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Maybe at the start of a discussion or when joining a discussion it might be a good idea to state which country your in ,as some of the inhalers or other medication /treatment is under a different name ,,, or is just me that gets confused ,,  🤷???🤦🏼???🙇???🙆🏼

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  • Posted

    USA, Spiriva HandiHaler 24 hr treatment 3rd day in seems to work real well, just a few issue's with sleeping but just might be COPD causing that.

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    • Posted

      Hi john USA,I've been on spireva for some years now ,it works well for me ,I think when trying new medication it takes some time for our body to adjust ,I've been started on montelukast and that's upset my sleep rhythm a bit ,but I feel confident that I'll get used to it soon ,and the benefits from it are great ,good luck 

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  • Posted

    Nanny that is such a great idea and yes treatments are sometimes different. Ok I am Ellen from Canada.mi however have learned from this forum tha an injection is called a jab. Hahaha
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    • Posted

      Haha hi Ellen I'm in UK ,and yes it's sometimes called a jab as in flu jab ,my daughter ,son in law and granddaughter have just booked a holiday to Canada touring in a Winibago???? No idea why I've told you that piece of useless imformation haha, 

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    • Posted

      Ellen from Canada. You know you made my night. Was giggling when you spoke about your family are coming to Canada. You know we all need a laugh. We all need support and information. A laugh and giggle is most likely the very best medicine. Thankyou for the giggle. Made me think we truly need each other in good times and bad times, 
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  • Posted

    Ok Nanny I am from Canada. John U.S.A. I love this change. Right down to treatments. Health insurance. This will enlighten all of us. Thankyou for Tia suggestion! Now what country are you living in? Hahahaha 
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  • Posted

    Hi Nanny,  could not agree more. 

    There are times it gets very confusing. I too have been on Spiriva for years but I take it FRST thing in the morning. Dont think it can be that causing the sleep problem, I am 73 and find that I no longer sleep more than 5 hours each night. Think this just an age thing.?

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    • Posted

      Gudday there Robert,I take spireva in the morning so I agree it can't be that's causing the insomnia,,,,Ihad a fit bit  for xmas and the app also shows your sleep pattern i.e.; deep sleep 5hours light sleep 2hours restful 1 hour etc etc ( just an example ) ,,the gp told me to try to be in bed and asleep for 11pm as an hour before midnight is better than two after ,,, I also put down the iPad and turn off the tv for 11pm ,good night /morning haha 💤💤💤

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    • Posted

      Hi Nanny.

      Good to hear. I also think that we need less sleep as get older.

      Nice to see that you do turn off all the gadgets. That seems a big problem with the kids at the moment. I only leave the mobile on, but its set not to recieve call after 10.30 pm untill 7.00am UNLESS they are emergence calls. This great country has extreame weather conditions and we can get warnings by phone IF they could have an effect on our own locations.( mainly bush fire warnings)

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  • Posted

    Hi Nanny.  I have lived in Lakewood, Colorado USA for 75 years and PROUD of it...wouldn't want to live anywhere else!  I am on Spiriva, Symbicort, and oxygen during the night and have the most awesome GP and Pulmonary Specialist that exists!!  Great idea for us all to state where we live and meds!

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    • Posted

      Sounds like you live in an awesome place ,,,,I'm pleased you have great care ,,,I am lucky enough to be taken great care of by our wonderful nhs here in UK ,

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    • Posted

      Hi Sandy! It's Ellen from Canada. I am curious. I have just started oxygen to use only on excertion. I don't use it at night but sometimes in the day. Stairs, housework. Was wondering why you just use it at night? I am new to this. 

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    • Posted

      Hi Ellen!  Thank you for your question.  Your oxygen level goes down when you are asleep.  If I am quite active during the day, I feel great and my oxygen level is good!  However, if I am having a lazy day and just sitting and reading or watching TV or on the computer a LOT, I can feel that my oxy level is not as good.  My GP had me do an "in-home" all night test, 2 nights in a row, hooked up to equipment, first WITH my oxygen and 2nd night WITHOUT my oxygen.  Results of that test showed that I needed to bump my liters up 1/2 percent.  I try to walk 2 miles a day and that is also beneficial.  Have you had your oxy level tested while you are sleeping?  Oh, sometimes if I am feeling tired in the afternoon and take a nap, I will turn my oxy on.

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    • Posted

      Thankyou Sandy for your reply! That answers my question. At night I use a CPAC machine the keeps my airways open. Now oxygen only on excertion. I am shocked that you can walk 2 miles a day!!!! Wow wish I could. My walk test was what determined oxygen. I could not walk down my driveway without getting slightly out of breath. I am just trying to adjust to these changes in my life. Just so much to digest. Keep in touch! 
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