Costochondritis with Prednisone?
Posted , 11 users are following.
Hi wonderful people,
I'm on 12.5 mg of prednisone, going down to 10.0 mg slowly. Ever since my journey with PMR began, I've been suspicious about the pain in my lower right rib cage and also in my sternum.
The pain in the sternum has been slowly getting worse over the last few weeks. When I sneeze the pain is indescribable. It feels like I'm breaking something. The last doctor visit I had, the doc said is sounded like costochrondritis, but how can I have inflammation there when I've been on such high doses of prednisone since the summer?
Any ideas?
Thanks so much, and Happy New Year.
2 likes, 26 replies
karen28161 bob73443
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Chris811 karen28161
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? no ideas? I'm experiencing this same thing, but like Bob said, I'm looking for feedback.. is there a place to expand the comments or is this all that was written?
EileenH Chris811
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This post is over 5 years old - what you see on the thread is what you get but there are 2 pages to it so scroll down to read it all.
ptolemy bob73443
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EileenH bob73443
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Cartilage does not have a blood supply and heals because of the white cells present in the joint fluid around it rather than those in blood - so it takes much longer. Oral pred enters the blood stream to be transported to the muscle cells - but nothing like as much gets into the synovial fluid. When a cortisone injection is used near to the most painful spot in bursitis then a concentrated amount of pred surrounds the area. In joint injuries it works best when put directly into the joint - but often the injection misses the optimum place which is why sometimes they work, sometimes they don't: the success rate is about 1 in 3.
Is your doctor not willing to try a steroid injection? Particularly since it seems to be getting worse rather than better, costochondritis is said to clear up in a couple of months. The usual option is NSAIDs - but that's not advisable for us - and a steroid shot might do the trick. It'll be much the same as a broken rib - OUCH, OUCH and OUCH!
I had pain in my ribs that was the referred pain from myofascial pain syndrome causing trigger points alongside the spine to irritate nerves - it never got to the sternum though.
karen28161 bob73443
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EileenH karen28161
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Next time you see him you could offer him a reading list. If you are a person for whom pred stops the pain (there are some), if you are in pain when reducing it is quite simple: the dose is now too low. Lots of people are never fully pain-free (he needs to know that) and for them the sign their dose is too low is increased pain. Anyone would think it is rocket science.
And high time to educate the GP...
Chris811 EileenH
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I know this is a super old post, and the chances of me getting a response are slim, but I figured I’d try..
Most of these responses are very helpful, but I’m concerned about being on high doses of prednisone for an extended period of time. A lot of you talk about increased pain being an indicator of not enough prednisone; however, I’ve been told by many doctors that it isn’t safe to be on prednisone for a long time/in high doses. What about all of the problems that come with taking so much? 😦
I hate that I need these medications that come with all of these new ailments.. I feel like I take one step forward with pain or with a specific problem just to take two steps back because of side effects. It’s very discouraging!
ptolemy Chris811
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I don't understand doctors, they prescribe us with pred then go on about how dangerous it is taking it and we should get off it, even though we have discovered it has helped the pain. Yes we know there are side effects, but we do know a lot about them as it is an old drug, not like some of the horrendous side effects you can get from some of the biologic monoclonal antibody type drugs or the cancer drugs. What dose of pred are you on? If it is for PMR it probably will not be that high dose as such anyway.
EileenH Chris811
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I'm still here and so is ptolemy!! Like the proverbial bad penny, we keep on turning up 😃
I have been on pred at above 10mg for much of the last 10 years - it gives me my life back. I only take the lowest dose that works - and that is the primary aim, you start on a dose that is probably too much for you and then taper it carefully to identify the lowest dose that YOU need. I have no identifiable problems - over the years I have learned how to manage the potential adverse effects. I gained weight - I lost over 35lbs by cutting carbs drastically. My bone density was good at the outset, last time it was checked after over 7 years on pred it was hardly changed. My skin is fine, my hair varies, I have no signs of diabetes, probably because I eat a low carb diet and although overweight, that is nothing new for me.
A fairly recent study:
https://www.medpagetoday.org/rheumatology/generalrheumatology/66912?vpass=1
done by experts at the Mayo found the claimed adverse effects of pred are no worse in patients with PMR taking pred at the usual sort of doses required long term for PMR than in a matched population not on pred. They also found PMR lasts far longer than most doctors admit - and 40% of patients still require some pred at 10 years. The link to the original paper is at the bottom of the article.
pat38625 bob73443
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Pat
pat38625
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tina-uk_cwall bob73443
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i've had PMR since dec 2013. But prior to diagnosis I went through pretty much what the rest of PMR sufferer do, a general build up and increase of pain and stiffness to neck, shoulders, arms, hips and bum, knees, well I could go on and on. But about a week before my eventual rheumatologist appointment the pain and stiffness was at its most severe and at this time I also developed pain and tenderness around my whole rib cage on the rib just below my breast, the pain was worse just to the left of my sternum and I honestly thought I had something very wrong with my heart.
i had about a month prior to this been for a endoscopy and that revealed a sore in my stomach at the point were my osphogus (spelt wrong) meets my stomach.
like you when I was diagnosed I was prescribed preds and whilst still on 15mgs the pain in this area was still bothering me so I told my Dr and she prescribed omeprazole, believing that the sore in my stomach was being annoyed by the steriods, although I had the pain prior to steriods. Anyway, the pain cleared up nicely!
i been reducing my preds and got down to 9 mgs and I thought the pain was coming back again although very mildly, but following a flare up I again suffered from tenderness and pain around my rib cage, the one just under my left breast and to the left of my sternum. Even after upping my dose back up to 10 mgs the tenderness to my rib went away but this annoying pain remained. On Wednesday last week I went to my gp to speak with her about it. She gave me a full examination and blood tests but does not know what can be wrong with me, so she has booked me in for ultrasound told me to increase my omeprazole to 1 in morning and a further one in the evening. Tomorrow I go to see her to see for the blood results but funnily enough doubling my omeprazole has greatly improved the pain, but I'm still going to go for an ultrasound.
so to cut along story short, could you also have a problem with your stomach that perhaps a endoscopy rule out problems there.
it is also possible that PMR symtoms to include the rib cage and because this area of your body is effected by the PMR will react to (flare up) when preds are reduced although you say that the dose is still high.
these are just 2 possibilities, but I will say that the pain in this area was the most frightening as I believed it was my heart or heart valve.
before I went to the dr I looked up costochondritis thinking that my pain could be that. The Dr didn't say it was that but it could be I suppose.
Good luck Bob (it seems funny writing that name when not in connection with my husband)!
christina
tina-uk_cwall
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bob73443
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Thank you all so much for your comments.
The "blood supply" issue seems very relavant, but so does the stomach issue -- although my stomach has never really given me any kind of problem. I also like the idea of the steriod injection, although I understand that it's rather hit and miss.
Another thought I always have is stress-related. It seems I do feel worse when the stress levels go up. In fact, this whole stinkin thing started when stress levels peaked. I know, I know-- reduce the stress levels, right? But sometimes that's like saying "stop breathing."
Thanks to all of you who have made me realize I am not alone in this. This is an excellent forum.
pat38625 bob73443
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Stress (that is why I have PMR) and sometimes life throws a curve ball at you. So I agree sometimes it is just unavoidable. Good luck anyway.
Pat
tina-uk_cwall bob73443
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and the stress issue, yes I suffer from stress too, or rather I did, now, I attempt to stay as calm as possible always. Christina
EileenH bob73443
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bob73443 EileenH
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