Could this be Fibromyalgia?

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I have been suffering for 7 months from extreme muscle pain in my legs (quads, hamstrings, calves). For the past 3 months I have also been suffering from neck and shoulder pain and stiffness. 

When I first went to the doctors for my muscle pain in legs, I thought it was weight lifting related. I was referred to a Sports and Medicine specialist who was stumped. Was prescribed Ibuprofen for pain. Here I am 7 months later, being out of the gym (no weight lifting, no cardio), not super active, stay at home mom, still in pain. Sometimes I have no pain for weeks, sometimes my left quad will hurt so much I am limping and other then temporary relief from epsom salt baths, nothing helps.

Three months ago I also started having issues in my neck and shoulders. I spent the entire month of December with neck spasms. I have made some changes that help me a bit. I make sure to stay hydrated, bought a good neck support pillow and only sleep on my back or side and the occasional epsom salt bath help make it manageable. However, I wake up every morning with this stiffness that is there pretty much 24/7. And the pain runs to my shoulder blades sometimes and feels like I have something in there scraping at my bones? Some days are better than others, but every morning I feel so stiff. Which brings me to my next issue.

Why do I feel so tired after resting well? I am tired whether I sleep for 5 hours or 8 hours. It's hard for me to get out of bed. And I remain tired for the entire day. Coffee does not help. I could drink a cup of coffee and fall asleep perfectly fine right afterwards. I feel lazy and unproductive and find it hard to focus. I am a stay at home mom and trying to homeschool my son but I find it so very difficult to focus on anything. I recently took 5 mg of Adderall and was shocked at how clear my mind was. It made me realize that I am in a constant fog which upon doing research I think might be fibro fog. 

I am sorry to have written so much but I am desperate for real answers and would appreciate some insight from people suffering from Fibro. Thank you!

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5 Replies

  • Posted

    I forgot to add that I also have random and horrible nausea! I have a sensitive stomach so things like rollercoasters, boat rides are a no no! But I will just be sitting at home sometimes and suddenly get so nauseous. It sucks so bad. Sometimes lasts for days.
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  • Posted

    I know how you feel sad im a 32 yr old mum and was diagnosed with sarcoidosis in September and had to give up work.. Now I possibly have fibromyalgia my legs are the worst they hurt all the time all down my tighs and ankles and also in my feet.also everywhere hurts when touched . I'm tired all the time and have no energy .when I feel ok and start doing things such as housework I end up in bed the next day due to exhaustion and the backs of my arms and wrists throb .I'm fed up with it.sad
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  • Posted

    Hi so sorry to hear how much pain you are in. I was diagnosed by a rheumatologist most gps tend to steer clear of giving a definite diagnosis so i would suggest that you get a referral to your nearest rheumatologist ASAP. If fibromyalgia is determined then you can start your treatment, and hopefully get a bit more normality back in your life. I'm not saying that it will be as easy as it may sound, but at least you would know what you are dealing with. I wish you all the luck in the world, huge hugs S xx
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  • Posted

    Sounds like your original problem might be something called piriformis syndrome. It can go on for long time. Then you might have snowballed to grinding your teeth while sleeping because of pain. Grinding your teet can make your neck stiff. And pain can decrease the quality of sleep so that can be sole reason you are tired. Been there myself...

    You might have adverse effects if you use ibuprofen a lot (see wikipedia, there is nausea, dizzines and confusion listed...can make you also tired because it makes your lungs create fluid, you kind of get little bit flu like symptoms.)

    But could be fibro, I don't know anything. But I have heavy experience of small problems snowballing. Your story has familiar aspects.

    Like tiredness could be due to sleep apnea. Like have you gained weight after stopping going to the gym? Or had you had any flus with sinus problems.

    If you drink a lot of coffee it dehydrates and also makes you tired if you are already tired. I've been on coffee strike a week now and feel "more alive" but I also did stop taking painkillers so might be that too. I'm ecovering from surgery and found out now that suffering a little bit pain is better than using pain killers. But then I don't have that much pain anymore so can cope.

    So if you have not tried yet,  a chiropractic can help (piriformis). And maybe the neck pain too. If they don't help at all (give it some time, a problem that has persisted might not go away straight away, although sometimes it does..). If no help at all then reconsider fibro.

    Good luck with finding the answers!

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