she is really struggling and is tired all the time, with a low grade fever of about 38.4C.
I called the GP when symptoms started a few days ago - a different one this time. He didn't want to book a consultation and just ordered repeat B12 tests, which are tomorrow.
Meanwhile, I am convinced there is something more sinister happening. I feel like we aren't being taken seriously, perhaps due to her age.
I would appreciate any advice, are these symptoms typical of IBD?
I've persisted for a referral but GP's haven't done any further tests.
She's feeling so awful and I wish I could help in treating this for her.
0 likes, 9 replies