Could I have had PMR for a number of years and not known about it?
Posted , 12 users are following.
I have written before under Newly Diagnosed. Something puzzles me about all this. I have suffered for a really lot of years with arthiritis, particullarly my back and hands. I was diagnosed a few weeks ago with PMR and am on 15mg of Pred. It was like a miracle, all my pain dissappeared. Now after a month my pain has returned with a vengence.
Dr wants to put me on a tab for osteoporosis, which I am not too keen about, would much prefer to have a Calcium supplement, and to have proper scans to see what I am dealing with. I dont doubt for one minute that it is PMR, as I have a lot of the symptoms, night sweats, aches and pains etc: (which I have had for years), night cramps, swollen ankles etc:
I am getting away from the title here, is it at all possible to have had it and not known about it? Over the years I have had physio, cortisone Injections, and acupuncture for the pain. Myself I feel yes I have PMR, but could I be dealing with something else as well?
Your feedback will be appreciated.
1 like, 25 replies
linda83143l gladioli30
Posted
It comes in phases I find x
Bababoyd gladioli30
Posted
frustrated61 Bababoyd
Posted
Regarding your spinal stenosis, are they suggesting any surgery? I know stenosis of the foramen can be quite serious if it isn't dealt with. The foreman closes up on the nerves/blood and can have a major impact on you. You may want to check and see if they are foreseeing any surgeries in the future. The pain you are feeling "all the sudden" is most probably the foreman has closed up more than it was prior!
Good luck
Frustrated
Bababoyd frustrated61
Posted
frustrated61 Bababoyd
Posted
I'm so sorry to hear abou your dilemma. I totally understand about the blood clotting. I had major surgery a while back and delevoped bi-lateral clots in my lungs. I was fortunate enough to have a "greenfield filter" put in place as the bloodthinners would have dislodged the clotting from the surgery rendering me paralyzed. I'm wondering if you can suggest a filter and then taking you off the thinner as you said you still need surgery, this may be a possibility. The placement of my filter is just below the belly button. You cannot see it as it is inside the body but I do feel relief everytime I feel the same exact pain I felt while passing the clots to begin with.
I truly feel for you and emphasize your pain. I broke my back and neck when a car decided not to pay attention and yell at another driver along side his car. Thus, taking his eyes off the front of his vehicle and out the side window. who drives like that? lol Anyway he slammed into me going 50 mph and my car flew into the air 5 ft or more...witness stated 5 but then I slammed down on the seat thus breaking bones and pretty much giving me pain all up my spine and shoulders for the rest of my life. I had surgery but it never takes away everything. Itruly wish you luck and will include you in my prayers.
Warm regards,
Frustrated
frustrated61 Bababoyd
Posted
I believe if you're on blood thinners, the doctor asks that you stop using them for such a time prior to the surgery. For blood thinners it could be as much as a month prior. After your surgery, they probably won't put you back on them until you heal properly. I'm quite sure they will use extra caution on you. After the surgery, they have pumps to put on the legs to help circulation and avoid blood clots.
I wish you luck and sending a hug your way!
Frustrated