Could I have Rheumatoid Arthritis??
Posted , 8 users are following.
Hi!
I was really hoping to get some advice. I went to my family doctor because my joints in my hands have been painful for a few months. She quickly said I could have RA and sent me for blood work on X-rays. She barely even glanced at my hands. RF and ANA were positive and she has referred me to a Rheumatologist (6-8 month wait). I don't really know what to think. I have little to no swelling, stiff and painful joints in the morning, and I've started to have other joints be painful like my wrists and feet (mostly ankles). My blood work showed not inflammation but I am anemic which explains why I'm so tired. Could I be RA maybe something else or am I worrying for nothing?
Anyone's RA ever looked similar to this?
Thanks!
Rose
0 likes, 20 replies
Ted12345 rosielolo
Posted
If you wake up one morning and can't move you will know you have RA. Wait for future signs. Blood tests should tell you. Good to have seen a rhuatoid arthritis dr already
carol303055 rosielolo
Posted
Hi Rose, it's tough when you don't have a definite diagnosis to come to terms with. I was first diagnosed with psoriatic arthritis about 4 years ago. I hadn't heard of it even though I'm a registered nurse and, I suppose, I was initially in a bit of denial as I don't really have psoriasis, only what I thought was a dry scalp. Anyway, that was then. I had severe pain first in one joint which would resolve only to reappear in another. It was bizarre but somewhere from way back in my nurse training I recalled 'flitting joint pain' and so my journey began. It seems a very long time to see a rheumatologist. Did you say you are in Canada? Are there no guidelines you can refer to? Here in England we have NICE guidelines. I tell you this as it may provide you with some timescales and other information you may find useful. Just google NICE Guidelines Rheumatoid Arthritis. I think it's clinical guideline 79.
?As I said 'my journey' (ugh!) started about 4 years ago. It's been a bit of a roller coaster as many others appear to be. The meds can be pretty effective in relieving your symptoms but are also pretty toxic with lots of side effects. It's been somewhat therapeutic sharing experience with others on this forum who actually understand. Best wishes, Carol
mandy87502 rosielolo
Posted
i had been having niggling pains in wrists and hands for about two years. I was told I had carpel tunnel syndrome in both wrists. Then about SIX months ago I started to get worse and I had blood works which showed RF and ANA positive like you. Then in Nov last year I got a really bad cold followed by chest infection this went on for almost three months I was exhausted after 3 courses of antibiotics I found I was not recovering. The pains in my hands wrists shoulders knees got really bad. Blood work showed some inflammation but GP said it was nothing to worry about told me to go home and rest and not worry about it. A few days later I could not move I was in agony and called a private Consultant rheumatologist who saw me a few days later he checked my joints and told me all my symptoms were text book RA put me on steroids immediately. He carried out more tests and I got results yesterday inflammation in blood works really high and I will start on methotrexate next week. The consultant did explain to me that once we get these pains we have a very short period of time to hit the disease aggressively so please push your GP to send you urgently for an appointment. I was in agony but can move but my immunity has been compromised and I pick up colds and coughs very easily. I would tell anyone who has these pains to push for urgent appointment because consultant told me once pains start the joints start to get damaged and this can be even more painful and more difficult to control.
I hope you will be ok and get to see someone quickly. Good luck
carol303055 mandy87502
Posted
You're right, Mandy. NICE guidelines say refer to Rheumatologist within 3 days of presentation and be seen within 3 weeks to avoid potential joint damage and deformity. I suspect that isn't available everywhere though.
rosielolo mandy87502
Posted
Thanks Mandy.
I am starting to become frustrated, but there is nothing I can do. We have recommended wait times (4 weeks from referral) but they are not reality. In fact the province I live in won't report their wait times (probably because they are atrocious) for annual review. In 2014 the wait time was 1 year!!
I wish our health care system allowed my to go to a private specialist here. I would have to go out of the country.
Thank you for all the advice though it has got me researching to better advocates for myself.