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Not diagnosed but being pointed towards cfs possibility, had anaemia sorted and very low vit d sorted. Currently off work waiting more appointments, as i can no lnger cope with my work load. As not diagnosed not sure what to do, so extremely fatigued, tend to do what i can whe i can, but people just don't seem to understand, joint pain and muscles paracetmol and ibruprofen don't really do anything. Fibro myralgia seems to have been ruled out. Any advice as just don't feel coping very well. Thankyou for reading this.... Here's hoping for some replies.
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My worst pain is usually pelvic area, and general, but last two days lve really bad shoulder into uppper arm wrist pain, came as a suprise just how acute the pain is. l dont like using pain killers, as lve gastritus and often react badly to them, but do use ibuproften pain gel and heat patches, which l find do help a bit, dulls it at least, worth a try, some use tens machines, some sad lamps to help with some aspects of it and feeling down. l think considering the level of debility and disabling at times for many, the response from some medics, who are quite casual about it, with little advice verbally or in literature is poor. Even when l was diagnosed with intersticial cystitus l was given literature on condiion with advice and support group contacts. For those not on the net l guess they get no advice or support. l hope you get to see specialist soon and support with it. best wishes
I gave up hoping that I would get some help via either the NHS or the people I saw privately. Sorry to say I fixed myself.
How long have you felt like this and how long have the anemia and vitamin d issues been resolved? also, are you In UK? Each country seems to have a different slant on things is why I ask.
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