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Good evening everybody
I am wondering if anybody could provide any advice please.
I have been signed off work with Fibromyalgia (which I'm hoping a long awaited appointment with a rheumatologist in 2 weeks will confirm) I have the symptoms of fibro, and suffer very badly with aches and pain all over my body - Stiff ankles, pain in hands, arms and shoulders. Aching legs, back neck and hips. Skin painful to touch and it even feels like my hair hurts (I cant have my glasses sitting on my head for too long as it becomes uncomfortable, and even after I remove them still feels like they are there - sounds mad I know)
Now, whilst the pain is all over I find it 10x worse down the left side of my body and the pain medication prescribed by my GP is not touching the pain.
Anyway, I have a very painful left shoulder, arm and hand below the thumb and also below the little finger which x-rays have confirmed is some wearing away there. When I told my daughter we laughed as she blamed it on my years of showing people my 'party trick' of being able to bend my thumb flat against my forearm. When she retold the story to her partner he mentioned Joint hypermobilty and EDS and after googling she called me and asked me some really random questions which turned out to be the Beighton score. I scored 7 out of 9.
I have symptoms which are both common in fibro and EDS/JHS but I have extra symptoms not so common with fibro like varicose veins, unexplained brusing and in the past week daily nosebleeds.
Are these symptoms common? How would I be diagnosed if it was any of these. I don't want to ask my GP as I am already paranoid that I'm going mad.
Sorry for the long post, thanks for reading and any advice will be gratefully received
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