Could it be Chrons?

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So I plan on seeing a doctor soon, about another week and I will have heath insurance. But I was wondering if maybe some of you could help me out. My grandmother on my maternal side had Chrons and I am afraid I may have it. When I was young I noticed blood in my stool for the first time. I told my parents and they kind of blew it off, saying it could just be me mistaking my cycle for blood in my stool. I was also having very bad stomach pains often and had issues with constipation- sometimes I would go 3 days without being able to go. So we went to the hospital and they did a colonoscopy, they didn't find anything, they also sent me home with a stool sample test but my parents never took it back to the hospital to be tested. That was when I was about 13 years old. I am now 21 and am still having issues. Every once in awhile I will see blood or mucus in my stool (sometimes more often than others). I will be constipated for days, then will have very bad diarrhea and cramps for awhile. My appitite changes a lot, sometimes I can eat normal, others I the thought of food will make my stomach hurt. I am also pretty tired all the time. Like very tired. No matter how much or little I sleep. I struggle with depression as well so I don't know if that can have anything to do with this. 

I know you can't tell me anything for sure from this, I would just like to know if any of you experince these same things or if it could be something else? 

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9 Replies

  • Posted

    Hi, First of all let me say that I am sorry to hear how you are feeling. I have had crohns now for 53 years and I can identify with some of your syptoms. One of the symptoms that you explain is sever tiredness and fatigue. Before I was actually diagnosed with crohns one of the early symptoms was extreme tiredness and fatigue.

    ?When I was at work I had to go off somwhere to just close my eyes. 53yrs later I still suffer with these same symptoms. this along with other symptoms that you mention are all pointing to crohns.  Having said that there are many complaints of the digestive system that offer up similar symptoms this is why it is so difficult to diagnose. But with all the latest equipment available, ie, Ultra sound and MRI scans

    ?you would think that diagnoses would be carried out a lot quicker. There is a procedure now where the patient swallows a capsule that contains a small camera that takes photo's of the whole digestive system as it passes through. I am not sure if you have been offered this. The thing is while there is a delay in diagnosing it they cannot start treatment. I hope that you soon find out what is going on so that the correct tretment can be administered. Keep me informed as to your progress. Take care.

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  • Posted

    Of course, it's difficult to tell for sure, but symptoms do fall in the area of IBD, but possibly other medical problems too. Many people find IBD diagnosis can take years, so if you have always had it, that could be why it wasn't picked up previously. Good luck when you see your Dr. A stool test is good place to start.

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  • Posted

    I have had issues all my life. I had times when I felt terrible and I saw blood in my stool. I would then go in for a scope to be told they found an area of irritation. That kept happening for years until I began to get sick again. This time the bleeding was severe. I went in for a scope this time to be told I had IBD or at the time Ulcerative Colitis, now several years latter it looks like I have Crohn's disease as now my small bowel is being attacked. It took years to get diagnosed, because it can start real slowly and it goes into remission. You may have it, but you might just have IBS and a fissure that bleeds from hard stools. I hope you don't have IBD, it isn't much fun. I hope you feel better soon.

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  • Posted

    If you haven't had a colonscopy since you were 13 and are having the same issues, you know you ought to see a GI specialist.  Now that you are 21. you are the one in charge of your health and looking into what ails you.  Unfortunately Crohn's Disease is something that can be inherited [as are many disorders] but it is really quite a rare condition.  Your symptoms are also typical of Irritable Bowel Syndrome--but why wonder?  A colonoscopy is no big deal.  The worst part is prepping for it the evening before.  The doctor will explain to you what he sees in your bowel [if anything] and give you advice as to what you might do to alleviate your uncomfortable symptoms. 

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  • Posted

    It sounds like Crohn's. If you have Crohn's in the lower bowel, you're likely to have intermittent constipation from what I've read. I'm 56 and I first had a bout of passing all blood when I was 35. They didn't find anything but I suffered for years and because I'm self employed, I could not get insurance until the ACA. By the time I was diagnosed I was taking 8 Imodium a day with no relief from diarrhea.

    I really hope you don't have it as it's a horrible disease but I hope you get answers. It would be a shame if it's gone untreated since childhood as the longer you have it, the more damage the inflammation can cause.

    Do you have blaring? That's a huge sign with Crohn's. Good luck and keep us posted.

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    • Posted

      That should read bloating, not blaring 🤣 But you could have blaring pain!

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  • Posted

    Sorry to hear your not well. It sounds like crohns. I had crohn's for 8 years. I suggest a second opinion. 

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  • Posted

    Hi I'm 16 years old but have been diagnosed with crohns sense 2nd grade. Before that I struggled alot and no doctor could figure out what was wrong. All of the symptoms you are describing sounds exactly like crohns or ulcerative colitis. sometimes they cant tell with a colonoscopy so I would so go to the doctors asap. with crohns some people get really constipated or the opposite. when i was younger before i got my crohns under control I would have extreme stabbing stomach pains, bloody stool, very bad constipation then the diarhea thing, and always extremly tired, and at the worst of it i did lose around 15 pounds. Honestly what you are describing sounds exactly what I went through. (obviously at some pionts my symtoms were extremly severe though) Also sometimes you wont be able to see if you have a bloody stool because it could be inside and you would probably have to send in a poop sample for them to test. I hope this helps good luck!

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