1. Community
  2. Ears, nose, throat and mouth
  3. Cholesteatoma

cornwall

Posted , 2 users are following.

Guest
Guest

I'm 24 and have had a Cholesteatoma since i was 10, altogether i think i have had about ten operations its hard to remember! i have started to realize that there are not many people with this condition and not many that i can find that have had the disease to the extent that i have if there is i would love to meet you!

i started with an exploratory op then i had a mastoid then i had numerous goes with lazer therapy two more mastoid ops and just over a week ago i had mastoid obliteration surgery on the 8 of jan 2008! all this to get rid of the persistent infection, im really hoping that this time my surgery has worked because this operation is all that can be offered to me now, the recovery after this op has been hard as that took muscle from my neck to fill the cavity my cholesteatoma has caused so i haven't just had a sore ear i had a sore neck to go with it.

Anyone else who has to go through this good luck i hope it fixes it your problems. :?

0 likes, 3 replies

3 Replies

  • Guest
    Guest

    Posted

    hi there you have been through alot I wrote about my son back in october 2007 headedcholesteatoma people dont realise how such a horrible terrible thing this thing is and how it has change our family life .my son has had another operation just before christmas 2007 it took just over 6 hrs long it was very bad again for him,also there is not enoth information about it .Ihope you are allright know and Ihopethings will be allright for you take care . karen smile
  • Guest
    Guest

    Posted

    hi, did u have your op done at trliske? im guessin your from cornwall. i live in north cornwall and had a skin graph in 2005 and last week had an op to remove cholesteatoma in derriford. derriford tole me it was caused by dirt left behind from my last op in treliske!

    i dont really know what to think of it all as im still recovering.

    Hope all is well with you

  • DanniMcC
    DanniMcC

    Posted

    I have had a Radical Modified Mastoidectomy on the left side and a standard Mastoidectomy on the right to remove recurrent (probably congenital) Cholesteatomas; Left in 1997, Right in 1999, fortunately no recurrence since (although my Hearing took a major hit and I now have a binaural Hearing Aid Prescription). I live in Cornwall (still) and had the Op at Derriford, and I'm given to understand (taken on trust, of course) that they were good ops and the surgery was well performed, which is scant consolation when you wake up with 50%+ of your hearing gone! Anyway, I'm new to the Forum and see your original post in now over two years old, so I hope all went well for you and your now living an ooze (and pain) free life.
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.