Could it be ms

Posted , 3 users are following.

Hi, I was diagnosed with fibro but don't think it is, my pain specialist thought it sounded more like a type of MS, I didn't know there were types, my symptoms are burning sensations on head and down right side of body from head to knee, happens at night mainly and if I'm tired, crawling under skin on head, pain in my outside ankle bone, a feeling of having a tight band around bottom of ribs, fatigue, I lost the sight in my eye for about an hour after having terrible head pain, I've got other things wrong with me such as peripheral vascular disease, heart disease, I've not long got clear of breast cancer, I've got renal cancer, I'd really like some advice as the moment I ask about anything my doctor just rolls his eyes, I've never been a regular visitor to docs but feel like I'm being a time waster, annoying really as had to push to be taken seriously about breast lump, any advice is welcome

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3 Replies

  • Posted

    hi there, get a referral to see a neurolgist. start there!

    good luck!

  • Posted

    Find a good Neuro and have an MRI of your brain ordered. It will determine if you have any Demylination which is a hallmark of MS. Yes, there are different variations of MS, but all are based on your immune response to healthy cells in the brain and spine. That is the one common thread, when you get diagnosed. There's, unfortunately, not one simple definitive test, but a series of them that can take years, in some cases, to diagnose. There's also no cure. Current treatments are divided into two groups. They can treat symptoms as best as possible, usually including steroids to help with the weakness. Then there's immunosupressents that, not unlike chemo or humira, targets healthy cells, in hopes of "slowing down" the rogue ones. Mind you, the emphasis on slow down, not Stop. Again, sorry but no cure. Also, sometimes vascular disease can mimic MS symptoms, so your case might be especially hard to diagnose. Also, with cancer, I'm not a Dr at all, but just using common sense, I wouldn't think you would be given immunosupressants. That all said, if I were you, I'd focus on having your symptoms treated, more than worrying so much about a diagnosis, which can take time. A good Neuro is your 1st step. Good luck!

  • Posted

    P.S If u have a Dr that doesn't listen, and especially doesn't when u have a lump in your breast, you might want to find a new Dr! They're not God's and get paid well for their time. A caring Dr, and they do exist, cares about you and wants to help you maintain your health to the best of his/her ability.

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