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Could this be fibromyalgia

Posted , 6 users are following.

lady40s
lady40s

Hi , I'm so low at a loss to what is wrong with me & the doctors are dismissive , all this year iv been back to docs with various symptoms , fatigue , burning sensation on my back , aching body , limbs in the morning and through day , sometimes I feel like iv even got flue ... I get a rash on my tummy like heat rash , goes once I'm cool , I just no I'm not right ,iv noticed it's not all the time when I'm really rested my energy pics up and I'm ok , then once I do alot of things and increased my work I get this feeling again hits me and I'm feeling rubbish again , last bloods taken July all ok , inlamitory ones all ok , have been vit d deficient but stopped taking tablets doc not to worried about that , iv also got digestive issues , which I'm seeing consultant for , and now I feel like I'm loosing weight ... I'm so low highly stressed can't get an appointment for 3 weeks with doctor , them prob have to wait another 2 to get bloods re done , I felt iv been fobbed off all the time as I suffer with health anxiety , they always put it down to that and tell me to try relax ... Anyone else with fibromyalgia had any of these symptoms ?

0 likes, 20 replies

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  • sadie1980
    sadie1980 lady40s

    Posted

    Hi lady I'm Sadie I'm 34 with fibro only just been diagnosed after 14 months of pain and crying I'll paste my symptoms now

    Stiffness

    Tired all time even after sleep

    Pain if get poked

    Hate loud noise

    Puff eyes

    A stone put on

    Confused can't get words out/ can't count

    Headache

    Numb legs

    Rib pain

    Bk pain shoulder neck

    Spine stiff and hurts

    Hands worst

    Cramp

    Wrist and ankles

    Jaw

    Clicking and grinding joints

    Hands shaking

    Twitching in body / right eye twitch for days

    Bone pain everywhere

    Loose voice when I've done to much and run down and can't move

    Shooting pain threw bum into bk of leg

    Ibs hard then very loose

    No appetite

    Migraines

    Hot flushes

    Sweating

    Headaches

    Low iron all the time

    I'm currently taking tramadol ametriptolin and pregablin to stop pain etc which for the moment is not to bad ! Have u asked your doctor about fibro ?

    • lady40s
      lady40s sadie1980

      Posted

      Thanks for reply , yeah have abs are was dismissive of it and I mentioned ME and CFS again not interested ... I'm at my whits end , I can't afford to go private and to go each time and get fobbed off with it just being anxiety , I know what I feel and it's real , hope you soon feel better or at least under control with your symptoms , if anyone can think of more spacific blood tests I need to ask for id be grateful fit any tips , was thinking of asking to see a neurologist or an reomolgist ? And full bloods and thyroid again iron ... That's when u get to see her ! Thanks for listening sorry big rant , just so frustrating :-(
    • kaz_40
      kaz_40 lady40s

      Posted

      I would see if they would check your thyroid Iron levels any vitamins you may be lacking in. Their isnt a blood test for thyroid the blood test I had showed low vitamin d which I was given tablets for. I had bone scan to rule out rheumatoid arthritus. Ct scan 4 MRIs lung tests heart tests I was tested from head to toe nothing shows up when its fibro every test I had came back normal. I saw a neurologist he couldnt do anything for me he was the last consultant I saw. I was pulling my hair out, and I thought I was going mad. My gp said will send you to see a rheumatologist I think its fibromyalgia you have and also ME. He did more tests bloods bone scan and a pressure point test on different parts of my body. He then said its fibromyalgia gave me a leaflet on it. sent me back to my gp for pain relief. which Im unable to take because Im allergic to opoids and have severe reactions to tablets. Stand your ground with your gp dont be fobbed off. take care
    • lady40s
      lady40s kaz_40

      Posted

      Thank you , that's very enlightening I think I could have a battle on my hands to get heard ... Because of my anxiety they think I'm nuts I'm sure ... She did massive of bloods in July u name it I had it ... Showed vit D , which she said everyone is low that , gave me pills .. I thought that was the cause as she said can get so many symptoms of low vit D & low iron , so sent me off with pills and I thought after few months all would be fine ...no such luck . Iv recently increased my work load so very busy physical work each day's so I'm shattered and then all the feelings come back again ...feel like I'm fighting something ... I need a sleep in afternoon most days , oh and my hairs coming out to ... Not clumps but loosing lots
    • kaz_40
      kaz_40 lady40s

      Posted

      hair loss is a symptom of fibro also our weight is up down like a yo yo fibro throws many unusal symptoms at us. we are all different to how it affects us in its severity. fibro is based on pain it over laps with other conditions I have ms symptoms too I also have ME which my dr said I had, and that it can go hand in hand with fibro.fibromyalgia isnt out their much at all drs are dismissive of it and so are some specialists. Fibro needs to be on the same footing as ME and MS. stress worry doesnt help our condition some have had to give work up because of fibro, and some ladys have even lost their jobs through it as their employers didnt like them having to have time off. Keep fighting for an answear weve all had to do that Im afraid it took me 10 years to finally get an answear and a diagnoses hope you get some answears soon take care 
    • Meg53
      Meg53 lady40s

      Posted

      Annoying isn't it, have you ha B12 levels tested?
  • kaz_40
    kaz_40 lady40s

    Posted

    Hi Lady40s I was diagnosed last year with fibro took 10 years to get a diagnoses, as drs like to rule out other conditions it could be first. Your gp needs to send you to see a rheumatologist as its they that diagnose fibromyalgia. I have had all the symptoms that you have mentioned. dont stand for any messing off the gp. If gp is dismissive can you change dr or go to another practice. I had many tests and saw many consultants before my gp finally sent me last year to see a rheumatologist. take care
    • lady40s
      lady40s kaz_40

      Posted

      Thanks kaz .. Hope your ok , glad you finally hit a diagnosis , comfort to know similar symptoms to , I been thinking I'm going mad but I know what I feel isn't right ... I will go every day see if can get a cancellation .. It's a nightmare !!!
    • kaz_40
      kaz_40 lady40s

      Posted

      Your definitly not going mad, its a nightmare trying to get a diagnoses,especially when gp and consultants are so dismissive. all we want is to know whats going on with us thats not too much to ask for. Hope you get sorted out soon keep pestering gp till you do get a referal to a rhematologist. 
    • lady40s
      lady40s kaz_40

      Posted

      Thanks kaz really appreciate your advice and listening , feel very alone with all these feelings ... X
    • kaz_40
      kaz_40 lady40s

      Posted

      I understand and know what your going through,its a horrid condition to have and a very lonely one to have at times no one understands or seem to care. Only people that have it understand what its like and how it affects us on a daily basis. we have to fight to get a diagnoses and get the answears we want. Weve all been through it on here and some are still waiting to get a diagnoses. your not a lone on here we all support each other and help if we can.X
    • lady40s
      lady40s kaz_40

      Posted

      Yes so right about the lonleyness ... I also have IBS , indigestion issues and am on fodmap diet not sure if you Heard of it ? I'm basically eliminating certain foods like wheat , gluten lacto free products , no onion garlic other foods to , it's a very back to basic foods then in another month I may re introduce these goods see which is my trigger ... I'm under a consultant and dietitian for it and touch wood ... It is helping I'm not do bloated and other symptoms are eased ...wish I had money I'd get everything checked lol !!!
    • deb97936
      deb97936 lady40s

      Posted

      13 yrs after my Car accident, they finally diagnosed in Sept I have Fibro... I've had it since my accident...  As I had head and spinal truama which is what triggered it...  My weight yoyo's, I swell, bloat and flatulence like nothing else!!  And of course all of the above mentioned by Sadie and other things to...  Be patient with yourself and don't stress, it makes symptoms worse...  Bless ya..take care..x
    • kaz_40
      kaz_40 lady40s

      Posted

      I just wish I could have a new body? a supper slim one would be great. I have IBS today rolleyes when ever Im upset or stressed it starts. Ive only had IBS since having fibro. Their are 100 different symptoms to fibro fibro fog has symptoms of its own. I think it was a cancer scare that triggered my fibro. Also my best friend died sudenly that was a huge shock. all we can do is take a day at a time get through that day as best we can. take care
    • deb97936
      deb97936 kaz_40

      Posted

      Oh bless you Kaz...    I sympathise with you  I lost a very dear friend last Xmas...  She had Rhuematoid and Fibro..  first time I have ever broken down and cried for over a month.  Although I had only known her for the approx 4.5yrs...  we had that friend connection.  

       

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