copd developed because of childhood

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i have never smoked but grew up in a household where most did. There were also coal fires. I am 61 and my copd was discovered about 15 years ago. I dont get offered yearly check ups on this condition and i was wondering if they should be offered.

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  • Posted

    Goodness Blondie!  If you have had COPD for 15 years, are you on any medication or oxygen?  Have you had CT scan or other tests to verify COPD?  Were you diagnosed by a General Practioner or a Pulmonary Specialist?  I think you should definitely have follow-up.  Do you live in the US or UK?  Bless you.........this is the first that I have heard of the COPD diagnosis with no follow-up.  When I was first diagnosed, I was rescheduled for a follow-up in 3 months, then at 6 months, then since I was doing well, my next appointment is scheduled for 1 year (unless I have a flare-up or other problems).  Again, bless you...it sounds like you are very much unaware of your condition.

     

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    • Posted

      Hello sandy thank you so much for your advice, I live in the UK. The only medication I have is salamol and symbicort inhalers. The other medication i take is for diabetes. I will have to ask the GP for another check up. I can remember breathing into some sort of a tube a good few years ago in the doctors surgery. Many thanks.

       

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  • Posted

    Yes yes yes yes ,also ask to see the COPD SPECIALIST REHABILITATION TEAM , they've saved my life on many occasion ,

    have the flue jab,and the pneumonia jab, 

    exersiise as much as you can, every day ,sitting doing nothing is the Wrong thing to do ,,I used to sit doing as little as possible,as I got out of breath ,but after seeing the copd team,at the health centre, and doing the 8 week rehabilitation excersize programme ,I now go to the gym 2 times a week ,doing 2 mile on treadmill ,3 miles on bike ,1000 meters on the rower ,without the help of the copd team ( they are specialist nurses & physio 's. In this field of health care ) GOD KNOWS WITHOUT THEM I WOULDNT BE HERE NOW, I started their very  first programme in June 2008 ,I'm 69 now, and I will be back at the gym next week again,

    I was a smoker ,my husband was a miner so we had coal fires ,sadly this has affected my daughter who has been told she has early Bronchietis ,shes45. She has check ups not every year ( but she should ) she's busy at work ,I do nag her and I think she realises the importance of them now, ,,,,finaly. I  just  pray to god every night that she gets help now,so she dosent have to go through what I went through ,,book your appointment for check ups and ask to be referred to the rehab team, good look ,happy and healthier new year, 

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  • Posted

    Yes, Blondie, I fully agree with Nanny!!!  I am just shocked that you haven't had follow-up.  You MUST get advice on your condition as soon as possible!  Hugs and good luck!  Let us know what you find out, PLEASE!
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  • Posted

    Tell, yes tell, your doctor to get off his backside and help you.  my husband started having breathing problems 13 years ago  and for 3 years he kept telling his gp he was having trouble breathing.  He was told to walk more and lose weight which he did but nothing changed, the doctor told him it was all in his mind and  said he was referring him to mental health as he said he was worrying too much.  We told him we were going private and if anything serious was found we would sue him, he referred him the same day as an urgent case on the NHS.  He was diagnosed with COPD, and then got the appropriate help. Three years was wasted where he could have been having treatment.  Sort your doctors out

    they work fo you

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  • Posted

    15 years is a long time in medical terms... Drugs and etc have changed... COPD is a broad term which describes a difficulty in breathing caused by certain factors, other that Cancer or heart problems... Your lungs have less efficiency than they had before perhaps

    The suggestion that you go back to the Doc is good... there have been many changes in recent times in both drugs and 'specific' diagnosis and they may be more relavant to your condition now...  you deserve your Docs help as has been said... work with the dr but remember that there is no easy way out for you, so why should the Doc feel comfortable...  excercise for COPD is an essential ... do what you can and work to be better next week/month but slowly... dont ever over-do it without medical supervision... you can find a better level of existence if you apply yourself... both to finding treatment and to your own health regime...  

     

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  • Posted

    Hi Blondie,

    Bless your heart! Your other replies here give wonderful advice. It is difficult for some to be your own advocate because sometimes it means being almost bossy and if you are like me, I prefer to remain polite and agreeable. However I have learned that there is a way to be demanding and polite at the same time.

    I hope the best for you!

    Dawn

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  • Posted

    Hi Blondie7777,

    My Husband Has COPD and he Refuses to Give Up Smoking Eventhough i have Asthma too and Other Health Probs he went to hosp Yesterday hes to have A Ct Scan and Pulmonary lung function Tests.

    I Just dont know how he can Justify Smoking in My Eyes cannot Think Enough of His Family and Friends to Carry On Smoking.

    I am doing Something about my Weight n Diabetes so he Should Consider Other People Especially His Family.

    Dolphin500.

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