Could this be fibromyalgia?

Posted , 6 users are following.

A few years ago symptoms built up ticking many of the Sjogern's syndrome boxes, but the test proved negative.  Then followed severe bilateral frozen shoulders lasting 7+ months,  Now the hips have the same symptoms.  The GP thought possible Polymyalgia Rheumatica, but tests for this also proved negative.  Disheartened, and with increasing immobility with pain extending to most parts, especially sore muscles in arms legs and low back, am now wondering if this could all be related to FM?  The more I research FM, the more likely it seems as just about every symptom I have is mentioned.  Am loath to keep pestering the GP, but although Ibuprofen help to ease the soreness a little, things seem to be getting worse.  Will see the GP again of course, but would appreciate any helpful comments.  Thanks

Chickabee

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  • Posted

    I started to become ill in 2004, with different symptoms. I saw loads of different specialists I lost count of the different tests I had blood tests ct scans mri lung tests heart tests every test I had came back negative. it was demoralizing and frustrating I got to the point where I had simply  had enough. all I wanted was a diagnoses as to what was wrong with me.my dr sent me to see a rhumatologist in 2014 he sent me for a bone scan more blood tests he did a pressure point test on different parts of my body after all the tests came back he told me I had fibromyalgia with a low vitamin d count he gave me a leaflet on fibro and sent me back to my gp for pain meds.A rheumotolgist is the person you need to see for him or her to diagnose fibromyalgia your gp should refer you to see 1 which normally they tend to do if other tests you have had have come back normal. you need to have a chat to your gp. take care hope she will refer you to rheum and you soon get some answears. take care let us know how you go on 
  • Posted

    Hi chickabee; sorry to have taken so long to put in "my bit".....I totally agree with all the advice re "getting that Rhuemstologist appt ASAP"....perhaps, as you have already been to the Symptom Checker, I feel it may help if you print off the sheet with the symptoms on it, and put A Tick beside the ones that you feel are appropriate to you.....I would also ask the Rhuemy to have bloods done for Thyroid, as one lady has advised me, that "although the results normally come back within Normal Range"  (mine came back Border-line), some latest research have found that we have a deficiency in the T3T4 uptake, and with taking a small dose of Thyroxin can help our energy levels, and doesn't do our body any harm.....also if you can convince Rhuemy to order a scan on your Thyroid, there is a possibility of the Thyroid showing a reduction in size. Also ask for Vit D, B12 and Iron for their levels.....these are all necessary for the cynthesis of energy in our cells.... I guess the 1st step is getting that referral....and as you may have probably already noted, many of us also have other health issues (a lot have Arthrites in some/many joints, and I feel that the Medical Profession feel that we are "suffering from depression", secondary to the pain related to either this/other condition)....this is inappropriate, as many of us say, the feelings of being depressed are usually only from "knowing" there is something else wrong, and not being able to get the answers that we are looking for.....you will also probably find that along with the Fibro, there will be the CFS/ME....and yes, as we all have symptoms that "appear as Neurological", often the professionals will have to rule out other conditions like MS/Muscular Dystrophy etc..take this all as "part of the diagnosis process"........but always remember that we know and believe you, and it will be important for your family and friends to understand/know what/how you are feeling, for their support is also important.....another treatment that I find very beneficial, along with other's suggestions, is Physio regularly, and the one drug that many of us find that helps with the Fibro Pain (the burning/nerve pain) is Amitriptylline....you may like to trial this, and see if it helps you?  There are others who feel they prefer to "go Natural Therapies", and this is also a personal choice, and I have also made use of a Psychologist, as research has also shown that Fibro seems to affect certain types of personalities, and if the sufferer has had a traumatic life/event in the past. However,  if you do need relief when the pain gets too much, please don't hesitate, as from my years of Trial and Error, this is the one medicine that keeps me going.........hopefully not too long a blog???   we will alll be here with you through your journey, so please keep us informed.................confusedBron
    • Posted

      Hi bronwyn how are you today Im on thyroid tablets, I had hyshimotos desease which is to do with the thyroid. Im on 100 micro grams. I have to have regular blood tests to keep an eye on my thyroid level. The thyroid tablet helps to top up our thyroid level. Im due another test in the next couple of weeks so will see how it is then take care gentle hugs
    • Posted

      Hi kaz; yes after feeling for years that my symptoms felt a lot like Hashimotos....but it wasn't until another lady told me re the connection to the CFS that I spoke to GP/Rhuemy, and have only been taking for a few weeks.....do you feel it helps with your energy levels, and if so, how long  did it take you to see some response?  I'm being impatient for some improvement in the Energy department....know it won't help the Fibro, but detest this never-ending fatigue.....I always feel sooooo lazy, and know there must be something I can do, outside of typing for hours....that maybe my answer....trying to do more typing for someone from home?????..........Bron
    • Posted

      Hi bronwyn I noticed a differance at first with in a month when I 1st started taking the tablet but since having the fibr havnt noticed a differance at all thats probley because I  have ME Your on the tablets for life and I have to keep having regular blood tests to check the level incase my tablets need upping. but no they dont help me energiy wise hun because of the ME. Hope you soon see some improvement let me know how it goes. I think doing some typing for some one else from home is an excellent idea anything to keep our minds off our condition you take care gentle hugs

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