Coping with sudden hearing loss and very loud tinnitus

Posted , 21 users are following.

Hi I'm new to this and hoping someone can help. 

I've been diagnosed just this week with SSHL, severe hearing loss on right ear around 90db mark. On massive dose of steroids to see if some of hearing will come back but unlikely.

I know I'll cope with the hearing loss in time, it's the tinnitus that is killing me. It's insanely loud, like a crazy washing machine/hairdryer on max/ radio not tuned in but turned up to max volume. I can hear it over everything - even trains, car noise, if I turn the TV or radio on, it competes with the noise rather than take my attention of it. Everything I've read tells you to distract yourself but it's just too loud!! 

Can anyone give me any advice?? I know it's a long haul but just need some pointers re coping mechanisms and hope that something this severe can get better. 

I'm 39 and no stranger to health problems (have had 4 hip replacements with last 6

Months ago) so I know how to battle issues but am really struggling to stay positive on this one as there's just no respite. Snoozing and reading are my go-to relaxation tips but it's impossible to do either.

Thanks for any help, much appreciated.

Debbie

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  • Posted

    HI Debbie,

    I feel in a very similar situation to what you were in having experienced acute vertigo, nausea and SSHL in my right ear to the over -90dB mark, had masisve steroides including injections through my eardrum and into my inner ear as well as intravenous to try and save the hearing - to no avail. My tinnitus is so distracting from the hearingin my good ear, and is pretty much as you describe. It also gets worse when I'm talking, and especially so when I sing (I do a lot of singing semi-pro , or should I say I did a lot of singing). I wondered how you'd got on, and which suggestions have worked for you.

    Thanks,

    Gill

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  • Posted

    Hi and sorry to hear that you have tinnitus...Perhaps you can try what has worked wonders for me and see if it works for you as well...I discovered the by doing an inverted position...head lover than the rest of my body...and holding it for a minute or so...tinnitus quiets down. The noice stops. This is what I do...by laying over the arm rest of my sofa, and carfully bringing my head down to the floor...Allow my ear to feel the pressure for a moment...(minute) when I come back the tinnitus is more or less gone. And allows me several hours of quiet relief...hope it works for you
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  • Posted

    I'm so sorry to hear about your struggles with tinnitus...hope it is gone by now or that it has lowered the volume so you can rest. In my case I got it out of the blue...so the doctor had no clue either..so I got no words of confort from him but youll get used to it. My ear felt so bad that while sitting at home I felt the urge to turn upside down and to my surprise after the inverted position tinnitus subsided, quiet down. It is not permanent, but it brings me relief....maybe you can try it...I lay from the waist down on my bed and bring my head to the floor and hold it there for a minute or so. My husband says it brings blood and oxigen to my bad ear...I dont know if it so but...once I come back...tinnitus quiets down and it last several beautiful hours....maybe you can try it and see how it goes...hope it works
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  • Posted

    Hi Ollieboo

    I suffer with moderate to severe hearing loss around the 70db level with annoying tinnitus, I did ask the audio department at my local hospital about the white noise sounds, and they explained it’s basically the brain filling in the missing frequencies that you can no longer hear, which made sense to me. They also said the hearing aids they were fitting would help which to be true they have during the day when I wear them.

    I did read somewhere if you think about the noise you "tune in" to it and it’s very hard to make it go away, so I no longer listen for it and its gone better as daft as it sounds...

    The audiology nurse told me hypnotherapy can help tinnitus, if you can’t tune out of the noise, but since mines faded to nearly no noise for 80% of the time I haven’t perused this route but I’m sure she was right.

    The NHS hearing aids by the way are totally fantastic, and I love hearing again. They are slim and light and you can’t notice them when I’m wearing them they are that good.

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    • Posted

      HI Dragon Test,

      This response to Ollieboo is really reassuring as I have similar problems to Ollieboo. My hearing loss was -90dB but I think may have settled to between 70 and 80. I have been "measured up" for a NHS hearing aid, so I'm hopeful it will give me the same benefits that yours has given.

      Thanks,

       

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    • Posted

      Hi Razouski

      I thought the NHS ones would be at best outdated devices that are not a patch on the latest high street devices but I was wrong. I do not think spending £2000/£3000 in a high street outlet would give me any better hearing but it would empty the wallet.

      The NHS type I have are very light and I forget that I am wearing them, they fit behind my ears and a thin pipe goes to an inner ear dome that is in the “ear hole” so it’s very invisible. The batteries last about 10 days, to 2 weeks and are provided by the NHS free of charge, where the cost for the hearing aid batteries for the ones bought on the high street are not supplied “free” and will cost the owner. Something that is worth considering.

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  • Posted

    Thanks Ollieboo, I'm now feeling more positive about my aid, and looking forward to trying it out once it arrives on March 5th. My one anxiety is that I have very short hair, so I tthink the bit behind my ear will be quite visible. But as you have pointed out, if it gets me hearing, and at no cost compared to going privately, it has to be a good thing. I will let you know how I get on.
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  • Posted

    I'm really glad I found this forum today. My tinnitus is driving me nuts! I have had Menieres with low level tinnitus for years but since November I've been getting sudden loud noises as well as all the other tinnitus sounds. I get the sound of Concord sitting on the runway revving up and this gets louder and louder until I feel my head is going to burst. I get the sound of a child's plastic trumpet blown right into my ear. I get the feeling of a bumble bee flying into my ear and buzzing. All very unpleasant, unnerving and distracting.

    I've been to ENT and await results of MRI.

    Meanwhile, I've been wondering if a hearing aid would help or not. The specialist said 'not' as I have good hearing in my left ear and very poor hearing in my right (tinnitus affected) ear, although he is willing to refer me for one if I want. He said that as my left ear is good, my brain would be confused if an aid is introduced to my right ear.

    After reading your posts on here about NHS aids, I have decided to ask to try one, if the MRI doesn't show anything that can be treated.

    THank you to all who have posted - I have found reading this a great help.

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    • Posted

      Hi Moy. I hope you get on better than I did. I tried to different hearing aids. Unfortunately because my hearing loss in my deaf ear is si profound it didn't help the hearing, but only amplified the hyperacusis - ie the non noises my ear produces in response to sound. This was just painful and distracting. 

      I've now been referred to Addenbrooks (research hospital in Cambridgeshire) where I'm hoping their specialist may be able to offer some sort of solution.

      good luck with yours, and do let us know how you get on. 

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  • Posted

    Well,Razouski, it's good to hear all the different points of view.

    The results of my MRI are in and I have an appointment with ENT at the end of May. My GP is reluctant to discuss the results ahead of this, although he has read them to me over the phone. He said that there is something shown on them to do with the pituitary gland but he doubts that there is any connection that ENT will be concerned about. The ENT specialist's secretary assures me that I would have been given an urgent appointment if there was anything to worry about, rather than the routine one that I have now.

    So, when I get to see the ENT man again, I will ask for a full explanation of the MRI and discuss the hearing aid thing again. He has told me that, if I want, I can try one to see how I get on.

    Unfortunately, I think the hearing in my one ear is in a rapid decline. I would say it has got even worse since it was tested in February, so if that's the case, aids my not help.

    I'll let you know how I get on.

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  • Posted

    Hi Ollieboo

    How is the hearing loss 5 months on has the tinnitus reduced any?

    Without my hearing aids on it’s a quiet world for sure, with them on it’s a loud place at times. I do wear the hearing aids (both ears) every day and enjoy hearing the birds etc in the mornings. At work, I find the telephones to be an issue due to feedback whistles from the hearing aids and my tinnitus is much less these days, in fact I do not notice it 70% of the time which is what the audiology department at the local hospital told me 6 months ago.

    Hope things are better for you also.

     

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  • Posted

    Hi all.

    I'm glad I found this discussion as I was beginning to think no one really understood what I was experiencing. I am relieved to find I am not alone. I suffered sshl last November. I awoke one morning to the sound of a car horn....but it was inside my head. When it subsided to a jet engine noise after a couple of hours, I realised I was completely deaf in my right ear (95db loss across all frequencies). Subsequent MRI was normal, steroid tablets, intratympanic injections all to no avail. Now 6 months later it's just the same. My voice, outdoor sounds, any stress, in fact any noise at all exacerbates the tinnitus greatly to the point where it drowns out the ambient sounds. I am a commercial pilot, but it seems unlikely that I'll be able to return to work since this happened. My ENT specialist would like to try a super powered hearing aid, so I'd be interested to know if anyone knows of any success with this. Life is a battle, but we must fight on. I am an optimist, it came suddenly, it may go just the same. Fingers crossed. Good luck to you all.

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