Coping with sudden hearing loss and very loud tinnitus
Posted , 21 users are following.
Hi I'm new to this and hoping someone can help.
I've been diagnosed just this week with SSHL, severe hearing loss on right ear around 90db mark. On massive dose of steroids to see if some of hearing will come back but unlikely.
I know I'll cope with the hearing loss in time, it's the tinnitus that is killing me. It's insanely loud, like a crazy washing machine/hairdryer on max/ radio not tuned in but turned up to max volume. I can hear it over everything - even trains, car noise, if I turn the TV or radio on, it competes with the noise rather than take my attention of it. Everything I've read tells you to distract yourself but it's just too loud!!
Can anyone give me any advice?? I know it's a long haul but just need some pointers re coping mechanisms and hope that something this severe can get better.
I'm 39 and no stranger to health problems (have had 4 hip replacements with last 6
Months ago) so I know how to battle issues but am really struggling to stay positive on this one as there's just no respite. Snoozing and reading are my go-to relaxation tips but it's impossible to do either.
Thanks for any help, much appreciated.
Debbie
1 like, 42 replies
ile_69334 Ollieboo
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dragontest Ollieboo
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Hi Ollieboo
I suffer with moderate to severe hearing loss around the 70db level with annoying tinnitus, I did ask the audio department at my local hospital about the white noise sounds, and they explained it’s basically the brain filling in the missing frequencies that you can no longer hear, which made sense to me. They also said the hearing aids they were fitting would help which to be true they have during the day when I wear them.
I did read somewhere if you think about the noise you "tune in" to it and it’s very hard to make it go away, so I no longer listen for it and its gone better as daft as it sounds...
The audiology nurse told me hypnotherapy can help tinnitus, if you can’t tune out of the noise, but since mines faded to nearly no noise for 80% of the time I haven’t perused this route but I’m sure she was right.
The NHS hearing aids by the way are totally fantastic, and I love hearing again. They are slim and light and you can’t notice them when I’m wearing them they are that good.
Razouski dragontest
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This response to Ollieboo is really reassuring as I have similar problems to Ollieboo. My hearing loss was -90dB but I think may have settled to between 70 and 80. I have been "measured up" for a NHS hearing aid, so I'm hopeful it will give me the same benefits that yours has given.
Thanks,
dragontest Razouski
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Hi Razouski
I thought the NHS ones would be at best outdated devices that are not a patch on the latest high street devices but I was wrong. I do not think spending £2000/£3000 in a high street outlet would give me any better hearing but it would empty the wallet.
The NHS type I have are very light and I forget that I am wearing them, they fit behind my ears and a thin pipe goes to an inner ear dome that is in the “ear hole” so it’s very invisible. The batteries last about 10 days, to 2 weeks and are provided by the NHS free of charge, where the cost for the hearing aid batteries for the ones bought on the high street are not supplied “free” and will cost the owner. Something that is worth considering.
Razouski Ollieboo
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moy1234 Ollieboo
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I've been to ENT and await results of MRI.
Meanwhile, I've been wondering if a hearing aid would help or not. The specialist said 'not' as I have good hearing in my left ear and very poor hearing in my right (tinnitus affected) ear, although he is willing to refer me for one if I want. He said that as my left ear is good, my brain would be confused if an aid is introduced to my right ear.
After reading your posts on here about NHS aids, I have decided to ask to try one, if the MRI doesn't show anything that can be treated.
THank you to all who have posted - I have found reading this a great help.
Razouski moy1234
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I've now been referred to Addenbrooks (research hospital in Cambridgeshire) where I'm hoping their specialist may be able to offer some sort of solution.
good luck with yours, and do let us know how you get on.
moy1234 Ollieboo
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The results of my MRI are in and I have an appointment with ENT at the end of May. My GP is reluctant to discuss the results ahead of this, although he has read them to me over the phone. He said that there is something shown on them to do with the pituitary gland but he doubts that there is any connection that ENT will be concerned about. The ENT specialist's secretary assures me that I would have been given an urgent appointment if there was anything to worry about, rather than the routine one that I have now.
So, when I get to see the ENT man again, I will ask for a full explanation of the MRI and discuss the hearing aid thing again. He has told me that, if I want, I can try one to see how I get on.
Unfortunately, I think the hearing in my one ear is in a rapid decline. I would say it has got even worse since it was tested in February, so if that's the case, aids my not help.
I'll let you know how I get on.
dragontest Ollieboo
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How is the hearing loss 5 months on has the tinnitus reduced any?
Without my hearing aids on it’s a quiet world for sure, with them on it’s a loud place at times. I do wear the hearing aids (both ears) every day and enjoy hearing the birds etc in the mornings. At work, I find the telephones to be an issue due to feedback whistles from the hearing aids and my tinnitus is much less these days, in fact I do not notice it 70% of the time which is what the audiology department at the local hospital told me 6 months ago.
Hope things are better for you also.
Sky_writer Ollieboo
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I'm glad I found this discussion as I was beginning to think no one really understood what I was experiencing. I am relieved to find I am not alone. I suffered sshl last November. I awoke one morning to the sound of a car horn....but it was inside my head. When it subsided to a jet engine noise after a couple of hours, I realised I was completely deaf in my right ear (95db loss across all frequencies). Subsequent MRI was normal, steroid tablets, intratympanic injections all to no avail. Now 6 months later it's just the same. My voice, outdoor sounds, any stress, in fact any noise at all exacerbates the tinnitus greatly to the point where it drowns out the ambient sounds. I am a commercial pilot, but it seems unlikely that I'll be able to return to work since this happened. My ENT specialist would like to try a super powered hearing aid, so I'd be interested to know if anyone knows of any success with this. Life is a battle, but we must fight on. I am an optimist, it came suddenly, it may go just the same. Fingers crossed. Good luck to you all.
Struggling50 Sky_writer
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I have acupuncture once a week. I have found that it does help. If I skip a week or two the noise in my ear becomes louder.
So annoying!
Rwmissouri Ollieboo
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mainak46439 Rwmissouri
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nixman Ollieboo
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I am 27 and last week got sudden hraing loss from my left ear. Severe tinnitus is annoying me besides hearing loss almost completely. My doctor prescribed me a prednisole but has not recovered my hearing yet.
clare0866 nixman
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rittski clare0866
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I am 31 and the same thing happened to me except it was my right ear and I was just relaxing on my lawn when I lost my hearing suddenly. Tinnitus accompanied and it’s been 8 days now with an antibiotic and a steroid having no effect. Waiting on results of brain MRI. What has happened since your post here??
clare0866 rittski
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Hi rittski, sorry to read this has happened to you. My scans both came back fine and I have regained some hearing at low level frequencies. My hearing loss has been classed as severe. its been 9 months now and I've adapted quite well. A hearing aid didn't help so I'm being assessed for a cochlea implant in 2 weeks time. I recommend seeing audiology asap as I had to wait quite a long time which was quite stressful.
Ive found that mindfulness and meditation have helped me enormously. X
mainak46439 clare0866
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rittski clare0866
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mainak46439 rittski
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