Could this be IBD?

Posted , 2 users are following.

looking for some reassurance about my upcoming appointment and what they may say.

about 10 months ago i went to the doctor complaining of various symptoms such as mucous in my stool, abdominal pain on my left upper side, ect...

I had blood tests and stool tests done, which came back normal and was told I may have IBS. I was prescribed peppermint tablets, which didn't really help, and my symptoms weren't too severe so i didn't worry.

About 2 months ago i was prescribed NSAIDs for an unrelated condition, along with medication to protect my stomach to prevent ulcers. Within 2 doses i was having bad stomach cramps, and booked an emergency GP appointment. The GP noticed abdominal tenderness, a borderline fever, and was concerned, so sent me to the SAU. My bloods cane back normal, with borderline high white blood cell levels. The next day i was given an ultrasound which was normal, and a faecal calprotectin test, which came back inconclusive (52 ug/g?? i think), so they ordered a repeat in 6 weeks

it took me about a month to recover from this, with severe nausea and loss of appetite, diarrhea, extreme fatigue (I was exhausted however much i slept). I was really affected by whatever it was.

I had a flexi sigmoidoscopy for suspected IBD which i found very painful, so they had to stop before they got past my rectum, but they found inflammation that i have been told is proctitis. They didn't manage to get to the area where I actually have the pain, which is what I am worried about.

I had the follow up calprotectin test, which came back as 166 (ug/g???), which I am told is abnormal. I am still having some pain on my left side.

I am seeing a gastroenterologist in a few weeks, but I want to know what to expect - will i need another endoscopy? Has anyone else had a similar experience? Does this sound like IBD?

thanks 😃

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4 Replies

  • Posted

    HI Lottie,

    It sounds to me as it could be IBD. you've done the worst bit with the sigmioscopy. i am having one on SUNDAY? I've suffered for years with what the doctor said was IBS but diagnosed with Ulcerative colitis in 2016. i was so relieved to have a diagnostic. i was put on Mesalazine but this seems to have stopped working. Let's see what they find on Sunday. i suffer from rectal bleeding, exhaustion, nausea and weakness in my limbs.dont worry, there will be some medication for you to make you feel so good, you'll think it's all gone. Go on the crohns and colitis website. they are very helpful and dont worry about the gastro appointment. Write down every questions you have before hand. let me know how you get on. all the best.

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    • Posted

      thank you so much! I think the thing I am most worried about is the possibility needing a second endoscopy to view to extent of the inflammation as they didn't manage to get very far at all last time. I'm only 17, and I was reluctant to go through it the first time, and I found it very traumatic. I just hope that they will allow me to have general anesthetic if I have to have another!

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    • Posted

      if they have to do a colonoscopy, you will be sedated and you wont remember a thing afterwards. The worse thing is to drink that awful stuff the night before. Believe me, i was terrified beforehand but the staff were lovely and i didn't feel a thing. Do say you are nervous and frightened. Try not to worry.

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  • Posted

    HI Lottie,

    It sounds to me as it could be IBD. you've done the worst bit with the sigmioscopy. i am having one on SUNDAY? I've suffered for years with what the doctor said was IBS but diagnosed with Ulcerative colitis in 2016. i was so relieved to have a diagnostic. i was put on Mesalazine but this seems to have stopped working. Let's see what they find on Sunday. i suffer from rectal bleeding, exhaustion, nausea and weakness in my limbs.dont worry, there will be some medication for you to make you feel so good, you'll think it's all gone. Go on the crohns and colitis website. they are very helpful and dont worry about the gastro appointment. Write down every questions you have before hand. let me know how you get on. all the best.

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