Costo/fibro??? Help!

Posted , 3 users are following.

Hey guys so I was diagnosed with Costo a few months ago and then diagnosed with fibromyalgia in January. I also have severe anxiety mainly dealing with health anxiety! So anyway I've had about 5 ekgs And blood tests even a heart monitor just over these last 8 months. Anyway all the chest pain seemed to come one after I had my gallbladder out in August so my doctor thinks that I have fibromyalgia that has settled in my chest and that's why I get the chest pain. I also have moments when I feel short of breath or just like I'm not getting enough air.

Also I do have acid reflux. I was in omeperzol then the doc changed me to nexium and to take one extra pill and I thought it was working but now I have now clue. So I'm trying to go without it for a couple days just to see if I stay the same or what not. Plus I do not like the side affects that I read that taking Ppis can cause

I want to believe my doctor but it's hard to believe because of everything that I feel but my tests always come back fine, and I try to find comfort in the good news that everything came back fine but I only feel a moment of relief then once that pain comes back all the negatives thoughts come back.

So anyway, just a few days ago I was having some pretty bad chest pain where I couldn't lay in anyway without hurting and the pain ranges from sharp to dull/achy/ stabbing feeling. Sometimes when I push on my chest it hurts but sometimes it doesn't. I wanted to go back to the hospital to get checked out for reassurance but ice racked up lots of medical debt that I'm trying to trust in the docs diagnoses so I didn't go and it went away and I fell asleep. But it hadn't ever gotten that bad before so idk of I should've just gone. The last time I went was back in January.

I guess I'm looking for any kind of reassurance.

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  • Posted

    OMG Shayla!!!!!  You sound like my case..big time. I feel like my ER docs know me by name now. I too find relief in all the good test results Im getting back. Especially the cardiac tests. All came back good. Thank God!!!! I'm also an anxious person, but a bit more because of Costro. I'm going to go for accupuncture soon I hope. Just waiting for authorization. Soft ice packs help me alot.  Also, A TENS unit helps me. Also muscle rubs numb it and help. Im on neurontin for pain, and a medicine for anxirty. I have bad and good days. But now I listen to soothing music alot, and do adult coloring books. That soothes me alot. I Too get that stabbing feeling. I also have these little bumps I can feel under my ribs. Dr said its from Costro. I need reassurance from my dr every couple of weeks. Helps me too. Hang in there! It gets better. We are all in this together. So good we can network and get ideas and help each other out! Hope tomorrows a better day for you....smilesmilesmilesmilesmile

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  • Posted

    I have been in a Tietze/ Costo flare for 2 weeks now. It has been horribly painful! I have cried on more than 1 occasion. I have only been able to stay in a recliner because lying flat on my back or on either side isn't possible due to the pain. It is hard to believe you can be in this much pain and there not be something much more serious going on - I know because I've been in that position. My most recent treatment has been a steroid dose pack, narcotic pain medication, heat and ice, a sports bra to relieve the weight of my breast from my rib cage, staying in my recliner, and lots of doing nothing. After 2 weeks I am just now able to move without shouting out in pain. I am just now able to return to normal breathing because the past 2 weeks I could only do shallow breaths because anything deeper caused too much pain. This is some terrible stuff to deal with! Hope you feel better soon!

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    • Posted

      WOW sounds Aweful!!!! Have you gone to a pain specialist? or accupuncturist?   Im glad you can breath a bit better. I havent worn a bra in months because of costro. I just wear dark colored shirts that are a bit big. Also, have you tried neurontin? it has helped me with pain and can help some people with anxiety and sleep issues as well. Praying better days are ahead for you! Hang in there  smile

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    • Posted

      No, I don't go to a pain specialist. I am fortunate enough that my Tietze/Costo flares and doesn't stay so I just have to "survive" the flares. I have Mitochondrial Disease which attacks all of my muscles, brain, heart and kidneys so I have tried Neurotin for muscle/nerve pain in my legs and am allergic to Neurotin. I do suggest you try a sports bra because the pull from the weight of your breast affects your sternum and your ribs. My doctor is who told me to wear a sports bra instead of my normal bra (never a underwire bra, which I never wear anyway) and I can tell a big difference. I purchased ones with the racer back so it also helps to hold my shoulders back improving my posture which also helps with the Costo. I will be trying to sleep in my bed for the 1st time in a while tonight. Fingers crossed! I have to get out of this recliner! Hope you feel better soon!

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