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Could I have had PMR for a number of years and not known about it?

Posted , 12 users are following.

gladioli30
gladioli30

I have written before under Newly Diagnosed. Something puzzles me about all this. I have suffered for a really lot of years with arthiritis, particullarly my back and hands. I was diagnosed a few weeks ago with PMR and am on 15mg of Pred. It was like a miracle, all my pain dissappeared. Now after a month my pain has returned with a vengence.

Dr wants to put me on a tab for osteoporosis, which I am not too keen about, would much prefer to have a Calcium supplement, and to have proper scans to see what I am dealing with. I dont doubt for one minute that it is PMR, as I have a lot of the symptoms, night sweats, aches and pains etc: (which I have had for years), night cramps, swollen ankles etc:

I am getting away from the title here, is it at all possible to have had it and not known about it? Over the years I have had physio, cortisone Injections, and acupuncture for the pain. Myself I feel yes I have PMR, but could I be dealing with something else as well?

Your feedback will be appreciated.

1 like, 25 replies

25 Replies

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  • linda83143l
    linda83143l gladioli30

    Posted

    The extra tablet is because pred can affect boned so you take this as a precaution . Hope that helps .

    It comes in phases I find x

  • Bababoyd
    Bababoyd gladioli30

    Posted

    I have been on pred. for 14 months and I could not really feel pain for anything else I had.ever sick or having anything wrong until I turned 68, then I work up feeling old.  I was at the gym 5 days a week for 7 years and pretty well fit.  Did what most 50 year olds did.  I PRM and after all these months find I have arthirtis is my spine and advanced stinosis.  They say I have had it a while but I did not feel the pain until I was been lowered on pred.  I was down to 2.5 every other day and now had to go up to 5, not sure that is ever enough.  ALso my numbers are up.  SO yes you could have had PMR and not know it.
    • frustrated61
      frustrated61 Bababoyd

      Posted

      hi Baba ~

      Regarding your spinal stenosis, are they suggesting any surgery?  I know stenosis of the foramen can be quite serious if it isn't dealt with.  The foreman closes up on the nerves/blood and can have a major impact on you.  You may want to check and see if they are foreseeing any surgeries in the future.  The pain you are feeling "all the sudden" is most probably the foreman has closed up more than it was prior!

      Good luck

      Frustrated

    • Bababoyd
      Bababoyd frustrated61

      Posted

      Yes they want to do surgery, but I developed serious blood clots in April and now I am on blood thinners and they can not operate. I was just told the clots are sill there, but blood flowing so I belive I have 6 more months on blood thinners. I t is hard to tell most of the ime which pain I am feeling. I can't do much righ now and it is very frustration.
    • frustrated61
      frustrated61 Bababoyd

      Posted

      Hi Bababoyd ~

      I'm so sorry to hear abou your dilemma.  I totally understand about the blood clotting.  I had major surgery a while back and delevoped bi-lateral clots in my lungs.  I was fortunate enough to have a "greenfield filter" put in place as the bloodthinners would have dislodged the clotting from the surgery rendering me paralyzed.  I'm wondering if you can suggest a filter and then taking you off the thinner as you said you still need surgery, this may be a possibility.  The placement of my filter is just below the belly button. You cannot see it as it is inside the body but I do feel relief everytime I feel the same exact pain I felt while passing the clots to begin with. 

      I truly feel for you and emphasize your pain.  I broke my back and neck when a car decided not to pay attention and yell at another driver along side his car.  Thus, taking his eyes off the front of his vehicle and out the side window.  who drives like that? lol  Anyway he slammed into me going 50 mph and my car flew into the air 5 ft or more...witness stated 5 but then I slammed down on the seat thus breaking bones and pretty much giving me pain all up my spine and shoulders for the rest of my life.  I had surgery but it never takes away everything.  Itruly wish you luck and will include you in my prayers.

      Warm regards,

      Frustrated

    • frustrated61
      frustrated61 Bababoyd

      Posted

      Baba ~

      I believe if you're on blood thinners, the doctor asks that you stop using them for such a time prior to the surgery.  For blood thinners it could be as much as a month prior.  After your surgery, they probably won't put you back on them until you heal properly.  I'm quite sure they will use extra caution on you.  After the surgery, they have pumps to put on the legs to help circulation and avoid blood clots.

      I wish you luck and sending a hug your way!

      Frustrated

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