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I have been suffering for many years now, and I'm only 23.
I first went to the doctor at 19 and complained of feeling tired and just not all there. Very vague but just a feeling of being off.
I've been back and forth to doctors since, had all the standard blood tests and have always come back negative. I've seen a neurologist who said it's unlikely to be narcolepsy or a specific neurological disease but did empathise with me and believe that it was essential I got to the root of the problem.
My GP doesn't really know what to say and it's basically up to me now to push forward otherwise nothing will get done. Things are getting worse and it's preventing me from pushing on with my life. If i hear another person tell me it's in my head I may scream!
So back to my symptoms: My problems are general malaise, spaciness, cognitive and general weakness. However much sleep I get i'm never refreshed and can fall asleep anytime any place. My cognitive functioning is really declining. I'm nearly always in a haze and zoned out. The severity varies throughout the day. My head feels heavy and my symptoms seems to peak in hot/cold atmospheres or pressure changes i.e trains, planes etc
Now let me add that for many years, I have had a fullness in my ears, particularly my left ear and I also have tinnitus. I have recently noticed a correlation that when I get a particularly bad attack of tiredness and spaciness it is preceeded by heavy ringing in the left ear. At this point a cloud comes over me and I find myself staring blankly into the television or book i'm reading for 20 minutes or so.
I've also had a very strange finding that often at the same time as it lifting, I feel fluid trickling down the back of my throat. I presumed it to be some unrelated sinus issue previously but having inspected it it doesn't seem to be mucus. Could it be inner ear fluid?
My research into inner ear disorders has highlighted that a problem with the inner ear could cause debilitating symptoms but the majority of the symptoms aren't particularly matching of mine. The feeling is a mild drunkeness at al times and alcohol does exasperate the problem, as does eating in general.
I don't get nauseous, I don't get motion sickness or severe dizziness.
I do have a sense at all times of MILD dizziness, just spacy and hazy. And this trickling down of fluid has happened many times as the fog lifted.
If anyone can give me some advice I would be extremely grateful.
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