Costochondritis with Prednisone?

Posted , 11 users are following.

Hi wonderful people,

I'm on 12.5 mg of prednisone, going down to 10.0 mg slowly.  Ever since my journey with PMR began, I've been suspicious about the pain in my lower right rib cage and also in my sternum.

The pain in the sternum has been slowly getting worse over the last few weeks. When I sneeze the pain is indescribable.  It feels like I'm breaking something. The last doctor visit I had, the doc said is sounded like costochrondritis, but how can I have inflammation there when I've been on such high doses of prednisone since the summer?

Any ideas?

Thanks so much, and Happy New Year.

2 likes, 26 replies

26 Replies

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  • Posted

    Hi Bob I have exactly the same in my ribs when I sneeze or cough the pain is excruciating ,some times when I take a big breath in it absolutly kills me .ive had PMR for 2 years now and i have reduced PRED from 20 mg to 7 mg ,so yes I know exactly what you are going through x
    • Posted

      ? no ideas? I'm experiencing this same thing, but like Bob said, I'm looking for feedback.. is there a place to expand the comments or is this all that was written?

    • Posted

      This post is over 5 years old - what you see on the thread is what you get but there are 2 pages to it so scroll down to read it all.

  • Posted

    Has your doctor arranged for an ECG, blood checks or X-ray to rule out other causes? If it is costochondritis you can have a steroid injection to help the pain if very bad. Applying heat to the area can help, also paracetomol may help. Avoid doing anything strenuous though, which you probably will anyway if you have PMR.
  • Posted

    If you've been on PMR doses that isn't particularly high - with the 15mg I was started on it took months before the tendonitis/synovitis/bursitis problems I had improved significantly. When the trochanteric bursitis reappeared I was on Medrol - although I concede it didn't appear to do anything for the PMR even at 20mg whereas as soon as I was switched to Lodotra the PMR responded in the typical way at 15mg. But it took steroid injections to deal fully with the hip bursitis.

    Cartilage does not have a blood supply and heals because of the white cells present in the joint fluid around it rather than those in blood - so it takes much longer. Oral pred enters the blood stream to be transported to the muscle cells - but nothing like as much gets into the synovial fluid. When a cortisone injection is used near to the most painful spot in bursitis then a concentrated amount of pred surrounds the area. In joint injuries it works best when put directly into the joint - but often the injection misses the optimum place which is why sometimes they work, sometimes they don't: the success rate is about 1 in 3. 

    Is your doctor not willing to try a steroid injection? Particularly since it seems to be getting worse rather than better, costochondritis is said to clear up in a couple of months. The usual option is NSAIDs - but that's not advisable for us - and a steroid shot might do the trick. It'll be much the same as a broken rib - OUCH, OUCH and OUCH! 

    I had pain in my ribs that was the referred pain from myofascial pain syndrome causing trigger points alongside the spine to irritate nerves - it never got to the sternum though.

     

  • Posted

    Eileen my own GP is pants where PMR is concerned ,he hasn't got a clue ...... As formy RHUMY I have had him for 2 years he was really good ,any probs I had I could just ring him up .but last month when I went for my check up appointment with him ...the nurse said oh mr prince has retired so you will be seeing another consultant today ))))-: basically he said ,as they all do slowly reduce PRED ....oh and you will be in a little pain as you reduce x
    • Posted

      I don't know - we go to all that trouble training them up and then they have the cheek to retire!!! Shouldn't be allowed!

      Next time you see him you could offer him a reading list. If you are a person for whom pred stops the pain (there are some), if you are in pain when reducing it is quite simple: the dose is now too low. Lots of people are never fully pain-free (he needs to know that) and for them the sign their dose is too low is increased pain. Anyone would think it is rocket science.

      And high time to educate the GP...

    • Posted

      I know this is a super old post, and the chances of me getting a response are slim, but I figured I’d try..

      Most of these responses are very helpful, but I’m concerned about being on high doses of prednisone for an extended period of time. A lot of you talk about increased pain being an indicator of not enough prednisone; however, I’ve been told by many doctors that it isn’t safe to be on prednisone for a long time/in high doses. What about all of the problems that come with taking so much? 😦

      I hate that I need these medications that come with all of these new ailments.. I feel like I take one step forward with pain or with a specific problem just to take two steps back because of side effects. It’s very discouraging!

    • Posted

      I don't understand doctors, they prescribe us with pred then go on about how dangerous it is taking it and we should get off it, even though we have discovered it has helped the pain. Yes we know there are side effects, but we do know a lot about them as it is an old drug, not like some of the horrendous side effects you can get from some of the biologic monoclonal antibody type drugs or the cancer drugs. What dose of pred are you on? If it is for PMR it probably will not be that high dose as such anyway.

    • Posted

      I'm still here and so is ptolemy!! Like the proverbial bad penny, we keep on turning up 😃

      I have been on pred at above 10mg for much of the last 10 years - it gives me my life back. I only take the lowest dose that works - and that is the primary aim, you start on a dose that is probably too much for you and then taper it carefully to identify the lowest dose that YOU need. I have no identifiable problems - over the years I have learned how to manage the potential adverse effects. I gained weight - I lost over 35lbs by cutting carbs drastically. My bone density was good at the outset, last time it was checked after over 7 years on pred it was hardly changed. My skin is fine, my hair varies, I have no signs of diabetes, probably because I eat a low carb diet and although overweight, that is nothing new for me.

      A fairly recent study:

      https://www.medpagetoday.org/rheumatology/generalrheumatology/66912?vpass=1

      done by experts at the Mayo found the claimed adverse effects of pred are no worse in patients with PMR taking pred at the usual sort of doses required long term for PMR than in a matched population not on pred. They also found PMR lasts far longer than most doctors admit - and 40% of patients still require some pred at 10 years. The link to the original paper is at the bottom of the article.

  • Posted

    Hi Bob, I am a newbie was just diagnosed in November with PMR and am on 20mg of pred.  Someone with more experience will get back to you.  The people here are second to none and give plenty of support, advice and information.  Hope you get sorted.

    Pat

    • Posted

      Sorry Bob I didn't know you had got replies.
  • Posted

    Hello Bob, I think on this subject you'll get plenty of replies!

    i've had PMR since dec 2013. But prior to diagnosis I went through pretty much what the rest of PMR sufferer do, a general build up and increase of pain and stiffness to neck, shoulders, arms, hips and bum, knees, well I could go on and on. But about a week before my eventual rheumatologist appointment the pain and stiffness was at its most severe and at this time I also developed pain and tenderness around my whole rib cage on the rib just below my breast, the pain was worse just to the left of my sternum and I honestly thought I had something very wrong with my heart.

    i had about a month prior to this been for a endoscopy and that revealed a sore in my stomach at the point were my osphogus (spelt wrong) meets my stomach.

    like you when I was diagnosed I was prescribed preds and whilst still on 15mgs the pain in this area was still bothering me so I told my Dr and she prescribed omeprazole, believing that the sore in my stomach was being annoyed by the steriods, although I had the pain prior to steriods. Anyway, the pain cleared up nicely!

    i been reducing my preds and got down to 9 mgs and I thought the pain was coming back again although very mildly, but following a flare up I again suffered from tenderness and pain around my rib cage, the one just under my left breast and to the left of my sternum. Even after upping my dose back up to 10 mgs the tenderness to my rib went away but this annoying pain remained. On Wednesday last week I went to my gp to speak with her about it. She gave me a full examination and blood tests but does not know what can be wrong with me, so she has booked me in for ultrasound told me to increase my omeprazole to 1 in morning and a further one in the evening. Tomorrow I go to see her to see for the blood results but funnily enough doubling my omeprazole has greatly improved the pain, but I'm still going to go for an ultrasound.

    so to cut along story short, could you also have a problem with your stomach that perhaps a endoscopy rule out problems there.

    it is also possible that PMR symtoms to include the rib cage and because this area of your body is effected by the PMR will react to (flare up) when preds are reduced although you say that the dose is still high.

    these are just 2 possibilities, but I will say that the pain in this area was the most frightening as I believed it was my heart or heart valve.

    before I went to the dr I looked up costochondritis thinking that my pain could be that. The Dr didn't say it was that but it could be I suppose. 

    Good luck Bob (it seems funny writing that name when not in connection with my husband)!

    christina

    • Posted

      Bob, I've just read Eileen's reply so perhaps if your PMR spread as far as your rib, given what Eileen has said about cartilage, blood supply and preds perhaps that could be the answer to many of us who suffer from this symtom wether it be the left or right rib and sternum. Christina 
  • Posted

    To all,

    Thank you all so much for your comments.  

    The "blood supply" issue seems very relavant, but so does the stomach issue -- although my stomach has never really given me any kind of problem.  I also like the idea of the steriod injection, although I understand that it's rather hit and miss.

    Another thought I always have is stress-related.  It seems I do feel worse when the stress levels go up.  In fact, this whole stinkin thing started when stress levels peaked. I know, I know-- reduce the stress levels, right?  But sometimes that's like saying "stop breathing."

    Thanks to all of you who have made me realize I am not alone in this.  This is an excellent forum.

    • Posted

      Like yourself I don't know where I would be without the support, guidance, advice and much more.  You would not get any of this from a gp or even a consultant.  Keep coming back, at your own pace of course.

      Stress (that is why I have PMR) and sometimes life throws a curve ball at you.  So I agree sometimes it is just unavoidable.  Good luck anyway.

      Pat

    • Posted

      Hi Bob, just seen your reply, when i was sent for my endoscopy I had never experienced any problems with my stomach, eg, heart burn, indigestion, or any pain what so ever, yet the endoscopy revealed I had this sore where the oesophagus meets the stomach, so don't rule that out.

      and the stress issue, yes I suffer from stress too, or rather I did, now, I attempt to stay as calm as possible always. Christina 

    • Posted

      The steroid injection being rather hit and miss tends to be for joints like shoulder, knee and hip when it has to be located into the joint. Otherwise they can be very effective - though like everything with steroids it does depend on the patient to some extent. I've only ever had good results from steroid injections wherever they were!
    • Posted

      Thanks Eileen, for replacing my incorrect conclusion with a more correct one about injections!

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