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Cortisone injection with m e is it safe

Posted , 5 users are following.

russ151
russ151

Hi I just wondered if anyone has had cortisone injections for pain for m e and wondered as we have so many reactions to things anyone had any insight as I have pain relating to my shoulder from a injury but also have a lot of inflammation in my head which doesn't help to say which is which also has anyone had surgery with m e and got any advice thanks

1 like, 13 replies

13 Replies

  • phillis55984
    phillis55984 russ151

    Posted

    I haven't, Russ.  Not for CFS.  I DID have a cortisone shot for a bad shouder many years ago, and it helped.  Also, had a cortisone shot in my foot many years ago, and that, too,helped.  Had a shot for very bad allergy one summer, and that worked. Also, had a shot for a stinking case of sinusitis, laryngitis and bronchitis.  In fact, it was a after that bout  that I started going downhil and, eventually, a couple of years or so later, was diagosed with CFS.  But I've never heard of using cortisone for CFS. So, I'm familiar with cortisone, but no help to you on this issue.  Good luck!

    • russ151
      russ151 phillis55984

      Posted

      Hi Phillis I meant for my shoulder but I have Cfs and wondering if it could worsen my Cfs thanks for your input so it helped with allergy That's how Cfs started after a respitary infection later told me I had allergies which was causing my congestion I wad never offered shots maybe it s worth looking into after all thanks 

    • phillis55984
      phillis55984 russ151

      Posted

      When I had the shot one summer for allergy, I was told one was all I could have because of the  potency and side effects.  I was also told that the one would do the trick, and that I would feel better within 24 hours.  The doc was correct on all counts.  But that was long before I had CFS symptoms.  I have never had cortisone since CFS and I don't think I would becaue now I seem to react to all medications in weird and uncomfortable ways.  

  • david59056
    david59056 russ151

    Posted

    Hi Russ,

    I was probably one of the first to have cortisone about 20 years ago for ME. I had two bags on a drip feed  (a massive amount) overnight while in hospital. It Left me with an immediate weird reaction but 18 months later I was cured and have had no relapse since. So make of that what you will.

    I always thought the consultant was following a hunch I never believed he had any strong medical evidence for what he was doing. On the inflammation, at the same time as the above they put me through one of those scanners that showed hotspots in every joint.

    I now have cervical arthritis but I do not think it is related but for someone in their early sixties, I am incredibly fit climbing  a mountain every morning with the dogs. When I had ME I had ten years of pain when standing up was a major effort. I mention all this to emphasise to you that it does end and in my case and those I have known there is little physical damage afterwards.

    Try a hot dry climate for a while if you can.

    Good luck

    David  

    • phillis55984
      phillis55984 david59056

      Posted

      Interesting that hot, dry climates help your symptoms.  Hot weather make me worse.  But I've heard that from a lot of folks:  the heat helps the arthritis and other pains, but it makes me more exhausted and dizzy and sick.  There's no winning with this stuff.  But if pain is the main complaint, I would give the hot, dry climate a try. We're all different!

    • janet71271
      janet71271 phillis55984

      Posted

      Not weather makes me worse too Phyllis. And sunshine depresses me. I cannot do with bright light anyway. But sunshine is not for me!
    • phillis55984
      phillis55984 janet71271

      Posted

      I am fortunate that one of my children gave me an air-conditioner, a small one, that cools off my family room.  I love the sunshine and don't find  it depressing; however, I can't be out in it for very long once it gets into the high 70's or above..  Makes me sick.  I'm the old lady who sits in the shade or stays in the house in the air-conditioned room until it cools off.  

    • janet71271
      janet71271 phillis55984

      Posted

      I am housebound but try to go into the garden for periods. Especially as I am deficient in vitamin D. Very common with ME/CFS though.i can't sit in the sun .

      I lo rcto loom at my plants and wildlife.and potter about. Have lots of frogs and toads.

  • david59056
    david59056 russ151

    Posted

    Hi Russ,

    I was probably one of the first to have cortisone about 20 years ago for ME. I had two bags on a drip feed  (a massive amount) overnight while in hospital. It Left me with an immediate weird reaction but 18 months later I was cured and have had no relapse since. So make of that what you will.

    I always thought the consultant was following a hunch I never believed he had any strong medical evidence for what he was doing. On the inflammation, at the same time as the above they put me through one of those scanners that showed hotspots in every joint.

    I now have cervical arthritis but I do not think it is related but for someone in their early sixties, I am incredibly fit climbing  a mountain every morning with the dogs. When I had ME I had ten years of pain when standing up was a major effort. I mention all this to emphasise to you that it does end and in my case and those I have known there is little physical damage afterwards.

    Try a hot dry climate for a while if you can.

    Good luck

    David  

    • russ151
      russ151 david59056

      Posted

      Hi David 

      thats good to know that you recovered wow after 10 years I'm so happy for you I am into my 4 th year I gradually got worse as I never realised what it was kept pushing until finally what seemed like infectin after infection my body gave up I feel like I have been robbed of my life haven't worked for 2 years although I am functional and can get out I just can't seem to get better I have found some supplements that help but I am really cautious at what I take from docs they gave me graded exercise it floored me my neurologist suggest cortisone shot in my neck as I constantly complain about my head feeling blocked while my m e specialists says wait and see it's hard to know what to do I definatley have inflammation going on i have a friend who I could stay with in Australia but am concerned that I could have major relapse due to flight I have heard that the climate can help interesting thanks for your reply I will keep open minded about it as you probably know one thing that can help one person could be detrimental to the next thanks for your support

  • bronwyn97278
    bronwyn97278 russ151

    Posted

    Hi Russ151;  Yes, I have had many Cortisone injections over many areas of my body, and they have really helped.  Not just for orthopaedic disorders, but for the pain related to ME, and my Osteo (and into my shoulder joint when I had a bad Tendonites), and am lined up to have one into my TMJ as my specialist feels it is time I had one there to help with this area, too.  This one and the one into my shoulder have had to be done under Ultra Sound Direction by a Radiologist to ensure the injection goes into the right facet joint/fluid sac.....: the others have all been given by my Rhuematologist, and I feel that they are very successful...(these usually go into the affected muscle/s)  ...the many areas (fingers, knees, hips, rib-cage etc) are much improved....some have had to be performed a couple of times, but well worth it.   All I did following these injections, was to strap area for a couple of days afterwards, as when the local anaesthetic wears off, there is some discomfort, but the strapping helps, and then all heals and then good.

    I was told we can have upto 3 injections at one time, and then wait 3 months before having any more.

    ​Hoping that this helps you decide to go ahead and have the recommended injections.       good wishes,     Bron

    • russ151
      russ151 bronwyn97278

      Posted

      Hi bron thanks for your post it has been helpful I'm sure it wouldn't do any harm to try it I will speak more with my neurologist on my follow up and see if I can have it done in my shoulder and neck hopefully it can dampen down the inflammation in my head neck and that area many thanks

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