CORTISONE PUFFERS AND CATARACTS
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I've been using Symbicort for about 10 months and knew that one of the possible side effects of cortisone is cataracts, which I felt was a risk worth taking given that prior to being prescribed Symbicort I was getting very little sleep bc of incessant coughing. I was initially using it twice in the morning & twice at night but due to bad leg cramps (another common side effect) I cut it back to one inhalation twice a day. A few months ago I decided to check if the cramps would return if I upped the dose to the original prescription and they didn't, so I've been using it at that higher rate for about 2 or 3 months.
In May I went for new glasses and was told I had the start of cataracts in both eyes, the right eye being more advanced than the left, but not at a stage requiring surgery. I spoke to my practice nurse, who has post grad pulmonary qualifications, and was told most of the powder in steroid puffers stays in the lungs and wouldn't cause or escalate cataracts.
The right eye cataract is now advanced enough for me to have been put on the urgent list for surgery, which will take place either before xmas or early in the new year.
The surgeon told me that I have a classic steroid created, fast escalating cataract and that the left eye will have to be done later on when I've recovered from the right eye operation, and that she sees this quite often in patients using steroid puffers for COPD.
I"m not suggesting anyone not use or stop using steroid puffers, just letting others know what's happened to me, because neither my GP nor my practice nurse had heard of it, and I reckon it will become even more common as all us baby boomer ex smokers reach COPD stage.
0 likes, 24 replies
hypercat jude65855
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jude65855 hypercat
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Pussy9 jude65855
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jude65855 Pussy9
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We all need to take responsibility for checking ot possible negative effects of ALL medication we're prescribed and making informed decsions: I've had gp's who prescribed medication for migraine which the manufacturers specifically warn should NEVER be given to anyone who's had a heart attack, which I have had ... enough said.
If you're using the puffer twice morning and night, you could try halving that as I did and see if you get rid of the leg cramps without exacerbating the coughing aspect of your COPD, but it may be too late for your cataracts. I truly believe that if I'd kept the dose down to half, my cataracts wouldn't have deteriorated as quickly as they have.
terri69807 jude65855
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I require a second puff in the a.m. I was told last year during an eye check-up that
I too have cataracts forming, also worse in one eye, can't remember which one at
the moment. Said they weren't bad enough to require surgery. Always had poor eyesight, have worn glasses since I was 9 years old. Think for me it is just an
age thing most likely. Good luck with it Jude. x
jude65855 terri69807
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brenda62546 jude65855
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jude65855 brenda62546
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My understanding is that anyone who needs bi or multi-focals will still need glasses for short sightedness, which is what I"ve been told in my case
brenda62546 jude65855
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I do have family with me that will give lots of support, but I usually have to help myself with activities, walking, cleaning, and more. I always tend to look at things in a positive light, because we usually have no choice, but to have to go through the operation anyhow, even though it can be scary.
Regarding 'nice', I was referring to having better eye sight. It may be inconveniencing having them both done at the same time, but I would rather have them both done, while I have the nerves to do it, and also just to get them both over with. I understand that I can't get them done together at the same time, and they will be separately done, and at different dates, healing one eye at a time, but at least they will be done...lol.
My Dad had long vision, and so do I. My Dad and I both can't see far away, but we can see up close. I am not sure if he wears reading glasses or not, because he lives far away from me, and we only have spoken on the phone about his operation.
But, I was reading, that due to the more perfect far-away vision, the worse the up-close vision will be. So, after the operation, our eye sight will be near perfect, so guessing we will really need bi-focals then. Hopefully not. I am not sure if they have lenses that include bi-focals, but if so, that would be nice. I am not sure if we need prescription glasses for up close vision, but only a pair of reading glasses, which can be purchased, over the counter, from most stores.
jude65855
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brenda62546 jude65855
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jude65855 brenda62546
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brenda62546 jude65855
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libralady13 jude65855
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Do you remember me Carol in the UK with the husband with COPD. I have actually replied to you under my other posting, breath east groups I think it was and have updated you after my husband went to the thoracic clinic. By the way the diagnosis is asthma/copd because he has elements of both condtions.
I know you have mentioned waiting for cataract surgery. I hope that you have one eye done by now or at least are having it done this month. I wish you a good outcome. I may have mentioned that I too have had 2 cataracts removed 2012 and 2014. I was told they were posterier type which usually affect younger people and progress sooner that the common aged related ones. Like you I knew about the risks of puffers and cataracts and glaucoma. I have taken inhales since 2002 and symbicort much of this time. I assume this is why the cataracts developed and incidently I am being treated for glaucoma in one eye although but we do have that in the family. I was interested to hear that symbicort can cause leg cramps this is something my husband complains of on one or two mornings.
You are right patients should be made aware of the problems inhalers could cause.
I wish you well and hope that you will soon be seeing well. Look forward to hearing from you soon.
Carol
jude65855 libralady13
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I find it amazing to be able to drive without glasses for the first time in 40 years and I can sew again and read for more than 5 or 10 minutes at a time.
The surgery (exactly a month ago now) was successful and the other eye, which isn't anywhere near as bad, will probably be done in the next couple of months and I guess that will transform my world even more!
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libralady13 jude65855
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Yes it is lovely to be able to see properly. I remember the day after surgery with my first eye everything seemed so fresh and bright. It is good you can drive without glasses and sew again.
It won't belong until you have the other eye done so expect your vision to be even better. Good Luck.
jude65855 libralady13
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The only real drawback is that I haven't worked out how I can read outside in the sun, but maybe at some stage I can get magnifying sunglasses for that.
libralady13 jude65855
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I was told it happens to most people. It is good you now only need over the counter specs for close work.
terri69807 jude65855
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jude65855 libralady13
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jude65855 terri69807
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As far as I know, one eye is always done and then the other at least 8 weeks later. I was told not to drive the car, bend forward or lift anything heavy until I'd been for a checkup a week later and to use two lots of eyedrops (antibiotic & cortisone) four times a day for 4 weeks.
I was fine recuperating on my own and fortunately there were no complications, because the hospital is a 2 hour drive away
terri69807 jude65855
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Thanks for the info. Yes, a lot of people have the "impression" that we here in Canada have an excellent health care system and it just isn't the case unfortunately. It is better than the States, but still not as good as the UK or what you people have. Take care. x
libralady13 jude65855
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jude65855 libralady13
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