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I've suffered RLS for 30 years and it appears to be deteriorating. I'm 66. I've been assessed by a Consultant Neurologist who has confirmed RLS and nothing more sinister. I take pramapexole x4 each day. Nothing else seems to help. I'm now suffering quite severe sleep deprivation. I've had to alter my life style and mental attitude to cope. Driving is impossible. In fact really quite dangerous. Unable to control the car with my legs shaking and sleep deprivation causing me to fall asleep at the wheel. I might be able to drive in the morning but not afternoon. No point trying to sleep much before 2am. If I manage 3-4 hours sleep, I'm lucky. RLS apparently has a cyclical component. It's worse between late afternoon and the early hours. I guess that's why I feel relief after 2 or 3 in the morning. So. I've had to adopt a coping stratagem. Curtail my driving and use public transport. Keep myself occupied till around 2am. Watch the TV standing up. Using my computer standing up. Pushing myself when tired. Sometimes a power nap, if my RLS allows, during the day helps. If only 5mins. Altering my medication regime to find which is best ie 2 at 4pm and 2 at 9pm and variations. I'm going to have to learn to live like this. There's no cure. Adopting a positive attitude and learning to accept my plight is also helping. Frustration and anger just worsens the situation. So this is my lot till the day I die. I've written this in the hope that I manage to help others. Tom.
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