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I am now a 29y/o male. I don't drink or smoke. I have only drunk a little bit in my late teens/early 20s. The past 5 years practically nothing with the exception of the odd occasion. There is also no pacreas disease in my family.
I have been experiencing upper abdominal pain, mild upper left back pain (slightly left og centre between shoulder blades) strange bowel movements that seem to be forever changing (dark, pale, constipated, hard, soft, bulky, floating, sinking), intermittent cloudy urine, low pressure flatulance, belching when eating and drinking and what I think is silent reflux (mucus in throat with intermittent hoarseness) for the past few year and need an opinion on some tests results I have recieved. My doctors have been hesitant to give a diagnosis. They have found that I have some bile backing up in to my stomach based on endoscopy, biopsies and HIDA scan. I have also had LFTs which are normal, celiac which is negative, autoimmune antibodies which are normal, CA19 and CEA which are normal, ultrasound, CT and MRCP which are also normal.
My tests results have come back with elevated amylase (determined to be pancreatic not salivary) which is between 7 and 10 times the upper limit of normal. I would like to know if this is too high to be considered chronic pancreatitis? I have not had any attacks that have put me in hospital. I have read that is should be moderately elevated. My lipase and fecal elastase are normal but my amylase continues to be persistenly elevated. The docotors tell me that if I had pancreatitis Lipase level would follow the amylase. Does Lipase have to be elevated to diagnose pancreatitis or is amylase on its own enough?
I also have moderately elevated IgA of unknown cause and some very strange Hep C results. The Hep C antibody results come back randomly low positive or negative. Antigen is always negative and viral load was not detected out to a year when it was first picked up 4 years ago. I have no know risk factors either. My doctors are a bit stumped as they say if I had Hep C and cleared the virus i would always test positive to antibodies. Could this be some sort of corss reactivity with another virus or autoimmune disorder?
Really need some answers. I suspect pancreatitis but am still unsure and my doctors aren't providing me with much to go on. Any input even if it is just your own experience would be much appreacited.
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