Could this be coeliac?!? So confused and desperate for relief

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so this is going to be a long ramble -

thought i had a yeast infection that wouldnt clear. then thought i had BV - meds did absolutely nothing.Unbearable itch and rash down there. Did a full round of tests and everything came back negative. My timeline was off for it to be a STD but that was my big worry

itch then progressed to being full body -

later developed GI ISSUES- extreme flatulence, bloating, cramping, diarrhea

embarrassing to admit the problem moved to my rectum causing clear discharge, tears and hemmorhoids

i get a boyfriend - we have sex (protected) and my body totally freaked out.swollen lymph/glands, r hand numbness, headache, tears down there, extreme muscle pain and spasms that left me bed ridden for 3 days -- felt like the flu. I googled and totally stressed out thinking I had herpes which was not on the initial STD TEST. Went back - doctor re-examined me and assured me my rash wasnt herpes. Did more tests to be sure -- everything was negative except because my blood work was taken mid attack my WBC and neutrophil count was way high compared to the last blood work.

I was then referred to an internal medical specialist who sent me for more tests --- this showed extremely low Vitamin D AND low positive ANA scores (1:80 / 1:160 speckled)

im waiting for a follow up appt with my medical specialist which is a few weeks out --- based on my google search the symptoms could be a reaction to gluten ?!? Does this sound like coeliac ?!??

ALSO --- if this is a gluten sensitivity any recommendations on good foods to eat ?

sorry for the rant and thanks for any advice you can give -- im desparate over here

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  • Posted

    hi honey, never mind coeliac disease, it sounds like you've been through the mill! no wonder your bowel and stomach is so sore. we'll take this one step at a time! i have coeliac disease, i only found out via bloods, a camera and biopsies. when i discovered i had this it was a little bit of a relief. coeliac disease has symptoms similar to IBS but left untreated can do permanent damage. i had tried everything, cutting foods out, putting them in, taking them out, altering my diet, lots of dietary 'advice'. nobody told me don't cut out wheat. i would be most concerned about your rash, that is certainly a coeliac sign. sore gums, pain, constipation, change in bowel habits, nausea after eating anything with bread in, problems with some takeaways. there are lots of symptoms. you could have coeliac disease, you need to dig further. ask for a blood test, a dieticians appointment and write down all your symptoms or show your doctor this. coeliac disease is caused by eating RYE, WHEAT and BARLEY (red, white and blue) think of the English flag. be careful with your doctor lots try to fob you off by saying you have IBS, if you think this is wrong push until you have it the way you need. good luck you will be ok. if you Google coeliac disease you will see what the rash looks like.

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