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A couple months ago I posted about my first rheumatology appointment and blood work results. All tears came back negative with the exception of a slighted elevated RF. Despite my having arthritis in several joints including back, hips, and knees (only joints X-rayed), my doctor said she didn't feel it was RA because my hands were not affected and I didn't have noticeable swelling. At this time I was given a diagnosis of fibromyalgia.
Since then, I have had to have two cortisone injections in my hips, and have been diagnosed with Achilles tendinitis. I am only 38 years old and in the last two years I have had my ACL reconstructed, hip surgery in both hips for labrum tears and bony abnormalities, subsequent MRI on one hip shows further degeneration of the labrum, and now have the tendinitis in my Achilles with several bone spurs on my heel. This weekend, one of my knuckles started swelling out of the blue. My hand as been so stiff and sore. Does this sound like more arthritis? Is this the hand swelling she was talking about? I emailed her a picture of it but haven't heard back. I just feel like she patronizes me and made it Sound like I was making up symptoms based on what I read on the Internet.
For those of you with an atypical RA diagnosis, does any of this sound familiar? I just want to figure this out as I can't take the pain and disability anymore without answers. I am fit and active but have had to decrease my workouts from 5 days a week to only 2 and I am in horrible pain afterwards. This is taking a toll on my mental well being and I need to get back to me.
Sorry this is so long, I just feel like I have to get it all out because I have no one else to talk to who gets it. Thanks!
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