Could someone please help
Posted , 9 users are following.
Hi
i've been reading posts here, and I'm a little concerned. Most you the posts are about people having this dizziness thing and not getting well. This is scaring me a lot. I was just diagnosed with Vestibular dysfunction, whatever that means. I had a VNG test and when i got to the air in the ears part they started on the right one and the dizziness was so bad I could not finish it.
I have had this dizziness since last July 2015, I was doing some exercises and about 2 hours afterward, I had this horrid dizziness and have had it since. Could someone please help me with the symptoms and possibly tell me what is happening. My dizziness feels like its going thru my body as well as my head, it feels like im rocking and swaying, it happens when i'm sitting, standing, walking, laying down, when I walk i feel like i'm walking on marsh mello's and moving up and down, when i lean forward it get bad, when i shower its really bad, sometime i feel like i'm being pushed when i walk, i just recently started to get dizziness that comes with neck pain in the spine and headaches, i have nausea alot so I don't eat so well, i"ve lost about 3 pounds in the last month, I have anxiety and panic attacks, I don't sleep past 5 a.m, i'm constantly worried about this.
I am suppose to start therapy with the ENT in march, and I was really hoping it would help but from what i'm reading it doesn't. I haven't tried any meds accept for xanax which sometimes helps and the eNT said to take it when I need to. I am also hypothyroid and postmenopausal.
I work full time in an office, I can drive okay, I manage to go to stores but have alot of anxiety about it, because i'm araid something may happen. I have been seeing a atlast orthogenal chiropractor who is adjusting my neck, but not popping it, its done by a machine that sends vibrations into the neck. I have seen my GP who says vertigo and anxiety, my neuro did trigger point injections for the neck pain but that messed up my thyroid even more, and he says i have anxiety also.
Could anyone please tell me what this sounds like. I know its in the ear because teh air being put in made it so much worse when it was done, thats the only thing keeping me going is that its not a disease process, like heart disease or something.
Any help would be appreciated.
Thank you so much
2 likes, 12 replies
debbie82116 patty818
Posted
All the symptons you describe sounds like what i had...vestibular neuritis. Its a virus that attacks the inner ear and the balance nerve. It causes anxiety because you feel as though you've lost control of your own body.
Ive had it twice...it does go away but it takes time. Everyone is different.
I took anti anxiety meds and did vestibular rehab.
Debbie
c4013 patty818
Posted
Just make sure you ask lots of questions you want answers to and write them down so you don't forget. Don't be disheartened by feeling no one gets better. Some people do suffer with this for months and years but many recover very quickly after just a few weeks or a month or so and never post on here. I know several people who have suffered with your symtoms for a much shorter period of time.
Take comfort from the support on this forum as it does help to feel u are not alone and that others are feeling like you for however long or brief. I hope you get some answers and help and soon make a recovery. For me the exercises really help but it was a slow process it didn't happen over night. Take care x
rockymama patty818
Posted
Deb-help_needed patty818
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Terry6872737 Deb-help_needed
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VNG testing is considered the new standard for testing inner ear functions over Electronystagmography (ENG), because VNG measures the movements of the eyes directly through infrared cameras, instead of measuring the mastoid muscles around the eyes with electrodes like the previous ENG version. VNG testing is more accurate, more consistent, and more comfortable for the patient. By having the patient more comfortable and relaxed, consistent and accurate test results are more easily achieved.VNG testing is used to determine if a vestibular (inner ear) disease may be causing a balance or dizziness problem, and is one of the only tests available today that can decipher between a unilateral (one ear) and bilateral (both ears) vestibular loss. VNG testing is a series of tests designed to document a persons ability to follow visual objects with their eyes and how well the eyes respond to information from the vestibular system.
This test also addresses the functionality of each ear and if a vestibular deficit may be the cause of a dizziness or balance problem. To monitor the movements of the eyes, infrared goggles are placed around the eyes to record eye movements during testing. VNG testing is non-invasive, and only minor discomfort is felt by the patients during testing as a result of wearing goggles.
There are 4 main parts to a VNG test:
1. Occular Mobility
You will be asked to have your eyes follow objects that jump from place to place, stand still, or move smoothly. The technician will be looking for any slowness or inaccuracies in your ability to follow visual targets. This may indicate a central or neurological problem, or possibly a problem in the pathway connecting the vestibular system to the brain.
2. Optokinetic Nystagmus
You will be asked to view a large, continuously moving visual image to see if your eyes can appropriately track these movements. Like the occular mobility tests, the technician will be looking for any slowness or inaccuracies in your ability to follow visual targets. This may indicate a central or neurological problem, or possibly a problem in the pathway connecting the vestibular system to the brain.
3. Positional Nystagmus
The technician will move your head and body into various positions to make sure that there are no inappropriate eye movements (nystagmus), when your head is in different positions. This test is looking at your inner ear system and the condition of the endolymph fluid in your semi-circular canals. The technician is verifying that small calcium carbonate particles called otoconia are not suspended in the fluid and causing a disturbance to the flow of the fluid.
4. Caloric Testing
The technician will stimulate both of your inner ears (one at a time) with warm and then cold air. They will be monitoring the movements of your eyes using goggles to make sure that both of your ears can sense this stimulation. This test will confirm that your vestibular system for each ear is working and responding to stimulation. This test in the only test available that can decipher between a unilateral and bilateral loss.
Not sure if this is administered to someone as young as 6, though. But, as you can see it is the standard for diagnosis of inner ear deficiency.
Deb-help_needed Terry6872737
Posted
c4013 Terry6872737
Posted
jonAustralia patty818
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c4013 jonAustralia
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paula59 patty818
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patty818 paula59
Posted
Thanks for replying. You said you have the same symptoms, your dizziness is it most if the day? Does it feel like your swaying? When you have the headache and neck pain do you have dizziness at the same time? Mine starts with bad dizziness then the head and neck hurt. How long does the head pain last? I have it all day when it starts and nothing stops it, also the swaying feeling is there. Do you have dizziness when sitting, standing and walking? I feel frustrated with it and anxious. I always think the worst like maybe it's something worse, guess that's the health anxiety working. How odten do you get the headaches? I have it every week for at least 2 days. I'm also menopausal I don't know if that makes it worse, but the ent says it vestibular dysfunction, I'm not sure what that means. He mentioned MAV at the beginning the said something else. What are you doing about it? Thanks for your help.
paula59 patty818
Posted