Copd

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Hi got told about 7 years ago had mild emphysema then about 4 years ago had a mir scan on legs got told i had peripheral disease in my left leg was told i would need a bypass on it but i had a high risk of losing it.so i have left it not been smoking now for a while.my leg gets really painful especially going up hills but i make a point of tackling them coz av always been active anyway my point is i am able 2 do 2 hours cardio in gym plus walk about 7 to 10 miles most nights and i no i have the diseases coz been tested was wondering if am alone doing all this because i sometimes wonder about the emphysema in being able 2 do all this i do the gym 4 or 5 days aweek am just wondering because it makes me think at times. Am i alone

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  • Posted

    I don't have a leg disease but did get hit by a car and was told I wouldn't walk again and might have to amputate my leg, but I got it pinned together and have struggled with it for 15 years and can do everything normally like gym and work and think it's better than not doing so much. The copd gets me down though but I'm sure I've been misdiagnosed so waiting for a referral 

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    • Posted

      Aye sorry 2 hear about ur leg.mine was self inflicted with smoking sometimes i think i have been misdiagnosed but had all the tests plus been in hospital a couple of times through it and get lots of infections hopefully it might settle down now on ecigs my tests have been good 98 since i stopped. Dont let it get u downthrough my leg am a high risk 4 heart attact and stroke but am no lying down to it plus got other things wrong with me to.so chin up aaron
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  • Posted

    Hi with mild emphysema you will have few if any symptoms.  It sounds like you are very fit anyway which is good. 

    Don't you get an annual review with a respiratory nurse?  Do you have a spirometry test?  Have you had one since your diagnosis?   This would say whether you have emphysema or not. 

     

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    • Posted

      Yes get 1 every year had 2 go ro breathing classes 2 but inly went to.1.got tested first in doctors and said was on borderline with asthma.but was still struggling with breathlessness so got sent to hospital for tests and was diagnosed with it plus my xrays on my lung had holes in it to i get alot of infections in my chest and a couple of Times av been admitted 2 hospital with infections in bottom of lung.is just how am able to do a lot of training and walking .i have mild emphysema so was just wondering if any1 has the same as me can do something similar.my aunt was on oxygen with it but died through it .thanks

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  • Posted

    Hi Druwho

    I think your copd is very mild if you can do 7-10 miles most night and 2 hours cardio in the gym, is that most days too?  Its great the leg is not affecting how much you can do.

    you say you had breathlessness when diagnosed are you prescribed any lung inhalers?  I would be getting checks for heart as well if you are still experiencing the breathlessness and if you do get pains in the chest.

    Its good you are able to do so much keep it up as long as you can.  I know some people with Copd can walk miles.  I used to be able to manage a couple of miles and I used to attend the gym 3 times a week but my gym sessions were only 30-45 mins.  I found even then my lungs would hurt if I pushed too hard.  

    Currently not able to do the gym just manage short walks I don't know if I will improve again or this is how its going to be now.

    The main thing is to try and avoid further lung infection as best you can, cold damp weather may put you more at risk as will contact with people infected with colds and flu.

    Keep well and active but look after yourself with that leg, what does your doc say about exercise and the leg problem?  You don't want to overstrain.

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    • Posted

      Hi thanks vee2 thats my treatment for my leg not so much gym but plenty of walking it gets verypainful especially hills but the more i do the farther i can walk i would need a bypass on leg as blockage is to long for a stent plus high risk of losing it during operating so not risking it. As 4 my lungs am on 3 inhalers ventolin.relvar.incruse. when i come back from gym i need a sleep for 5 or 10 mins then am good to go again. Get back to gym u will b able 2 build it up slowly i did.30 mins was tired then got 2 2 half hours then leg went but am building up again feel healthy.u can 2 stick in and good luck.thanks 4 feedback.
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    • Posted

      Hi Druwho, thanks.

      I've never been able to achieve 2 hours exercise at once, since being diagnosed, if I try and push too hard I get lung pain and dizzy and I was exercising regularly for over 12 years 3-5 times a week.  I can't do that now. I was knocked right back this past winter and have still not recovered fully, I think because I have further lung damage now. 

      I came across an interesting article (below is excerpt from ncbi gov site title 'Effectiveness of Interval exercise training for people with copd'  if you want to search for it)

      "Although in healthy elderly individuals and patients with chronic heart failure there is evidence that this training modality is superior to continuous exercise in terms of physiological training effects, in patients with COPD, there is not such evidence. Nevertheless, in patients with COPD application of interval training has been shown to be equally effective to continuous exercise as it induces equivalent physiological training effects but with less symptoms of dyspnea and leg discomfort during training. "

      You know your own limitations of course but do be guided by what your own doctors recommend.  Excessive exercise with a serious chronic health issues can be as detrimental as not enough I believe.

      Best wishes V

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    • Posted

      Thanks vee2 am just back at gym went 4 3 weeeks got chest infection off for 3 weeks now av been going 5 weeks now my fitness levels r really good but when i come back from gym need asleep only 5 or 10 minutes then am a lot better get my dinner then long walk the more i do the better am feeling.so i hope i get a good run at it 2 get my beer belly off lost over a stone so far13 stone 8 so trying to lose another stone and al b happy .good luck vee 2
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  • Posted

    If you got told you have emphysema 7 years ago that's when you should of stopped smoking. And i was told vaping is worse.

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    • Posted

      I know lung specialists that encourage vaping instead of smoking even at stop smoking groups they talk about the benifits and peoples spirometry speak for themselves 
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    • Posted

      Ok not sure where your from but they don't here, and vaping as only been out a short time so how can anyone know it's better ? it's BS

      They use to say smoking was good for us.

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    • Posted

      Yeah I know what you mean I use to think like that aswell but I know 100% smoking is bad and 80% of me thinks vaping is safe so I'd much rather quit smoking using vape and then quit vape just makes it all so much easier 

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    • Posted

      Well i went 2 the doc when they told me i may lose my leg and asked her smoking or vaping she told me vaping is better than smoking coz no tar in vaping and its the build up of tar thats blocking my ateries also was off fags a year and on ecigs my breathing was great and my spirometer test were the best ever went back 2 fags breathing was crap again so back on e cigs and can do a lot more without getting breathless so 4 me they have saved my leg got my mum on them to and her breathing is good 2 so defo e cigs 4 me no tar in them and no 200 chemicals including arsenic
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    • Posted

      Because i have an addiction to nicotine which is hard 2 break i have pts and am not putting myself through unnecessary pain when i can smoke safely
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    • Posted

      Well so did i smoked for 43 years and stopped once they told me about my lungs. How can smoking be safe ?
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    • Posted

      Am not smoking am vaping its a vapour going in my lungs not smoke or harmful chemicals
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    • Posted

      Still chemicals in vape, any way it's your life we all have to make our own choice so not sure why i am going on about it really sorry.

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    • Posted

      Hey its ok ur opinion av tried all sorts to stop and i cant so this is easier way even chemicals in patches but this is the new thing to try to help u to stop i wont stop coz its not affecting my breathing 90 mins at gym today done 8 miles in gym and walked 8 after my dinner doing it now while i can i keep pushing myself john
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    • Posted

      I would love to smoke and only that stopped me is thinking about doing more damage to my lungs.
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