Costochondritis pain and discomfort
Posted , 177 users are following.
I am a 39 yr old mother of a 5yr old daughter. I live in Newry, northern Ireland.
I was diagnosed with costochondritis 2 years ago this month. Like everyone elses case I have read on here I was totally convinced there was something more serious wrong with me and argued with my Doctor for a long time about it.
It started when I got a flu while on holidays and the only thing that I can think may
have brought it on was the coughing. It comes and goes every couple of months but there isn't a day that I don't get some kind of pain in my back or chest area. Just
before Christmas last year while driving to work I took really sharp chest pain and
felt like my heart was jumping around in my chest. This panicked me as I thought I
was having a heart attack. I pulled into the hard shoulder as I had my little girl in the car with me and I was finding it difficult to breath. The panic stopped after a while and I went straight to A&E. They did numerous tests, ECG, chest Xrays, blood tests, you name it and in the end they said they agreed with my GP that it was
costochondritis. They put me in Diclofenic tabs, which are anti inflammatory. They did help and the condition eased up after a few days but it wasn't long til it reared its ugly head again. so for me its 2 weeks of severe pain and maybe 4-5 weeks of bearable pain then back to severe pain again.
I am down at minute but this time its really bad, it seems each time I get it It is more severe. I am now on naproxin which to be honest I find useless. Pain killers are not working and even the hot water bottle which I found great is no use this time.
The majority of my pain in in my back between my shoulder blades and travels up into my neck and shoulders, sometimes down my arms. Although I have chest pain the worst is in my back, though if I were to press on my ribs at the front I could scream with pain.
I find this time with it being worse it is affecting my moods. I am snapping at my little girl all the time which I feel terrible about, and I just dont want to do anything. Work is just a nightmare recently. I am normally an upbeat person and very little gets me down, but it is really taking its toll. I have had this condition now for 2 years and it really in not understood. Most people I talk to have never heard of it, so when I found this forum and so many people suffering like myself it was a God send. So hopefully I can gain some knowledge from other people and anyone panicking about the pain they are feeling and thinking its something bad, can take some reassurance from my story.
Does anyone feel the pain is in their back more then their chest area. And if anyone has any advice or anything, please do share with me.
Sinead
11 likes, 604 replies
QueenMo sinead_34836
Posted
I have a question! Do you hurt everyday, all day? Does it come and go! My "flare ups" occur sporadically and for apparently no reason. I seem to have a flare up about once every week that lasts one day but not with the unbearable pain a lot of you describe. Tylenol extra strength helps me, along with total resting and heating pad ...
tracy02849 QueenMo
Posted
I hurt when I wake up, my spine and body feel stiff. This improves once I'm up and about. Then various things aggravate my shoulder blade area, such as cooking, sitting on my daughter's bed, changing beds, housework, sitting at my desk... So then the burning begins and is usually with me the rest of the day.
tracy02849
Posted
NicoleLiara sinead_34836
Posted
I too feel all you all pain, I still dealnwith it tho summer months here have made it not so bad, this debilitating disease I think medical community knows not
I have about or why! It's a diagnosis of exclusion! I am former military and military wife and am held under EFMP because of this issue it's horrible to say the least. It's NOt just the front ribs that flare up, but also the back ribs which is why so many have pain in there backs and sometimes the front pain radiates through and vice versa. I got into massage therapy as I found a huge way of reliving it if you have a intelligent massage therapist who understands everything associated with ribs. I.e. Traps,Rhomboids,pectorals, Lats, and huge importance is Scalenes,Scm and whole rotator cuff group and few more, but these are the main ones that need special attention I feel dealing with Chostro. Getting the Massage to help relieve it has helped me lots too,reason I went into it, but not cured it. Pricey Too. Also something I have discovered about 6 or so months ago is a tool called a Fascia Blaster, it's helped me as well like Loads; i was having those Fibromyalgia stings in left shoulder some say it's Fibromyalgia and others say it's nerve something as I had shingles's before on that side so idk. I just know the tool helps and the painfully pricks have been way less using this tool as well as Costo and yes I still get flare ups I call them too. I'm always I feel at a like level 2-3 daily morning is the worst!I feel you must have the right pillow or no pillow some days as holy guacamole if I go without a certain pillow it is bad juju for Costo. I recently pulled my Scalene muscle which effin sucks tring to crack/adjust my rib, as cracking it hurts yes, but shortly later relieves my pain.I have spent so much money on Chiropractic that helps manage pain when I have flare ups to, as army does not pay for these things for spouses only active duty.
Also tho I worry too is that to much Chiro and manipulation of the rib head may resort to it not wanting to stay put in sternum. Inflammation from Costo there I feel tho makes the rib become subluxated both anterior and posterior. So when it gets put back in place it's relives it yes ;but how much can your ribs take?? And they can shove those NSAIDS and non NSAIDS up theirs. Unless you want to be stuck on these and have the worst stomach pain of a lifetime. And develop stomach ulcers, and list goes on. Any of you have IBS with Costo? When I try to describe my pain as well I'm looked at cooky haha, sometimes it feels cemented in and after I can crack it especially too I tell them it burns? But I must endure the cracking pain to feel a bit better. I can't crack somedays either and those are the worst. Somedays muscles are just to tight due to weather, overuse, stress and listgoes on and inflammation is to high to get movement . And sternum/ribs is just angry and immobile. This is wear massage and my Fascia Blaster tool come in handy to loosen the muscles up so the ribs can move. Anyone else understand what I mean by like burning cooling sensation, but it's not a nice one when cracking. I'm not sure if cracking is ribs getting pushed into or out of sternum or just gases built up around the area. Idk . One doc said partially Fibromyalgia they though, but I just know it's not, I feel like I'd have it all the time not just when my sternum/Spine gets angry and ranges from like a 2-3 painscale every day to some days during a flare up like a 7-8 with a lump you can feel that is inflammation or something you just want to beat the p**s out of. And I feel like it gives you anxiety. Especially if you get the facade up in ur back ones, as sternum you can massage, but the back between shoulder blades is hard to reach when you have a flare up in the ribs there. I suffer bad from anxiety, but there is nothing like the anxiety you get from this thing, and yes. Carring things like my 1yo son has horrible repercussion. I was suggested to perhaps get a back pack purse.
I do have a big purse and I feel could help front ones I don't know. I just know when I carry sons backpack diaper bag my back ribs get more angry. Pregnancy Oh word, that was beyond painful for my ribs. I had a few break downs to say the least. And now more children for me. No one wanted to help Me during pregnancy as it becomes a liability. And I tell you I was beyond miserable. Needless to say no more children.In too of that I have a broke L5, so I'm sure you can imagine. Anyways,I feel like there is no winning just finding ways to live and relieve it and relish the days you don't have a bad flare up,
I guess. Magnesium Citrate has helped me a lot too. And I just heard about this curcumin last week at pain management dr. and now here; so I think I will give it a try. Good luck On yalls Journey and I hope you all find relief. So great full for this forum. My prayers go out to you all in this Journey and I pray some doctor out there studies it and finds a cure.
chrism6973 sinead_34836
Posted
I have posted what I did a few times on here and it keeps getting deleted. PM me if you would like to hear my tale...
NicoleLiara chrism6973
Posted
I would like to know. How can I pm you?here is my email
Moderator comment: I have removed the email address as we do not publish these in the forums. If users wish to exchange contact details please use the Private Message service.
http://patient.uservoice.com/knowledgebase/articles/398331-private-messages
tracy02849 chrism6973
Posted
fosse1993 chrism6973
Posted
paul13379 sinead_34836
Posted
I am one of the unlucky males to have been diagnosed with costchronditis.
I am 38 a tad overweight and had quite a bad experience one evening whilst asleep with acid reflux, the worry that this caused me thinking I was choking was horrible, the single
Most scariest thing ever for me.
Since then I had some cramps and it was discussed by GP that I may have reflux issue or symptoms of GERD. 12months on and following a barium swallow test I'm told I have mild reflux.
My chest pains began 2 months after this scary night, left hand side, stabbing pain felt almost like someone holding a broom handle into the affected area as hard as they can. Pain would come and go and move to centre of chest and back to left side. Came off Lanzaprosole as felt I wasn't being affected by acid as much as I thought. I've lost 2 stone and tummy pains have subsided.
In losing the weight I have started running I'm 15 stone and have built up to quite a few miles, also playing football quite a bit. I'm fitter than I've been for 12 years. However the chest pains came back and one day I was rushed to A&E for ECG abd was diagnosed with CC.
Since then chest pains are easier took naproxen for a week or so - still tender to touch left side of chest but not throbbing like it was. The pain causes anxiety and I am a bit of a worrier at the best of times.
Had ultrasound of my abdomen which showed I had a fatty liver and a polip on my gall bladder which they have suggested I have removed. Have appointment to see surgeon in 6 months (NHS WAITS !!!!)
Fast forward to today 12 months since the reflux Incident I started to get pains in back shoulder blade and neck. Went to see chairopractor who cracked my back and neck and put real pressure on my back aiming to manipulate painful areas and this has not helped. Didn't go back to him due to pain and cost although friends swear by them and say I should go back for more. Since my neck was cracked the pressure headaches I've had
The next chapter for me is to stop exercise, stop doing what I enjoy to see if this will ease my back neck headaches and tightness in left hand side of chest.
I do plan to have gall bladder out so let's see how That affects things but I agree with you all, these pains make us anxious and are never ending. It is like a vicious circle as I want to have my life back but nearly 12 months of various complications and tests and still no nearer a solution.
Few pointers - I've never once had heartburn, dont drink or smoke but prior to weIghtloss my diet was bad.
Would be interested to hear from people who have had similar symptoms, did cutting out exercise and heavy breathing help? Gall bladder removal or difficulties ? And importantly I have had pressure headaches for past month now, on and off but seems to come from left side of back shoulder blade and neck--- has anyone experienced this with CC?
Got lots of docs to see, a surgeon too so hoping I get a break from the pain and worry of this disasterous 12 months.
Paul
fosse1993 sinead_34836
Posted
Hey there Sinead I'm 24 and been suffering with this painful disease since i was 18 iv Done everything and nothing atall Has helped if anybody has anything that can help I would love you forever ha but honestly it doesn't get better it's just the worst
Love to hear from anyone that could help
God bless x
alex_38985 fosse1993
Posted
Hello my name is Alex I am a 19 year old female.. I have been worked up for heart disease numerous times.. and they say tat it's not cardiac related pain.. they have mentioned this condition before but I just can't shake off the feeling of it being something more serious like with my heart ?? The pain is unbearable every time it happens I panic thinking it's heart attack ?? Someone please help!
Fifer70 sinead_34836
Posted
Sinead. I definitely get most of my costochondritis pain in my back and between my shoulder blades radiating around the sides and front. I have had mine now since April after a bout of bronchitis. I too thought there was something seriously wrong but all health professionals still saying it's costo ! Tried numerous pain killers with little effect. Some days are better than others and some are totally debilitating. I am dismayed to read you have been suffering for over 2 years !
Carolann x
Chris023 sinead_34836
Posted
Late to the game and not totally diagnosed with Costochondritis... Yet, but I have some insight to share with you all. I have self diagnosed after a Doctor told me it was all in my head and that I should seek psychological therapy, sadly this is the world of "Modern Medicine" in the US. After firing a few Doctors for not hearing me out, I've found one that actually took time to run some tests. I'm in the process of finding out I've got multiple autoimmune diseases, and what I now believe to be food allergy caused Costochondritis.
I've found my Costo type inflammation, largely occurring in the area of my xiphoid process and in between my left shoulder blade/spine, goes hand and hand with food allergies, one allergy in particular causes inflammation so bad I feel like I'm going to have a heart attack that night while trying to sleep.
The main allergy for me is Gluten, in fact you can see for yourself if it's the cause by simply cutting Gluten out of your diet for a week or 2 then reintroducing it. You will notice the pain goes away then poof it comes back worse than ever. If you wan to see all the different things causing it, try an elimination diet then slowly reintroduce foods to your diet, then wait for inflammation later that day/night. I've personally shifted to a mainly fruit diet and am loosing the effects quite rapidly. On cheat days were I order a Pizza I feel the pain that night.
Hope this helps some of you, I searched for gluten and didn't find it in the thread so I signed up to post.
Pangi1986 Chris023
Posted
Did you have arm pain as well? My xiphoid process thingy just flared up a couple days ago, it was tender at first then now there's a grape sized tender lump and i went to the doctor. So I'm hopeful after 6+ months of worring about chest/arm/shoulder/back pain. I'm just curious. I'm exhausted and as I'm in between having health insurance so it's difficult to get the $$ to constantly go to the doctor and get tests etc. Idk, let me know lol
ioana14099 sinead_34836
Posted
chrism6973 ioana14099
Posted
Hi,I know this sounds random, but how flexible are you? I'm talking as one who has had costo and am now living a (relatively) normal, pain-free life - but I need to manage it daily. You are only young and there is a lot of life ahead of you...you don't want to fear it!!
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