Covid for 4 weeks & still bed ridden. Anyone else had prolonged severe illness without hospitalization

That's great lulu that's the best thing to do get away for a few days stuff the people who don't believe or care I know it would be different if they had it but I wouldn't even wish that on them just concentrate on yourself I'm getting blips but hoping that they are few and far between Gary

Have a nice time away Lulu.

Jim.

Steph,

Are you better? What I mean have the flu/cold symptoms gone?

If they have how long did they last?

Jim.

Hi Steph

I think we're all getting cold/flu symptoms. Hope this means its on the way out.

Hope work's going ok for you

Enjoy your weekend x

(everyone is on page 69)

Welcome Kimberley,

Unfortunately, you've joined our merry cohort of "long haulers", as we've now been named.

Everyone on here, as you'll have read, have been suffering since April and before.

Hope your having a good day.

Jim.

Hi Kimberley , as Jim mentioned below welcome to our group of long haulers . We've been supporting each other in these dark times of uncertainty. Your symptoms are similar to most of us and like you mention the GP's haven't been very supportive. I've only gone back to work after 12 weeks on a phased return. Please don't rush back, make sure you're well enough. This virus tricks you into thinking you're well one minute then hits you with something else. It's like a bag of tricks you never know where you are !! Take care and look after yourself.

Hi Jim, thanks for letting me know how you're feeling I hope we start to feel better soon.

Welcome Kimberley!

Don't give up hope.

It took me till week 12 to start to feel better.

I am now week 15 and still more tired than previously but much better than 2/3 weeks ago.

Hi Kimberly welcome to the group we've all had similar experience to you. I didn't get collapsed lung tho, but everything else u mentioned was me. I felt ill from 27th march and only really started feeling alot more better after 10 weeks started going out slowly walking as puffed out after 10mins then slowly it got better. I'm now back to work phased in and it's week15 so hang in there we all have good days and bad as you can read 💜

I'm so glad the thread has helped you!

It is a lonely illness.

I got it mid march and I still have days where for no apparent reason my chest tightens up and my lungs seem to start over producing mucous.

This illness has affected our family so badly we are seriously considering moving countries😂.

Morning res just moved to this page hope you are good today Gary

Morning Gary, Jim, Res, everyone!

Hope everyone finds us on page 71! Thanks for moving us on Gary!

What happened that you fained Jim? Glad you are ok and think the 7 day ECG will help put your mind at rest.

Gary glad you have some time off now and happy 18th anniversary unbloodybelievable who would have thought it would take this long. I'm pretty much with you am nearly there until I try and do something too much and then know I am still not right. Res I am same you know it hasn't gone away you know you are still going to have bad days with the chest and mucus - it is like it builds up every few days - very depressing but we have all made loads of progress so just need to press on.

Have a good day everyone.

Lx

Morning lulu I know been a while just got a few issues to deal with how long do you think the pain in the lungs will last roughly I'm still going to walk but I don't want to push it feel all the tension when I do I was shattered this morning I'm on call from home today so resting up its a long long road as the song goes Gary

Do you know what Gary I think I've definitely been overdoing it with the really long hilly walks - did 4 miles yesterday and climed equivalent of about 15 flights of stairs - it makes my chest and throat tight - I reckon better of just doing a couple of miles and not pushing it. I am not getting pain in lungs so much these days can sometimes feel like mucus stuck in my right lung which was worst affected. I reckon we are looking at a good 6 months - remember the respiratory guy told me 4>6 months recovery so we are on track for that but things are getting better now so hopefully we are on the home stretch. We must stay positive - it is important.

I'm on calls and laying on sofa working - stops me rushing around which is good!

Lx

Yes I agree with you on that lulu end of September should be fine what a long ride that would have been I have been over doing it so glad on call and weekend is here have a good day and charge them batteries Gary

Hi everyone

18 weeks, I think I'll stop counting now. My first time on a bus for 4 months. Just a short journey. I've found that wearing mask in an enclosed space, like the bus or shopping centre, makes my chest and throat tight. Must be the breathing, hope that improves.

Hope everyone has relaxing weekend

Are you ok, Jim, do you know why you fainted?

Hi Joanne yes it's a long long road to recovery bloody nightmare for us can remember like everyone else I will be fine in a couple of weeks 18 gone and still trying to get there we all are getting better but what a long haul hoping everyone has a good weekend gary

I'm the same Jo, I've been wearing mask to visit my mum for 30 mins and I struggle by the end. Good news though you were out and about on bus it is all about getting some normality back into our lives even though life is far from normal at the moment and seems unlikely it will be any time soon.

Hope you have a lovely weekend and things continue to improve for all of us.

Lx

Thanks Lulu,

I'd only worn my mask for a short time before for going into shops. I'll have to be quick then if I go supermarket shopping!

Enjoy your weekend x

Hi all finally let me in. I'm on week 18 today as well, I've been working this week and it's been ok. Been out with one of our clients for a walk each day along the prom so got my steps in having to wear the mask for 7 hours is hard going especially when your showering clients and its hot and steamy but getting use to it now, I'm back on 20hrs a week from next week so I'll see how I do. Sorry to hear you had a faint jim glad your OK tho just take it easy, Gary and lulu your back at work as well so we're all doing well

I have suspected c19 on sick notes as well as no testing then only in the hospital. I'm off all weekend, so can rest up now. Hope you all enjoy your weekend 😊😊

Hi lulu I went on a cross running in park for 10 mins and it made my chest hurt then had to walk up a steep hill home and had to lie down for a hour on Sunday when I had my granddaughter I'm going to stick to walking.

Glad you found us Susan! Sounds like you are doing really well - it must be tough doing 7 hours in mask. Amazing job you are doing I was chatting to the girls who look after my mum and they are all really upbeat and positive given they are working in such difficult circumstances - I am so grateful that they are kind and caring. My work is sedentary so I have to make sure I take breaks and try and go for a long walk at lunch time but it also gives me a chance to recharge physically as I tend to overdo it when not working so it is a good excuse to sit more and not be as active and give body a chance to recover.

Sounds like most of us had suspected C19 on our sick notes as you say there was no testing available back in March (seems like a lifetime ago!). Glad you can rest this weekend and recharge batteries.

Have a lovely weekend 😊

Lx

There is no way I could run at moment - I used to do quite a bit of running but even doing my hilly walks chest gets tight especially if it is hot. I do this thing where I gulp in air and sometimes it feels tight - like not filling lungs - anyone else do this? I am not sure if it is becoming an anxiety thing/habit. If I am feeling down I do start to wonder if lungs will fully recover - it is hard to imagine what went on in body to cause so many problems for such a long time.

Lx

Morning lulu yes I'm the same at times I do a deep breath and feels its not filling the lungs properly. I'm getting more confident now when I'm out on my own I go into shops on my own now which I wasn't doing I brought a couple tops after work yesterday. It feels better now that people are all wearing masks should had happened back in March. I still get very tired in evenings I'm doing my first 3-9 next week so I'll see how that goes hope I don't fall asleep 😅 I'm not doing sleep--ins for a while tho don't think i could be responsible for 5 clients on my own all night yet but hopefully it wont be to long. Hi everyone hope your all well today think weather not good over weekend 😔

Morning Lulu and everyone 👋👋 This is cool I can actually write without freezing and lag 👍😀

Thanks for moving the page on Gary.

It was week 18 for me yesterday. I never thought Id still be here after starting in cold dark March and now we are here almost in August.

I am definitely stronger though and have had moments this week of being almost back to normal.

I found out yesterday from a blood test that my vitamin D levels are low. This amazed me as I've been lying in the sun constantly and have the best tan I've had in 15 years. The levels should be between 70 - 200 and mine was 66.2.

The nurse who called me said its not terrible but despite all my sunbathing it shows that my levels must have been very low way back in March which might explain why I had this illness so badly. I only got the blood test because I asked my surgery to think outside the box and test me for something out of desperation. Seems to me it should be a basic requirement of all blood tests theses days after such a respiratory based pandemic.

She told me I have to take 800 units of good quality vitamin D for two months and make sure I take it every day between October and April every year from now on.

Lulu sorry I didn't answer you the other day (forum wasn't responding). You asked if I'm back to work. Unfortunately not. I work in decorating and property maintenance - lots of up and down ladders, physical work and DUST. Not sure when I can resume - if ever.

How is your throat lump and nasal stuff now? How's it going with the Sterimar?

Let's hope we are all on the final lap of this damned nonsense. All the best to everyone.

Stuart

Morning Stuart glad to see that you are improving getting there myself but still getting symptoms but like the rest of us dealing with them and praying for that day where can finally say thank God they are gone Gary

Hi Gary, same here. I've had four good days this week and I wish I could guarantee it was going to continue like that but this thing has a real habit of disappointing us all. Glad to hear you are getting there, that's good news, long may it continue. Take care Gary.

Morning Susan

Glad I am not alone - I think some of it is anxiety and I try not to make a habit of doing it but sometimes if I can't fill lungs once I keep doing it just to check I can breathe! It seems to be worse when the weather is very hot and humid. Agree re mask wearing but still good now enforced as should help as we go into autumn hopefully people will get used to it. The problem is people who have not been affected by this or had a family member affected think it is all a fuss about nothing - little do they know. We have friends like this but I have given up trying to explain it is not mild flu or die there is a whole middle ground - like being really sick for months like us.

Good luck with longer hours next week and yes build up slowly to doing all night.

Take care, hope you enjoy your day, we too have rain today.

Lx

Hi Stuart

Glad we have sorted out your lagging problems!! I was tested for Vit D months ago amazing your GP didn't do that earlier it was highly publicised that low levels of Vit D could be a contributory factor - having said that mine were fine so not sure it would have made much difference to your outcome. I am still taking supplements though - anything that might help me and keep me healthy bring it on!

Am sure you will get back to work but obviously you need lungs to be fully recovered and back to full fitness - it must be so hard when your job requires you to be physically fit luckily for me I look at a PC all day don't need to be fit to do that!

Throat much better since the Lansoprazole and Gaviscon but still get the mucus lump feeling, in fact had it badly in the night. Am waiting for the Sterimar to arrive ordered online a couple of days ago.

Was just looking at the Covid Symptom checker App - it has really progressed since back in March/April - I used to complete every day but have stopped but can see how useful it is to keep track of new cases/symptoms etc. so anyone not doing this or have fallen by the wayside take a look it is really helpful. I notice that they now mention the recovery time can be much longer and also mentions gut problems - I am pretty certain I did not have reflux problems before but guess what? I have now!!

Overall seems things are improving for all of us - a way to go still but am hopeful once you get to a certain point of recovery things will speed up (ever the optimist 🙄😂) Surely that has to be a possibility?

Enjoy your day, so glad you are having more better days, such good news.

I was on a call from work found out 4 people came down with C19 - only me who had it badly (bloody typical) but a couple were quite ill for 2/3 weeks but didn't get respiratory problems.

Lx

Stuart, I'm being moderated. Think I used bl**dy word ..slap wrist for me! Hope posts shortly as it was LONG reply!!

Hi Gary

Hope you are ok and can enjoy a rest this weekend - take it easy,

Just said to Stuart in my post which is being moderated check out the Covid 19 Symptom checker and if not already report on there, I did originally but have stopped but they are collecting so much data now which will help keep track of a spikes in specific areas, symptoms etc. It mentions long recovery on there now and also gut problems which is probably why many of us, who didn't have them before, have developed reflux issues now . Anyway check it out when you get a chance.

Have a relaxing day.

Lx

Hi lulu I will do I'm getting the tight chest again I know the doctor at a and e gave me omeprazole obviously lots of reflux goes with this but I think the tension headaches and earaches may go with the tight chest and it may be mucus it has eased the tension but if I do over do it I feel it with the pain in the lungs I never suffered badly with the mucus but it won't go away I will check it out now thank you I checked it out lulu and kept answering told me to get in touch with my gp then I answered the questions and said I still have the symptoms and it told me to get tested then I answered I have both of them negative and then said self isolate etc basically get medical help Gary

Hahaha, okay naughty Lulu 😂

What's the symptoms checker on - 111?

Hi Gary, just wondering when you get the tight chest, is it after eating by any chance?

No because I had it first thing this morning Stuart then went for a walk it and it eased same as tension did then it comes back but I'm getting little pains in my back with it lulu said that is the lungs healing Gary

OK Gary, I just wondered as that is what happens to me after eating. I find walking helps too. Hope you feel better.

I think the mucus will slowly clear Gary - I read it takes the body a long while to clear it.

The Covid-19 symptom checker is not going to help us personally or tell us anything we don't know but it is Kings College collecting data and they are improving the App all the time and report back to Government on figures and numbers of people testing positive and people who are still reporting symptoms so it is a good way to let people know what is going on and help them keep track on the virus - the more people who complete it the better.

We do still have symptoms but no need for us to self isolate after all this time!

Lx

That's is what specialist told me so hopefully that is right - my pain in lungs is less now but still get occasionally.

Lx

I may have done the wrong one I typed in covid 19 symptom checker probably not the same one as you lulu if it is the mucus causing the other symptoms maybe got them for a little while as well then Gary

OK thanks just time I suppose carry on as normal and it will get better Gary

Lol yep could think of a lot worse words to use relating to this whole experience!!

Dowload the C-19 Symptom checker on phone (it has been around for months) - tracks data and idea is that you report daily even if you are well so they can collect and analyse symptoms, how long they last etc., new symptoms etc. I still fill it in saying I have mild breathlessness, sore throat and anything else I have that day! There is a space for other information and I put I am recovering since March. I notice now they are mentioning long recovery so presumably other people are completing it who have been ill for months. Trouble is most people (me included) complete for a while then stop but after taking a look at it this morning I am going to try and remember to complete every day as we are providing essential information to the ongoing research into this virus.

Lx

Hi Gary I still at times get the pain in shoulders and breathing and chest feel funny, think it's a time thing still for us all but I get less now.

Thanks Susan I appreciate it will take time just still so annoying that I look OK and feel like sugar I will just have to crack on with it Gary

Hi Gary

I'm back to the tight chest and sore back after my busy? day yesterday, going out for an hour or so on bus to shops. Ridiculous, isn't it, how long it's been and we should be able to do normal things by now. Oh well, as you say, it's just a waiting game.

Apart from that I don't feel too bad, but annoying that we can't do normal things

Enjoy your day

Hi Joanne I know it's annoying but could be worse we could be 6 weeks back be annoyed then just got to live with it hope we come out the other side and are still here and hopefully normal deal with what we got to and not get p****d off with everyone who says you look OK Gary

Hi Jo

It is so frustrating and also the not knowing how you are going to feel each day causes anxiety - I get a good idea by around 11.00 how the day will be but it can sometimes take either a downturn or an upturn you just never know what is going to happen next with this!!

It is so hard when someone asks how you are - if you say better - that is it ...everyone assumes you are now fine so I normally say am making slow progress but still have a way to go! But as you say Gary if you look ok people assume you are. There has been a lot of talk about hidden disabilities relating to mask wearing and does make you realise we can all jump to conclusions about people and their health without knowing all the facts.

What a miserable day weather wise. We have a wasp nest up our chimney in the living room just to liven things up 🙄

Lx

That's true, Gary you're right. I definitely wouldn't want to go through it again. We're lucky to have got this far,we've just got to be patient

Hi Lulu

Yes it's hard to plan ahead as we don't know how we're going to feel each day, or as you say, each minute. But the bad days are getting less bad and we've got more idea how to deal with our symptoms. I've had a fairly restful day today, and the steaming and walking does help with clearing the chest.

Oh dear, wasp nest, that's not good. We had one in the loft a couple of years ago. We had to get the council to come and remove it. He went up and sprayed powder into the loft, and lots of angry wasps came flying out from the roof. Was quite amusing to watch!

Good luck 😃

Morning everyone looks like a nice day today watch out for the wasps if they are still there lol will be steaming the chest then walking round the park a few times loosen up going to friends later watch the football last games today hope you all have a good day Gary

Morning all,

Hope everyone OK today and not suffering to much does anyone get cold like symptoms some days and sore eyes? Maybe it's allergies. Better day here of to a social distant 1st birthday get to geather in the park hopefully later if it dosnt rain ☔☔

Morning Susan yes I think lots of us get traffic light eyes red ones I get them and sleep with them in the morning I never suffered with hay fever or anything like that before so it must be part and parcel of the little sugar just been for a walk ive got sudafed night and day for the mucus has anyone else tried it Gary

I use beconase spray up my nose and eye drops it does seem to be helping and the lansoprazole, I feel I'm more sensitive to smells, sprays etc now.

Morning Guys,

The sun is out here and looks like it may be a pleasant day weather wise.

I've been prescribed Avamys nasal spray, which I've personally found better than Beconase.

A couple of years ago I had my eyes lasered and it caused my eyes to dry during sleep. Since then I've use Clinitas Hydrate gel. That might help with your eyes.

As you all know I'm not a doctor so it's not medical advice purely things that have helped me.

Hope everyone has a good day.

Thanks Jim I'll look them up. How r u now?

Hi Susan,

The fainting was due to over doing the breathing exercises. All my fault.

I've been fortunate I've had a few good days.

I'm taking it easy with the walks, gradually increasing the distance. This morning I did 2k steps in 20 minutes and didn't get out of breath.

I still have problems with mucus, nasal blocking, fatigue when I over do things.

I haven't had a palpitation since the ECG was fitted! Hey ho.

My GP suggested stopping the mucodyne and inhaler until I see the consultant and have a scan, so I have a baseline to work from.

I concur with the spray, smells etc and sensitivity. Prior to this I never had asthma, hayfever or any sensitivity at all.

How are you?

Jim.

Morning everyone!

Waspgate continues what a pain in the a**** they have set up home behind the fireplace so no-one can reach them - on second lot of pest control trying to sort it!

Really pleased you are doing well Jim - things are definitely looking up for you and you will just get better and better over next few weeks. Take the walking easy and just increase slowly on steps and so good you are not getting breathless. Am down to two Mucodyne a day and thinking of cutting down to one in the evening.

I get the cold symptoms quite regularly Susan but then they go again - think worse when it is very warm and humid. It seems we are just more sensitive to everything but reckon that will go off with time. Enjoy the birthday party, that sounds fun and weather looking pretty good at moment.

We went out last night to friends and had a takeaway - it was the first night in over 18 weeks that I felt completely "normal" - was SO SO good. I felt well, I didn't feel exhausted, I felt happy. Drank a bit but feel fine this morning. Just done a hilly walk - we live at the top of the biggest hill so it's good for fitness. I could breathe fine and just a bit of mucus in throat but nothing too bad. My throat feels so much better, nose and head doesn't feel like it is going to explode - maybe, just maybe, 18 is the magic number after all 🤞🤞

Hope all ok with you Gary and you are feeling well today and you've recharged your batteries.

Have a lovely day everyone.

Lx

Hi lulu I've still got some issues tight chest now and again the tension headaches as the gp called them have eased so has the earaches but both still there I feel the throat has improved a lot get it when I talk a lot tension on my neck and shoulder but doesn't hurt still getting little stabs in the back on the odd occasion but feel a lot better even with them symptoms I think you were right about 6 months it will probably all be better Gary

Your doing well Gary. Keep going.

Improving Jim and apart from the fainting I hope you are too keep doing the walking it will help you a lot I don't dread the thought of going to work at night so I know I'm getting somewhere this time in a couple of weeks you will feel a lot better too Jim enjoy the rest of your day Gary

Cheers Gary.

Yep I noticed walking up hill I had small stabs of pain in upper back but nothing compared with before. Also noticed after I exercise I get more mucus but I think that is because the lungs/throat are still healing and the mucus is produced to protect them so as they heal body will produce less. Think the tight chest is where the mucus builds up sometimes over a few days and then gradually it is cleared - as mentioned before specialist said it is a big task for your body to rid itself of all the mucus - normally there is only minimal amount to lubricate throat/lungs etc. but after this virus because of inflammation the body just over produces it to protect itself.

Sort of makes sense to me but wish could just turn it off now - I am all mucused out!

Off to swat a few more wasps.

Lx

Yes that makes sense to me lulu time it is then hopefully a few more weeks just got to get on with it you be careful you don't get stung Gary

Hi jim it's sounds like your really improving I'm so pleased it mentally helps you as well just take it easy when you need to that's what I do. I'm OK going back to 20hrs next week at work but mostly doing 9-4 and walking with a client so get fresh air still get tired but better in myself now which is a relief thanks for asking. 🙏

That's good lulu hopefully a few more weeks and we're all be alot better, it really has been a horrible virus never felt like that in all my life especially the difficult breathing but at lest we're all here thank goodness. What a pain having wasp we had a mouse problem just before Xmas and found one I think cat brought in just before he died as I was ill didn't see it til it was rotting lovely not 🐭🐭🐭

Hi Gary

Glad your feeling alot better as well its good getting back to work it takes your mind of it all and makes u feel a bit normal again. I'm not going for a 10 tomorrow still 9 1/2 for me as still have the fatigue at nights but getting better.

You and me both Susan been out tonight and had a good night but still feeling sugar but a lot better than a few weeks ago so maybe 9and a half would be good for me as well Gary

Morning guys,

What a miserable day it is here. The weather is horrid. Constant rain since six o'clock and hadn't abated since.

Looks like it is going to rain all day.

Not much better here Jim I'm off work today got a course tomorrow so nice and easy two days how you feeling today Jim better than the weather I hope Gary

Morning my pal,

Smashing news you've two easy days. I quiet like a course or three at work, makes the week go quickly and its easy.

I'm okay. Thank you Gary.

How are you?

Much as I've been fir the past few days, mucus on the chest and intermittent nose blocking.

I really want to go for a walk but the rain is heavy enough to soak you through to the bone in 5 minutes flat.

I can't believe I am bothered by it raining.

52 years old and never been bothered by it before. I've turned nesh after all this. lol.

It might ease off soon I know what you mean though once you get into a rhythm you want to keep it up Jim I think like you we will have the mucus for a while yet I will stick with the sudafed for a few days and steam walking really helps as well just don't over do it keep improving that's the main thing Gary

Totally agree Gary.

I've just got back from a walk. I thought bugger it, put on my pal's huge overcoat and did my new walk of 2,000 steps.

Just as I got back the rain stopped.

You couldn't write our luck. lol.

Thanks Gary! How are you today?

Hi res still getting there I just now have a bit of a tight chest slight tension round the head ears and neck and shoulder and heavy hands where the tingling has eased I'm doing most normal things and like everyone hoping for it all to go in the foreseeable future hopefully your there now Gary

Yeah, the on and off mucous/tight chest is really annoying me at this point.

I had a good road test for my recovery this weekend as my mum and her friend came down to visit and my God...I am way off normal.

Two days of dinners out, socialising and shopping and I was DEAD...absolutely flat on my back yesterday, couldn't move exhausted. Actually don't know how I held it together for the 1 day visit. Kinda depressing. I've been lucky in that I'm self employed and have been very much able to pace all my activity so this was the first time where I had to go along with other schedules and not my own pace and it's scary how little energy I have.

Still very much recovering today.

Going to Paris this week and rather worried now about how much I can enjoy it. At least is with my partner and child so I can tell them if I get tired and rest.

Afternoon everyone!

Brilliant news Gary and Susan on 9.5 - such good progress going on now! I am going for 93/4!! I am not a 10 but not too far off now! Still have some mucus but think more in back of throat and linked to the reflux issue, bit of tinnitus but breathing has really improved over the last week/10 days. I feel so much better in myself. Am SO happy about that and I was worried would be left with post virus fatigue at one point as was so lacking in energy and that would have been one of my worst nightmares to be exhausted forever more but that has really improved too and energy levels nearly back to normal.

Really glad you got your walk in Jim - I was out just as it started raining but did nearly 4 miles - amazing that you are now on 2000 steps from where you were a few weeks ago. Do you feel you are on the mend now?? I really hope so as I know you, like the rest of us, have been in such a bad place but from what you say you really seem to be improving now 🤞🤞

Hope course goes well Gary and glad it gives you a couple of easy work days.

How is everyone else doing? Be really interested to hear.

Lx

Sorry it's still lingering Gary.

I'm not fully myself yet either. energy levels are not what they were and the tight chest is on and off. So much improved though. Hopefully get there in the end!

I know what you mean res about the lingering it's worst than a magnet to shake off hopefully soon be there hope you can have a great time in France and it let's you enjoy your holiday Gary

Hi Res

Definitely that is the real test when you have to fit in with others - was the same the week we spent in Suffolk - I really struggled and came back feeling worse than before I went. Have another week booked in 3 weeks time so am really hoping able to enjoy it more as feel so much better than I did at beginning of July.

The mucus is a big problem. I find the walking gets it moving and then can have a good cough up but it is gradually getting less and less so seems to be just a matter of time like all the other symptoms.

Have a great time in Paris and as you say being able to pace yourself makes all the difference.

Lx

Thanks Gary. Hopefully 🤞

Hope you're able to enjoy your next trip Lulu.

Yeah, I'm getting sick of the mucous. For me it descends without any obvious cause anytime/ anywhere, then disappears as mysteriously.

On top of everything have a bout of cystitis 🙄. Fun times!

Hi Lulu,

Hope your well and still improving.

Paris hey! That'll be lovely.

I am sure I have improved, as I feel better in myself and a couple of friends have noticed, which is more tangible.

Regarding walking, I'm attempting to very gradually build up in the vain hope I don't relapse.

Safe trip.

Jim.

Hi everyone 😃

Well done on those 9 1/2 and 3/4

Really gives hope to us

I'm staying on 8 1/2 for now as last few days haven't been as good, tight chest, blocked nose, sore stomach and legs, a bit fed up with it after all of this time, but keeping positive, and I have been quite active. Managed a walk between the showers and happy with that, chest seems to be clearing.

Trips away sound good Res and Lulu, have a great time

Poor you cystitis makes you feel really rough. Agree there is little rhyme nor reason to the mucus and the varying amounts of it. Mine has decreased a lot in last couple of weeks since been taking Lansoprazole.

Lx

Hi Jo

Which week are you on roughly? Gary I am are into our 18th - just wondering if you are a week or two behind as I have only really improved a lot over last couple of weeks. I always feel better when the weather cooler like today so will be interesting to see how feel at the end of week when it is expected to be 25 degrees again.

I find the walking definitely helps clear chest - in fact I have been coughing quite a bit today after walk but my chest feels clear at last and the cough seems to be more in the throat which I don't mind so much.

Res is the lucky one off to Paris and I'm off to Suffolk again in 3 weeks time - hoping we have more sunshine than last time. Am going with my youngest son so be great to spend some time with him.

Hope things pick up again for you soon Jo, I know how frustrating it is - I had a big low a couple of weeks ago but things feel more stable now so pretty convinced it is just time. I really pray there are no more relapses to come 🙏

Lx

Hi Lulu

Thanks, I'm the same as you and Gary, 18 weeks. I felt a lot better last week and probably did too much. It was probably wearing the mask for over an hour that gave me the tight chest last week, and I think going down a fairly steep hill yesterday made my stomach sore. I think I've got inflammation there so I have to be careful what I do. I can manage slight uphill road walking but maybe the grass in the park was a bit bumpy, I don't know.

Anyway it does seem to be up and down still, I'll have to try not to do too much.

Suffolk sounds lovely, it'll be good to be with your son 😃

Hi Lulu and everyone,

I'm on week 19 (does it even matter anymore what week it is??) Going for a 9 as some days are really good and some days less. Saturday felt pretty normal, people told me i looked a lot better (to be fair it was also the first time i bothered to wear make up so it might have just been that!) but then Sunday got breathless and a bit achy and today have got pressured tingling down the side of my forehead and face on one side, also achy chest. Did go eat out with the family today which was nice but think I'm not used to eating food that's a bit rich so tummy is a bit jumpy now. Not sleeping great and feeling a bit edgy which is probably linked. Feel like Saturdays are always my good days and early in the week less good...

Weight is going up still so that's good, don't remember ever being so happy to be putting on weight 😅

A lot of you sound like you're doing really well. We will get there!

Yes lows definitely seems linked to when you overdo it and I would struggle with a mask for over an hour - that is tough. Hopefully you will pick up again and things will improve again quite quickly for you.

Just watched BBC news and the pilot who was in hospital in Vietnam critically ill speaking about the horror of C19 - think it is good to get the message out there to stop people becoming complacent and let people know what can happen if you become infected. I know an extreme case but he is fairly young and must have passed his medical to be a pilot so presumably fit.

Lx

No really don't think it does matter any more! I spose just gives some hope to those who are maybe a week or two behind and having a bad time that things seem to improve as the weeks progress.

Funny you mention which days you feel better, when we were in the thick of this and really sick I always felt really bad on a Friday afternoon/eve and I think, for me, it was because I felt nervous that the GP was shut over the weekend! Maybe it is the thought of a busy week stretching out ahead and the weekends are a bit more chilled for you - just a thought! or maybe you are more tired after the weekend if been out socialising more.

Good news about weight - I know I thoroughly enjoyed putting the stone I lost back on but now don't want to put on any more so it is a balancing act!

Hope your sleep improves soon as that always seems to make a huge difference to how we all cope and feel.

Take care, hope things settle down again soon.

Lx

Hi everyone, glad to hear some positive news, it gives us hope that we will all get better eventually. My chest is still tight and ears still poppy but tiredness is a lot better. Managing to do more around the house and outside. Think Jim and I will be week 17 this week so hopefully things can only get better.

Hi jim all, you are funny Jim made me laugh it could only happen to you. Had a lovely walk over the hills and did some blackberry picking before it rained yesterday. Meeting my daughter today for a walk along the seafront my favourite walk and looking in charity shops lol, eyes still playing up just wonder if it's the mask maybe it irritates my eyes or its the medication I'm on? Hope your all feeling OK today.

Keep going steph your get there think I'm on week 18.

Hi res hope you feel better soon cystitis is horrible I had that in Feb it makes u feel ill, I got antibiotics. Enjoy Paris lovely city 💕

Well done lulu 9 3/4 your def getting there I'm probably the same but still getting odd headache, cold like symptoms, buzzing ears, mucas very rare but still there at times and the fatigue. Enjoy your time in Suffolk with your son its great being able to spend time with the family now.

Thanks Susan!

Yes, am pretty sure I got covid in Paris in March so this is a kind of pilgrimage 🤣.

Hi Susan

Glad you are doing well and enjoying seeing daughter and those lovely beach walks! I still have tinnitus and feel like have a head cold on and off and a but of mucus so not completely better but nearly there just hope these last symptoms go quickly and then leave us alone to get on with life!

Enjoy your day.

Lx

Things will get better just these last symptoms hanging around. Such good news tiredness is better I feel same. Just wonder what causes the ear issues a few of us have must be linked to the mucus and throat problems would think.

Hope work going ok for you.

Lx

Hi Steph,

Yes, it's week 17 as from Thursday.

Hooe your improving.

Hi Susan,

Sounds like you had a lovely day and another one today.

Fortunately, I didn't get wet just a tad moist. It was a big coat but didn't cover every bit. lol.

Had a couple of short walks so far today, just 1100 steps each time. I'm going to walk to the surgery and collect a prescription later and incorporate that in a longer stroll.

Have a great day.

That's what I did jim to begin with I would start at 500 steps and just increased now I try and do at least 7000to 10000 steps a day now.

Just been over field with dog as well now going to try put a hint of rose hair colour on my hair lol

That's brilliant 7,000 - 10,000 steps. Fab

I like the sound of that hair colour, Susan 😃

Bit breezy for my walk today, trying to keep my legs cool by wearing shorter trousers,brrr was a bit colder than I thought it would be!

Thanks Susan will do !!

Thanks Lulu, yes we will all get there. Yes think the ears are connected to the congestion we're still suffering. Works going ok. I've got nxt Mon and Fri off so a nice short week nxt week. Meeting up with friends Monday for a bite of lunch and drinks. How's work for you ?

Hi Jim wow week 17 do we get medals for all our long sufferings ? lol

I'm getting there Jim. Sorry to hear about you fainting Jim hope you're ok . How are you doing ?

Slowly but surely Steph.

Increasing the walking but I definitely feel much better.

I can handle the nose blocking but the mucus is a real pain in the .......

Evening everyone I have gone and over done it I went out yesterday for a few drinks and had a few too many knew I had a course today just stopped the dehydration coming back drunk so much water this morning and the tension headaches and earaches throat and shoulder and pains in lungs felt the lot today self inflicted starting to feel a bit better now hope I have learnt my lesson can see everyone getting a little better hope we can get over the line soon Gary

Ha! easily done Gary when you are enjoying yourself - am sure you will pick up again just take it easy for a day or so.

I managed to jinx it yesterday with my 93/4 score! What is it the minute you feel better and tell anyone the very next day you feel rubbish. Woke up this morning with nose and sinus blocked and mucus at back of throat - it's SO disappointing - how can you still have these symptoms after so long?? I really don't understand it! I did do a long walk yesterday so maybe am overdoing it I just don't know.

Glad work going well Steph and nice to meet up with friends for lunch Monday. Enjoy your short week!! Work is fine for me as only work Thurs/Fri and it is pretty quiet at the moment.

So good you are feeling much better Jim, I find both the nose blocking and mucus hard - it makes me feel ill and tired - didn't have it at all yesterday and felt so well compared with today.

Hope the hair colour turned out well Susan!!

Take care everyone,

Lx

Are people finding their breathing has improved now? Not heard anyone commenting on their breathing lately. Been too scared to ask in case jinx it for anyone else!

Lx

I will learn lulu maybe the hard way I've already told my mate who I was going to meet Friday no alcohol for me for a while do not want dehydration back again already dealing with dry mouth all night I was in the classroom today trying really hard to stay focused and feeling like sugar lucky got through it going to recover then two nights and eight days off yippee Gary

Hi Lulu

My nose is a lot clearer, although it still often blocks up. I wore my mask today in the local shopping area, outside, and most of the time I had to breath through my mouth.

Hope your symptoms improve soon, and yours too, Gary

It's so tempting though when we're feeling ok to do those normal things and make the most of it. I don't think I'll learn!

Hope everyone ok, some impressive walking going on, we'll all be so fit! 😃

Thanks Joanne I'm the same as you with the breathing I don't have a problem with it just feel the lungs the stabbing bit I was telling you about lulu just gotta take it steady I guess I will leave the peroni alone for a while Gary

Lol my hairs abit pink but it's cheerful 🤣🤣 my breathing is OK but like you still get sinuses, bit of mucas and funny eyes and buzzing in ears at time.

Ha! bet it looks great! Glad your breathing ok now that was the worst symptom by far for me and reassuring to know am not alone with the sinus, mucus and buzzing ears!

You are going to struggle not to have a Peroni Friday Gary it is going to be about 32 degress 🥵😂

Lx

Morning lulu and everyone yes I know it is going to be hot on Friday but I will be a good boy I can't get the dehydration back that would be a nightmare I've still got dry mouth and have to sip water through the night but sleeps are longer I've rung to speak to a doctor this morning just to see if there is anything else I can do to aid the recovery I don't want to get back on the bike just yet so still walking got to work tonight and tomorrow night before a week off Gary

Morning Gary,

Take it steady pal and you'll be okay.

It's the Peroni that's done you.

Before all this, I once drank the stuff on an all night session when my pal was leaving work. My one memory is the horrendous dehydration.

I'd stick to the bitter but I'm an old Yorkshireman now.

Morning Jim yes I think your right mate I used to be able to put it away with the best of them 😂 now it puts me away probably an age thing hope youve had a nice dry walk today Gary

I have pal. 2,000 steps 18 minutes.

It's dry and sunny here.

Just off for another.

Stick to the John Smith's.

Good to see your getting somewhere Jim be careful though don't over do it we all know what a little sugar it is when we push it can't drink John smiths will leave it for a few days Gary

Hello everyone!

Gary and Jim must be feeling better they are talking about things other than C19 - always a good sign!! You are doing really well on the steps Jim making progress now and Gary let us know if the doc has any tips to speed things up but have a feeling he/she won't!

Been feeling so much better then yesterday woke up feeling all cloggy chest and fuzzy head (am sure you can all relate to this) and felt really phlegmy in back of the throat - just no idea why but had that head cold feeling and blocked sinus etc. back. Still felt rough today and dodgy stomach think it is all the mucus making me feel sick. Forced myself to go to yoga class as just couldn't face sitting around all day as I know it makes me feel worse I am def not good at staying home all day! I did well and kept up and it took my mind of things for a bit and then pottered around. I would love someone to tell me why this just never gives up and goes away. I read somewhere yesterday they think there may be small traces of virus left in certain parts of body e.g. throat for me and immune system keeps reacting to it but no idea if this is true or it is just some scientist trying to work it out like the rest of us. I really believe they don't know.

Anyway hope everyone else is ok and have had good days. I am going to take it easy in the heat over next couple of days as have had bad set backs in past when done long walks on very hot days - we might all need to bear this in mind especially Friday when it is going to be stonkin' hot and just go for an early stroll rather than an expedition!

Lx

Hi Lulu, everyone

Glad you're feeling better, Lulu, I am too, and I've managed to walk a bit further. I even ran for a few seconds to cross the road before lights changed!

I hate these setbacks, but at least they're not as bad as before.

Yes it's worth being careful in the heat, I had a bad setback after walking a lot in the heat before. Hope we haven't got any virus left inside us, but nobody really knows what's going on.

Good luck working nights, Gary, hope you enjoy your time off

There's no stopping you now, Jim, keep on walking!

All the best everyone 😃

Evening lulu yes your right my gp didn't have a clue told her about the headaches earaches even though seen the nurse about the wax tension on my neck and shoulder tight chest and pains in back she prescribed me fenbid forte gel said we will work on the back and shoulder pain first and I get to see a physio at 330 tomorrow not sure what he or she is going to do I'm feeling fine but when I get the tight chest it sets off the head tension I can manage it going to work soon but because we got covid rules job and finish I should be home by 4 or earlier know what you mean about the hot weather coming Gary

Morning!

Hope work was ok Gary and you've recovered from Peronigate without any bad effects!

Been feeling really off last few days very sick and nauseous anyone else had any problems with Lansoprazole? Am wondering if should stop taking but dont want sore throat back as that has been better.

Hope everyone doing well enjoy the sunshine

Lx

Morning Lulu,

I haven't had any problems with Lansoprazole but I've only taken it for two or three weeks.

Week 17 today.

Started feeling rough yesterday afternoon. I don't know why because I hadn't walked any further than the previous couple of days,

Sorry your feeling rough.

Fingers crossed we improve today.

Its definitely a better service for physiotherapy down there Gary.

I'm really impressed your seeing one and so quickly.

Between being referred to my appointment to see a physiotherapist it will be over 12 weeks.

Yorkshire the new third world.

Morning all I've just woken up no headache but all the tension has moved lower neck and shoulder still got little Ear ache lulu my throat has been OK for a while tension in my neck and shoulder is bad might have to change sleeping positions Jim I know what you mean I think it's only because I changed gp surgery or I would be doing it myself you shouldn't have to wait that long though terrible I think we still have a way to go yet before this does one I thought I would be well and truly over the line by now Gary

I've just returned the ECG monitor to the hospital and I'm truly aghast by the lack of face masks being worn and not one soul had gloves on.

I know I've got a tainted view on this but surely people must have an idea by now how dangerous the situation is.

On a lighter note, the sun's out.

Better luck than me Jim I had a 330 with the physio today and went to the wrong surgery luckily enough he rang me and we went through everything and he's going to send me exercises that he feels will help me I'm not sure if they will work but I'll give them a go it's well hot today Jim and we will suffer if not careful Gary

Never mind Gary at least you got the exercises.

What bit of you are they for?

Beer weather tomorrow but I'm not partaking unfortunately.

I went through the symptoms with the physio today and he feels they will help me with the stress on my shoulders neck and back which should ease the tension on my head and ears and resolve the issues with a few different exercises he will send me when he does them will see what they are when I receive them I will let you know Jim bit hot for them today Gary

He has given me several exercises to help me the first one for the tension headaches I just get two fingers and massage my forehead for 5 minutes morning and afternoon and temple massage same given me utube videos to help got a few pages to follow so I have started trying them got to take it easy though going work soon so I will suss them out and crack on tomorrow Gary

Hi Lulu, sorry to hear you're feeling off. I've only been taking Lansoprazole on and off and it's been ok. Maybe cut down a little see what happens and the Gaviscon. It's a lottery as to what will work or not!! Hope today's been better for you. My staycation tan is coming along nicely lol xx

I think I will cut down Steph am taking two a day at moment maybe cut down to one and see how that goes and whether sore throat comes back. Hope you are doing well and who needs to go to spain with weather like this?! The staycation tan helps a lot, everyone keeps telling me how well I look - even when I am feeling rubbish!

Am really surprised they were not wearing masks in the hospital Jim - that is not very reassuring. Good to have the 7 day ECG - are you worried about heart or is it precautionary?

Good to try the exercises Gary and hopefully will help as does sound like some of the problem is tension in the shoulders and neck and then triggering headaches. I notice at yoga when doing relaxation teacher says relax your face and you don't realise how tense it is until you relax it!!

Have a lovely evening everyone.

Lx

Hi Lulu,

Sorry my post was misleading. All the hospital staff wore masks. It was the people who were out and about.

Some members of the public in the hospital weren't wearing masks.

Also people were so blase walking close to other people, walking straight into lifts without seeing if anyone was inside.

The ECG was for palpitations I've had during the virus.

I hope everyone has a nice day in the sun.

Morning everyone well I have a week off to try to work out what is best ways to get relief with the exercises I'm still very dry first thing so I'm going to have to get more sos again or something else been drinking water at night still you mentioned the face lulu he has added a few face and neck exercises I've just ordered a yoga mat coming today to help me with the exercises it may ease the pressure and help shoulder is so weird there is no pain whatsoever it comes and goes Gary

Morning Gary,

A week off may well ease your neck etc.

Take it easy my pal.

Sun's out everywhere, so enjoy.

Morning Jim it's going to be a scorcher I would like just to get through it have to keep watering if you do walk remember take on plenty of fluid I will wake up one morning without a dry mouth before Christmas with a bit of luck 🤞 have a good day Jim take care everyone Gary

Hi Gary and everyone,

It is weird the coming and going of the pains you mentioned, feel the same with my own symptoms. Reflux symptoms settled down on their own these last few days so no lump in throat and burning chest went but...there's always a but(!) have been having headaches on left side of head with tingling in face. It's like the symptoms do their rounds so if one thing clears it's on to the next.

Have been feeling very tired by about 6pm with eyes being red and sore like I haven't slept in days. Also I'm starting to wonder if my eyesight has been affected I've never worn glasses but find I'm struggling to read small print which was never an issue. Anyone else noticed anything like that?

Have a lovely day everyone but careful not to be out in the sun too much ☀️

Morning dane yes your right I've experienced what I called traffic lights eyes mine went well red and sometimes blurry not sure if it has anything to do with the tension maybe the physio has given me some exercises to do and I'm working on that this week off feeling a lot better but still can't shake off all the symptoms time I suppose enjoy the sun ☀ and take care Gary

Good you're feeling better overall, let us know how you get on with the exercises those sound interesting.

Specialist I spoke to wondered if I need a physiotherapist will know what he decided when I hear back which I'm not expecting will happen quickly.

Yes time the best healer...

I Will do dane he gave me some nice easy ones and put a utube video with them and I have ordered a yoga mat to help me with the tension headaches and earaches a simple two fingers on the forehead and circle like massages for a few minutes in the morning and evening helps don't know if that's just luck or not for the back go from the temple and do the same try them they may help Gary

Hi Jim/everyone

Ah ok yes there are plenty of stupid people around who are so impatient and won't wait to let you pass etc. I am very wary of lifts as I use a lot at work and has crossed my mind if someone has sneezed in that confined space and get out just before you get in you are walking straight into one of the most confined spaces we can enter and it is left full of germs. When I go back to the office I will be taking the stairs and that will definitely get me fit!

Good to wear the ECG for 7 days will give a clearer picture and will hopefully reassure you.

I am feeling a bit better again but definitely feel its the mucus that makes me feel so unwell - it seems to move when I've exercised and then I need to cough it up. How's your mucus coming along Jim?!

It is a scorcher but seems to be blowing up for a storm here later - have stayed indoors today as just feel it won't help my breathing. Hate having to think about everything so much - desperate to just feel "normal" again. My son suggested yesterday that I need to change my thinking and believing I am better - mind over matter that sort of thing - I am trying it today BUT the bottom line is I don't feel great! No-one to tell other than you guys everyone else is bored of it 😩

Lx

Hi guys,

Just an update for you all.

On Wednesday I was in a very black mood, shocking really. In the depths of my despair I took it upon myself to ring my local hospital complaints department, which I did. I regaled the whole story of my trip down covid boulevard finishing with the referral to the respiratory team on the 30th of June.

The lady said she would look into it and someone would call me. I thought she might or might not do anything but at least I had tried.

The following day a chap called me, a none clinician who said he would sort it. Within an hour he called me back and told me a consultant would ring me this week.

To his word a consultant called and said he would read my notes and call this morning, which he has done.

In conclusion of a twenty minute none stop conversation he concluded I didn't need a CT scan, had improved since the height of the illness however slowly and that the mucus would eventually subside. His thoughts on full recovery is 18 months as our bodies have been through the toughest fight of our lives in the vast majority of cases.

Patience is the key with little but often exercise within current limits ensuring a good diet, all vitamins and minerals for the immune system. Avoiding stress and most importantly avoiding infections.

As you guys will know, I've a private consultation on Monday, which I'm keeping and I'm going to have a CT scan too. I know it'll cost money but peace of mind is beyond expense.

Don't get burnt in this beautiful sunshine.

Jim.

Hi Dane

Amazing the reflux has settled down now how long did you take medication for? Have you stopped taking it now? I've had the lump in throat all week but seems a bit better today and never sure if it is mucus or not. If you google it is called a globus but doesn't say if it is just a sensation or actually something in throat. Agree one thing gets better and another starts - surely it will give us a break soon? - you really start thinking you are imaginging all these symptoms! I think it has affected my eyesight I have noticed sometimes mine is very blurry and I can't focus properly but I know this can be caused by anxiety and stress and even though we might not feel anxious now our bodies have been stressed to the hilt and we have been on high alert for months so we probably are still showing signs of stress without even knowing it.

Take care,

Lx

Hi Gary

Great that you have a week off. The Yoga mat will help a lot - even if you just relax and do the gentle exercises. Also there are loads of yoga classes on Youtube - Yoga with Adriene I find is one of the best - loads of routines to choose from and just checked there is one for complete beginners - then some short routines and some longer as you progress. Take it easy though cos sometimes you feel you are not doing that much but it can be surprisingly more strenuous than people think - I always find that out when I get out of bed the next morning! I really believe Yoga is a bit of a game changer and great to ease back into fitness.

Think you said you were meeting a mate tonight - so have a great time and enjoy the weekend (don't let him/her lead you astray!!).

Lx

That's good news Jim not the 18 months bit but finally someone listened and the ct scan it's true your health is more important than money Gary

Too right Gary. I'd give everything I own to go back to March and have my full health again.

Hi lulu thanks I will take it easy as I know I can still get fatigue and I will not be led astray I'm getting somewhere with the tension headaches and earaches but the stabbing pain in the lungs and back is annoying I have to be careful about the dehydration so dry today tonight fan will have to go back on the throat has been a nightmare for a few of us hopefully on the mend completely soon Gary

Hi Lulu,

Regarding the mucus, I stream three times a day for 15 minutes with salt water imbibed with menthol. Can't say whether the menthol makes a difference but the steaming loosens the mucus.

The acappella I bought from the jungle site helps too.

To answer your question Lulu I've still got mucus. My consultant said it will abate but it'll take a pong time. His estimate another four months to clear. Eighteen months to full baseline health. Crikey I know exactly what your thinking. Me too.

Hey Lulu,

It's a bit odd really, I don't think it's gone completely but just realised I haven't taken gaviscon in about 4 days and lump in throat disappeared but today I can feel a slight sensation of it being there, I ate a lot of things I wouldn't normally eat very late last night so think it's that that's made me feel it again. I take 20mg famotidine every night before bed which is a very small dose and gaviscon as needed. Think the reflux is a random symptom like the rest of them that comes and goes as I haven't changed anything in terms of medication and diet to make it disappear. I was told the lump feeling is inflammation that makes the food pipe a bit narrower so that it feels like something is blocking it not that there's anything actually stuck. Hopefully reflux symptoms will ease with time like everything else.

Thanks Jim

Just read your earlier post. Good news someone called you and listened at last. I hate to say it but I think he is right we are not going to fully recover over night - this is a slow burner but so long as all heading in right direction.

I have been lazy with steaming but maybe need to go back to that.

Thanks for your help.

Lx

Thanks Dane

I think the Gaviscon makes me feel sick but am persevering. I am positive I had no reflux problems before so why now is beyond me! I was told to take Lansoprazole first thing in morning and before evening meal - seems we are all told different things! Makes more sense to me to take at night so may try that!

Enjoy the weekend!

Lx

Hi everyone

I'm trying to keep cool today, had a short walk around the local shops this morning. My stomach is still sore and swollen, I think it must be inflammation and related to what I do. I'm going to try and cut down to one omeprazole a day and see if that makes any difference. I was reading about histamine intolerance and wondered if that's what's affecting me. But looking at foods to avoid, there won't be much left I can eat! Maybe I'll cut down on a few things.

18 months sounds a really long time 😦 Hope not

Keep cool everyone 😃

Same with me Lulu, never had issues with reflux.

I was also told by gp to take lansoprazole in the morning but ditched it after 6 days when didn't see any difference. Lanzoprazole your supposed to take before food as opposed to after. Famotidine is a different drug altogether and its advised to take at night before bed but can also be taken 1 hour before food which i tried but wasn't as effective for me. I've taken this on my own it wasn't advised by anyone. It's all guesswork

That must be so uncomfortable Jo. You could try an elimination diet just cutting out one food at a time to see if it helps though you need patience with that. I also read up on histamine sensitivity when I was wondering why I was having stomach issues also since the virus I'm apparently allergic to papaya it made my lips itch for hours could be we have developed sensitivity to a bunch of things.

Thanks Dane

That's interesting that you have developed an allergy since having the virus. I thought I was being really healthy with my porridge full of nuts and fruit, but it seems nuts and most of the fruit is high histamine. It's definitely worth finding out if there's anything affecting my symptoms

Uggghhhh I finally thought things were turning around for me only to be sorely disappointed yet again. Earlier this week I had a D-Dimer test which is supposed to indicate the possibility of blood clots and which I tested positive for. I thought that there was finally something quantifiable that would corroborate my story to my PCP. He did order an ultrasound of my legs to check for DVT, but when that turned out negative, he's apparently done following this lead. When I asked for further testing, like chest scans to check for PE and the like since I'm still feeling symptoms in my chest, he told me to just go to the ER if I still feel bad, which I imagine is as close to f*** off in doctor speak as you can get. Of course, this is all after he told me to see a psychiatrist. So, so frustrating. I'm wondering if I should take this D-Dimer test right to a vascular surgeon or the like, or if they would also dismiss me out of hand.

Morning lulu and everyone something is not right I was told by the doctor if you remember when I went to the hospital to take omeprazole but he was telling me that I was suffering from anxiety and stress because of everything that had happened that's what he diagnosed so why the omeprazole did they tell you what reason because if you remember back I was taking gaviscon in the morning and I told him that and he told me not to take gaviscon I took all of the omeprazole so it must have been about a month ago Gary

Morning Joanne I hope you are feeling better today I was told by the doctor at the hospital to take omeprazole because at the time I was taking gaviscon in the morning because I kept feeling something coming up he told me that I was suffering from anxiety and stress because I was getting what I thought was migraines and earache tingling hands and legs I was told they are tension headaches and earaches so not sure why they prescribed the omeprazole the tension headaches and earaches have eased but not gone for some reason I now have tension on my shoulders and neck as well weird something is not right oh well perhaps the doctors know best just got my yoga mat starting exercises see if they can help me gary

Hi Gary

That sounds a bit confusing. I was given omeprazole 2 months ago as I had indigestion, churning stomach and stomach acid. Do you think you were given it for the stomach acid affecting your throat? The doctor's given me a repeat prescription for 2 a day, I tried to cut down to 1 before but the indigestion came back. I'm trying again to see what happens.

My stomach is still a bit swollen so I'm going to be careful what I do.

I think there's so little doctors can give us, they're trying everything, and a lot of people seem to have reflux issues with the virus

Have fun with yoga mat! I'm sure exercises will help with everything. I must do more yoga!

Morning Gary

Have fun on the yoga mat! If you get the right exercises will def help the tension in shoulders and neck - reminds me I need to do my routine it is easy to get lazy!

I agree with Jo that the Omeprazole or Lansoprazole in my case is prescribed for the sore throat and mucus as this is caused by silent reflux (basically you don't know you have reflux as don't get indigestion) my specialist also told me that the silent reflux is made a lot worse by anxiety so that is probably why you were dished out some. Also as Jo said I think it is just trial and error to see what helps with which symptoms and it has helped my sore throat but am not convinced I have any sort of reflux but who knows?? pretty certain I didn't before my dice with C19 as had no symptoms whatsoever - no sore throat, no mucus so think it is yet another symptom of the virus which is responding to treatment with these drugs. I know your throat is a lot better now so that is good news. Mine comes and goes but today roof of mouth feels inflamed - I might go crazy as it is Saturday and treat myself to a Flarin 😂

Off for a picnic - will be nice to sit in a different field 🥴

Lx

Thanks for the explanation lulu really strange but I suppose they know better than us I had to try the Flarin again too powerful headache came back they have eased and I'm hoping the exercise will help I'm like you though have to push myself to do them enjoy your picnic Gary

Hi Gary,

When I used to body build I suffered with numerous shoulder injuries, which always cause neck aches and pains.

My physio at the time gave me a pair of back balls. They are two silicone balls that are moulded together.

You use them by laying on them with a ball wither side of your spine.

They will come with instructions and are around a tenner.

Hi Dane and everyone.

Dane, I had to stop posting on here last weekend as my eyes were suddenly terrible - I couldn't focus at close range at all and I was getting bad headaches. I put it down to the fact that I might need new glasses so I have arranged for an eye test this coming week. I had to stop looking at my phone etc. Hence me disappearing again.( Apologies Lulu, I never answered your post a week ago.)

The eye symptoms and headache have subsided at last and my eyes can see again at close range which is puzzling to me. Today is the first day I've checked the forum in a week and I see your post mentioning the eye problem. It seems like too much of a coincidence to me.

I also get tired in evenings between 6 and 8 and the lump in the throat makes an appearance although Gaviscon seems to relieve it most of the time.

Despite the headaches, in terms of breathing and coughing I have had 10 days of being almost totally normal. It has been brilliant! Unfortunately, I made the mistake of telling a couple of family members that I'm breathing better and guess what - tight chest is back today ☹️ Unbelievable. Why does it happen every time I try to give people positive news?

I guess I'll have to hope it's temporary.

Anyway I hope you're having a good day today Dane and everyone else. The sun is shining here in West Sussex and the smell of bbqs is wafting across the fields.

Oh for a beer!

Hugs to all.

Stuart

Hi Joanne yes I suppose like lulu said it must be I've finished the course now when I first started with the omeprazole he told me take 2 the first 3,days then down to one yep trial and error I've done a few exercises and a few more tomorrow and so on enjoy the sun ☀ Gary

Hi Stuart

Great that you have updated us and to hear you have been doing well! It is just crazy that every time you mention to ANYONE you are feeling a lot better it comes back to bite you - I am the same whether it is on here or to family/friends. We went out last Saturday night to friends had a great evening said to my friend Sunday it's the best I've felt since March, she said you seemed like your old self, I posted the good news on here on Monday and increased my wellness score to 93/4 and as I hit "post reply" I literally took a turn for the worse!! Couldn't stop coughing Monday night and Tuesday and felt full of mucus - unbelievable!

I definitely think the eye sight thing is linked but reckon it might be made worse by stress and anxiety and there has been plenty of that going on! I am on the Gaviscon Advance just picked up a new bottle and got the Aniseed by mistake, it is even more disgusting than the peppermint! I am not sure whether taking it makes any difference to the lump in throat, I just associate it with being pregnant when I literally used to swig it out of the bottle in the middle of the night! Will monitor it more carefully to see if it does actually help.

I popped out yesterday afternoon after staying in all day as I was working and really felt like I couldn't breathe due to the heat so maybe your tight chest is related to the weather as still very muggy here today - I hate all this up and down, trying to work out why you feel like this or why you feel like that and if you do this it makes you feel worse - just having to get on with it not knowing what each day will bring - everyone I know just assumes I am better now as no longer bother to ask so I spose just hope for the best that things will improve albeit very slowly!

Lx

Hey Lulu, great to hear from you. Yes it's crazy the ups and downs - and the unpredictability makes it difficult to make any plans with confidence too.

It has been great feeling mostly fit these last days despite the eye problems, and it's such a relief to not be constantly self examining so I'm a bit disappointed to be having the chest 'feeling' again. I really thought I'd got it beat. Jim's news about 18 month recovery isn't something I want to even contemplate. 😮😓

The eye problem thing is weird, but it has prompted me to get them tested as they are overdue a trip to the optician.

Funny you mentioned the Gaviscon. I actually like the aniseed version and mistakenly bought peppermint the other day so I was a bit disappointed! 😂

I didn't know about different flavours.

I was getting breathless symptoms and the lumpy throat whenever I ate and they have lessened a lot since the administering of Gaviscon! So whether it's coincidence - no idea, but I'm going to continue.

You might be right about the hot weather although it has helped me in the past. I'm going to hope it's a temporary blip and that we'll be back to normal soon.

As for telling people positive news about health, well its like someone is having a big joke at our expense. "feel better do you!? Bwahhahaha - I'll soon stop that!"

Looks like it's best to maintain silence on the matter.

Anyhow Lulu, have a good rest of the day and get 100% well soon.

Ha! maybe I'll be an aniseed convert after a day or two! Remind me Stuart was it you who had the X-ray which showed a lump of mucus in lung, seem it was the same time as I had my first Xray? Are you still having any mucus issues? Also did you ever take Lansoprazole or any of the reflux drugs?

Yep it's radio silence from me on how I'm feeling - every time I report good progress I am immediately doomed 😂

Thanks.

Lx

Hi Lulu, yes it was me. I had an atelectasis on my lung which was either caused by a mucus blockage or a collapsed area. Thankfully it was clear when xrayed two months later. It was pretty worrying but in a way I'm glad of it as it proved to the doctors that I wasn't just having an anxiety attack!! (🙄)

The mucus is mostly throat and nasal I think these days but one never knows by tomorrow.

As for Lanzoprazole I was never prescribed any recently s I stopped bothering with my doc, but I had some from a previous problem months ago. I took two a few weeks back and felt nauseous so I stopped. No idea if that was a wise move or not. I have some famotidine that was sent to me from Spain but I haven't used it yet.

I'm basically making it up as I go 😂

Thanks for asking, take care Lulu.

Stuart

Wow that must have been awful and so worrying for you I do remember those days well, in fact will never forget them. It makes me angry when the docs label anything they don't know how to deal with as being caused by anxiety. I am not an anxious person normally but have to say my anxiety went off the scale when I realised I had C-19 and it most definitely wasn't mild flu like symptoms!

I'm same the mucus mostly throat and nasal - sometimes feel like head is about to explode. Have never suffered with sinus or anything respiratory in past - in fact the girls I work with used to laugh at the fact they'd never ever seen me blow my nose! I am taking Lansoprazole twice a day and Gaviscon after every meal with a few Mucodyne tablets thrown in the mix!

Me too ..am just winging it, what choice do we have?! BUT it does help to have you guys as we can share all the information we have struggled to obtain - shame some Gov medical boff doesn't have a read of all these posts - it make give them a better understanding of what is really going on with this illness and the recovery time.

Keep in touch, let us know when you're lagging and we'll move on to the next page 🤣

Thanks for the words Lulu. As for lagging - apart from here I seem to be lagging in every department these days!!

Have a lovely evening.

Hey Stuart,

Sorry for taking ages to reply had such a busy day, seen friends one after the other all day. Was really nice even if a little tiring. Also did way more walking than usual and seemed to manage ok.

Interesting to hear you've also had the eye issues, it's so strange. I also found it was with close range as well as difficulty with smaller print. Wondering if to wait or get checked, if yours has resolved it might just be a passing symptom.

We all know what that's like when you start telling everyone you're doing so much better only for things to go down again...it's classic little sugar playing games that are not fun to play!

Hi Dane, I'm glad you had a good day. Must be great to be doing normal stuff and coping with it. Well done.

Yes the eye thing is very strange as I couldn't focus on anything on my phone and I felt like my vision had really gone downhill combined with stressful headaches. And yet it's fine now. I'm seeing an optician on Thursday as they need checking anyway. How long have you had the symptoms?

Have a good evening.

Morning Stuart, everyone

I've had eye issues from the first few weeks of the virus but the symptoms have changed over the weeks.

Noticed the focus problem a few weeks back and reading issue this past week.

One of those mysteries...

Wishing all a lovely, relaxing Sunday and enjoy the sunshine.

Morning Jim thanks for the tip I will give them a go at that price I started doing some exercises yesterday but had the tight chest come back with tension on my head so stopped will have another go today as feel a bit better today Gary

Your more than welcome Gary,

We're like the Musketeers, all for one and one for all.

Oh, I thought stuff it last night and reacquainted myself with John Smith and a rather pleasant white wine.

Fingers crossed no ill effects so far.

That's really good news Jim because when I went to the hospital when I was told I had anxiety and stress I was told to get back to what you normally do so even though I haven't got back to a proper routine yet I had a couple of pints yesterday but drunk water as well before I went to sleep still getting dry mouth all night I am keeping the dehydration at bay don't fancy that again enjoy the sun ☀ and your day Jim will take in a couple more pints myself later as no work tomorrow Gary gotta keep remembering the water as well though

It's all a mystery, Dane, I feel like I'm juggling the last of the symptoms!

I may be joining the Gaviscon club 😃 I tried some yesterday and I think it may have helped with stomach. I shouldn't have said that, it probably won't work again.

Yes I'm making it up as I go along too! Lots of trial and error

Hope everyone has a lovely day

Hi everyone!

Sounds like things improving Jim - a couple of beers sounds very enjoyable!Hope the exercises will help Gary and the chest tension eases up - why do these symptoms just keep recurring? - I just don't understand it.

I have been shopping today with a friend and had a really nice time even wearing a face mask - we did get used to it. Plenty of hair sanitiser and used Apple pay so no having to punch in pins on card reader if over 45 pounds- where there's a will there's a way!

Well today's symptoms are (yawn 🥱) pain in my right lung (that was the side that the CT scan showed small patch of damage) it feels as if I have mucus trapped in it and have general aches and pains in shoulders and upper back. No sore throat today (that was yesterday's treat) together with an inflamed tongue which has magically disappeared today!

I often think if someone chased me would I be able to run away (which I definitely could prior to March) and the answer is most definitely not - that makes me sad 😢 On the other hand the likelihood of someone chasing me is unlikely (!!) but it does made me realise I am still far from right.

My friend I went shopping with is a work colleague and thinks she probably had it as 5 of us all sat together and were all ill around same time to varying degrees. She lost her sense of taste and smell and had bad sore throat same time as me and she was complaining today that her eyesight is now terrible but hadn't linked it to C19 but seems quite a coincidence from what others are saying.

Have a nice day everyone!

Lx

We didn't sanitise our hair btw...😂😂

Why not Lulu, lol!

Sounds like you had a lovely shopping day. I was looking up what's open in our town centre, most things seem to be. I think I'll need a bit more energy though, but I'll have to hurry up before the next lockdown.

Had a nice day, socialising on facetime, visit from daughter, and of course a walk. Been speaking to son this week from Australia, it's getting bad there, they're in next stage of lockdown where he is.

I'm hoping to do a bit of work tomorrow, need to get everything ready, hand gel, wipes, face screen/mask. I'd never have believed this would be happening 6 months or so ago.

Enjoy your evenings everyone 😃

Ah sounds like you've had a nice day too Jo. You must miss your Son and it is a worry I saw about the lockdown - Aus and NZ are going in hard. One of the guys I work with is going to NZ next week and has to do two weeks quarantine in a hotel of the Gov choice - you get put on a bus and taken to hotel could be 1* or 5* no choice and have to stay in room with food delivered for 14 days - that would be tough. My son is now in NY - he was in LA but things got really bad so he jumped on a flight as NY now doing better - he has said he may come back to London in a couple of weeks but the US will not let him return direct from UK so will have to go back via Canada and quarantine there for 2 weeks - when I asked why he was coming over now he laughed and said "ermm..to see you" - Aww.. but then I was thinking .. I won't want to see you for well over a week after you arrive so factor that in - it's all so tough!

Good luck with working tomorrow and yes definitely need to be more organised these days - I don't think any of us would believe where we are now - walking round shops with everyone masked made me feel sad and think how on earth has this happened.

Lx

Thanks Lulu

Yes, I find shopping really strange too, wearing masks. I've even tried to smile at people with my mask on, like when a car stops to let you cross the road. And I'm not very observant in the shops where to queue etc, I really have to concentrate.

My son wants to come back for a visit but he would probably have to quarantine here and wouldn't be allowed back as the borders are closed. Yes, really miss him, but we have to make do with facetime for now.

That would be lovely if your son came to visit, but he'd have to come for a while to allow for quarantine x

Morning lulu and everyone I've made it to my 59th birthday today I've been dry all night drinking plenty of water my tension has eased right down on my head and ears got a bit in the neck and nose and shoulder the back has eased as well still niggling now and again I'm hoping only a few more weeks left I did have a few pints last night and no problems with it so far going to be with the girls today my eldest cooking me dinner looking like a sunny one enjoy whatever you are up to and I hope your symptoms are easing up Gary

Happy Birthday Gary!!!

Really hope you have a wonderful day.

I know what you'll be wishing for when you blow out your candles.

Happy Birthday Gary

Enjoy your day 😃

Oh happy birthday Gary! Have a very lovely day!

20 weeks today for me and going up to a 9 1/2.

Aww.... Happy Happy Birthday to you Gary!! Have a wonderful day with your girls. As Jim says make that wish when you blow the candles out and if you can add one in for the rest of us that would be great!!

Hope you have a peaceful day and have fun.

Lxx (two kisses from me as it's your birthday 😂😂)

Brilliant Dane, so happy for you that you have improved it's such positive news! I was 93/4 last week not had a great week but will stick with that as can't face going backwards! Think maybe as you get better expectations get higher - I just feel very cloggy in lungs, throat and nose - I feel like I need to be hoovered out if that makes sense!

Anyway have a great day and hopefully August will be the month we all finally feel better.

Lx

How you feeling Jim? Still doing ok? Give us a round up when you get time of how things progressing for you and if you could give me a mucus update that would be great as I am still struggling!

Lx

Morning Lulu,

Feeling the same as last week Lulu, so better than I have been. I did have a dip between Wednesday to Friday though.

I didn't get chance to steam yesterday evening, so I'm suffering with more mucus than normal today.

I've done my usual 2k steps, steamed and breathing exercises but can still feel it on my chest. I've got some up but not much. Boo.

Today is the day the private consultant is calling me, so I'll be able to update on his idea's etc.

If you've any questions feel free to ask me and I'll add them onto my list.

Hear that Lulu, you're only 1/4 away from being 100% so you're going to watch those niggling symptoms until they completely go. But boy, you've come a loooong way, we all have and it helps to remember that to keep going forward. You'll get there x

Thanks Jim hope not too late as been out.My questions are all mucus related really how long is the mucus produced for, when will it end why is it worse some days than others - does exercise make it worse or better, should you stretch self on exercise.

When will we ALL be better?!

Am sure all things you will ask anyway.

Thanks so much.

Lx

Ah thanks Dane, some days easier than others and the 93/4 might have been a bit optimistic and reckon will be a while before 100% but as you say we have all come a looong looong way. Thanks for the encouragement, it is what we all need to stay positive.

Lx

You've not missed the boat Lulu.

All your questions are added to my list and I'll update after we've spoken.

The appointment is at 17:45, so I'll post tonight.

Brilliant thanks Jim, hope he gives you some answers.

Lx

Hi everyone weather's lovely again. Happy Birthday Gary hope you're enjoying your special day !! I've had a lovely day catching up with friends and at times forgot that I'm still not 100% but being out and not worrying too much about what if's was good. Just this final phase to get over and we'll all be there.

Hi Steph

So pleased you had a lovely day with friends and yes it is such a relief not to be thinking about how you feel for a few hours and actually enjoying yourself. I definitely find if I can keep busy it helps a lot but have to be careful not to over do it - bit of a balancing act really!

Take care,

Lx

Hi Lulu,

I asked all the questions, however he wouldn't be drawn giving answers without sight of a CT scan, which will be this week.

Sorry.

Ah that's fair enough - I suppose he has to see what has gone on from the scan first.

Thanks anyway for asking Jim.

Lx

Hi Lulu, yes defo agree keeping busy helps. I felt really tired after but think it could have been the afternoon tipple. How's your nausea been? I've not been taking any meds recently just want to give myself a break.

Nausea seems to have gone Steph - maybe it was not related - who knows?! Have felt a lot of mucus on chest last few days and sore throat back this eve! I didn't walk much over weekend and think mucus settles in lungs so did a 3 mile walk today and feels a bit clearer tonight - I've definitely been a bit up and down over last week or so but no idea why. Just hoping will feel well before 17th when go away for a week.

I think the more you get back to normal you do feel tired in the evenings but for me it feels different to that awful exhaustion in the early days - I remember by 6.00 p.m. I was shattered every night and could hardly move to make dinner.

Anyway at least we are getting back to some sort of normality having an afternoon tipple! I have Prosecco on the green Tuesday tomorrow that is still an ongoing weekly event 🥂🍾

Lx

Morning everyone I had a movie day with the girls my girls have weird taste watched a scary film quiet place scared me more than them and a comedy worlds end I think it was called chilled with a few pints last night not feeling like doing anything today thanks for the birthday wishes everyone Best present would be for the little sugar to do one I'm so glad that the tension headaches and earaches have eased up can feel them but not like before hoping dry mouth will get better soon my hands and legs feel tired today enjoy prosecco 🥂 today lulu think like you Jim Im going to have to start steaming again feeling the mucus first thing Gary

Hi Gary,

Sounds as though you had a lovely birthday my pal.

I spoke to the consultant last night who said mucodyne or like medicines will not harm us and if they help take them. He stressed excess mucus had to come up.

I told him my regime of a walk, steam then breathing exercises and he said that you can't do anymore than that.

Its a pain.

Morning Jim yes I think he is right it is a pain and a battle everyday I've just steamed not feeling a walk today but will battle on legs and arms feel tired how's your walking going hope you're feeling better today Gary

Gary,

Take it steady today pal, as he said to definitely not to over do it or try to push through fatigue.

I feel very much as last week pal. Mucus, intermittent nasal blockage and tired if I do too much, which isn't a lot. I did complete three walks yesterday total of 5k steps, which is an improvement.

Slow but its there.

Think you may be right if we push through the fatigue it comes back to bite us Jim I'm just going to do some chores and take it easy today get back to walking tomorrow I will have to order some more medication for the mucus have a good day Gary

Rest day for me too, Gary, did couple of hours work yesterday, with lift to get there, and totally done in. I've also got a lot of congestion. May have a little walk later if I've got the energy.

Bit late with my weekly score but going up to 8 3/4 as I managed to work, and that was fine, but the whole experience has left me exhausted. I guess I've got quite a way to go for that "normal"

Have a good day everyone 😃

Hi Joanne yes I know what you mean it takes it out of us if we push it and I got totally shattered when I went back to work even though I am not working this week tired and blocked chest as well tension is easing so I will stay on 9 and a half I think I was last time can't remember this thing makes me forget as well Gary

Hi Jo and everyone

Good that you did some work yesterday Jo and that is definitely progress even though it wiped you out - I have been working four weeks now and still feel tired at end of day and am not having to go anywhere as am wfh but it does get easier and mentally I think good to be back doing something. Glad your score has gone up - think it is hard to score now as we all seem to have plateaued where we are feeling overall much better but still far from right.

Last few days felt really chesty and mucus in throat and lungs - worked it out I hadn't done a proper walk for around 4 days as just been generally running around so went out for a hilly walk late afternoon yesterday and it has made a difference so think for me the walking is an important part of recovery - I think if you do too much it sets you back but if you don't do enough the congestion settles in - hard to get the right balance. I've just done 4 hilly miles and feel ok at moment but as we all know that can change by this eve. Met an acquaintance on walk whose son is a respiratory doctor at Whipps X Hospital East London who told me they have had no C19 admissions for 3 weeks but have still got patients recovering on the ward. She told me I must have Pneumonia vaccine in autumn as definitely will be vulnerable after this but have to say prior to this I never had any vaccines was always a bit wary of them but maybe I need to rethink that.

GP phoning this afternoon as I need another phased return to work sickness note - will ask him all the usual questions and see if I can find anything else out which might help us.

Glad you enjoyed your birthday Gary and Jim sounds like you are doing well upping the steps - that's a big jump from your 2k so hopefully things are improving.

Enjoy the sunshine everyone.

Lx

Gosh 4 weeks back at work, that's good Lulu, yes I suppose the tiredness will linger for a while. I'm hoping to continue with Mondays, and can maybe do more at some point.

I need to walk too. It's weird, even though I'm really tired today, I was able to do a half hour flattish walk, but that was enough, I couldn't have gone further.

Yes maybe have to think about vaccinations this year, I work with children, so I don't want to be catching anything this winter, especially, as you say we'll be vulnerable now. x

I'm lucky too that I only work Thurs/Fri and am on phased return so am only doing 10.00>16.00 so not really back at work in the true sense - not like Gary having to do nights, that must be tough especially when not fully recovered.

I think you have to listen to your body with the walking - I have overdone it so many times. My friend I walk with really pushes it as it is her daily exercise so I don't want to hold her back but know it is sometimes too much for me - it is the long steep hills which are killers.

Spoke to GP - nice but useless - basically knew nothing about anything C19 related and just kept saying check with your specialists - GPs must love it when you go privately as you are no longer their responsibility! Only good thing he extended the phased return to work note! I did say in a slightly sarcastic tone "do I take it you haven't seen many Covid patients" he replied "Ive seen a few and they are taking weeks/months to recover but so long as you are progressing that is all we can hope for" - great!!

Hope the tiredness is better tomorrow .

Lx

I think I'm going to try a walk, feeling quite tight in chest today. Been doing so much socialising either for myself or for the kids that not had time to go for a walk in a while. Also when I rush around from one thing to the next it gets too much very quickly. I just can't rush full stop. Also the walk gives much needed time out and space to relax and I really need that.

I also normally don't do flu vaccines but think I will this year.

Yes I really missed my walk yesterday, I'm used to going most days now, and like you, Dane, I find it relaxing. I can't rush either, I think everything is working much slower, including my brain 😃

yeh same especially from 6pm onwards!

Hi all

Wouldn't let me in . Just been reading everyone messages still seems we all getting symptoms still I'm OK been working felt unwell yesterday afternoon but been really busy out shopping,went out for lunch Friday for the first time and working it feels like you have a start of a cold but OK today just fatigue. I give myself 9 1/2 again this week due to these setbacks. Glad your slowly recovering jim 😁 happy belated birthday Gary.

Hi Susan

Had been wondering how you were getting on. The feeling that you are getting a head cold is very strange I get this every few days and then it goes away. Good that you have been busy and out and about - if only we didn't keep getting these setbacks we would all be over the line - I just find it so frustrating not knowing how each day is going to be. I have had a much better day today - no idea why other than the walking yesterday and again today - definitely think it helps me keep the mucus from settling. I am constantly looking at what I have done differently from day to day but can't find any reason for the setbacks. I was desperate last night so didn't eat any chocolate as ENT guy told me to cut out chocolate to help the reflux which I hadn't!!- I'm really hoping that isn't why I feel better today as not sure can live without a couple of pieces of chocolate in the evening! He also told me to cut out wine and tomatoes - all my favourite things - why couldn't it be brocolli , spinach and carrots 😂

Take care, enjoy your walks.

Lx

Lulu,

In the words of my consultant, walking is the bodies physiotherapy.

He said don't tire yourself out because it puts you back.

Hi lulu glad it's not just me that feels like that I do think it's when we over do things. Works been OK I've been out walking with a couple clients each day to get my walking in also been with my daughter and grandson alot I'm in her bubble as I have rorie for her when she's working from Sept I've missed him he keeps me going and my other grandchildren. Glad youve been going out etc it does help us mentally. In the next couple weeks we're going to have the new tests that show in 9mins I think it's 9 mind at our works weekly for staff and monthly for clients unless they show symptoms it tell covid or flu symptoms.

I agree, think it makes a big difference Jim as really notice the days I don't have the time to do a "proper" walk so I am going to have to factor it into my day. I'm pretty sure I overdo it so am going to try really hard not to!

Hope you are doing well and thanks for the advice.

Lx

Lovely that you can see your daughter and grandson regularly - you definitely need to be fit by September then!! I read about the tests - that will be reassuring for you. I notice you do not hear much about the antibody tests these days - presumably as they have decided they are not accurate enough.

Hope you get some beach walks in this week as such beautiful weather - although Friday looks too hot and I get worried as the extreme heat affects my breathing - well it did last week but I will be working so can stay indoors!

Take care,

Lx

Morning guys,

Woken up feeling tired today but had my walk, steamed and exercises.

Feel bunged up but the sun has finally started to shine through and the wind is dying down.

Hope everyone has good day.

Same here, Jim, really blocked up today. I spent ages clearing it last night and now it's back again. What a pain!!

Good luck, enjoy your day

You too Jo.

I've given up trying to clear it this morning.

Morning everyone same as me I'm afraid I'm blocked up as well feel shattered and haven't done anything really bloody nightmare now trying to work out how to get through it all the time has anyone tried mullein oil for the mucus Gary

No not tried that Gary, sorry.

Hi Jim I've ordered some because I have tried the walking steaming and the salt water I know we have it for a while but what I have also noticed is when my chest goes tight the tension does as well on my head it's eased a lot so has the tingling but it's not gone yet Gary

Hello Dane and everyone. Apologies for answering you so many days late, my eyes became very strained again and have given me lots of headaches, so I've not felt very well when needing to concentrate on reading or... anything for that matter, so I have had to stop again.

I have my eye test tomorrow so we'll see how badly they have degraded. Maybe you should consider getting yours looked at Dane.

I did a walk on Sunday where I continued walking instead of taking my usual rest on a bench after 20 minutes. I suppose I walked for 35 minutes without stopping and I now realise after reading what Jim's consultant said, that I did too much as I had sharp jabbing pains in my chest afterwards and I haven't been too good since. Whether that has contributed to my eye problems too I just don't know.

Anyway, I'll keep this short as it's playing havoc with my headache. Apologies if I don't answer anyone for a while.

Please get better everyone. Hugs to all and happy belated birthday Gary!!

Stuart

Sorry to hear that Stuart, don't worry about replying you concentrate on getting yourself better. It's very unpleasant to have headaches and difficulty with eyes. If you have energy would be interesting to know how the eye check goes, but no pressure to report back.

My eyes are now mainly sore and can get very teary even in the middle of the night I sometimes have to get up to dry them.

The walking is a delicate balance for all of us I think.

Wish you better Stuart.

Thanks Stuart and as dane said no need to apologise and we all know what you are going through if you get a chance look up you tube for exercises to help you with the headaches my physio has helped me with them I'm still getting them but only slightly and I think it's linked to the tight chest you can put two fingers on your forehead and massage gently for a few minutes then for the back go from the temple massage gently twice a day I've just got some mullein oil for the mucus hoping it eases it Gary

How is everyone? I felt pretty good again beginning of this week after feeling a bit rubbish last week but totally overdid it yesterday. Did yoga, met a friend in afternoon, then another friend in evening and haven't slept well for two nights so feeling wiped out and my lungs and throat feel like full of cotton wool. Finding it hard to stay positive when as soon as you start leading a "normal" life the symptoms are still there. Also the constant mucus and tinnitus is really wearing.

There was an article in the Telegraph today saying 500,000 people are feeling the effects of "long covid" said people were being told by GPs that they either had anxiety or ME. Sounds like some people much worse than us presumably people who have been in ICU. Can't read the whole article as you need to subscribe.

At least people are now waking up to all the ongoing issues but seems GPs reluctant to send you to post covid hubs etc. if you do not have a positive test - what an absolute farce as we mostly know testing was not available unless you were hospitalised.

Anyway, hope someone has some good news to report - I def need cheering up! Have been working today so at least a bit of a distraction.

Lx

Hi Lulu

Sorry you've been feeling rough, it's so hard to get the balance right. I'm trying not to do too much at the moment, I seem to get tired easily so it's hard to plan things. I feel ok, but not doing a lot. I've tried some online yoga, but even half an hour was a bit much. Also some of the stretches feel too much for my chest and stomach. So I just watched the video!

That's good that people are becoming more aware of long term affects, just wish doctors would show more interest in us even if they can't help us, at least refer us to someone who can. They should know more about the virus by now.

Hope tomorrow is a better day for you, Lulu, and you soon get back to where you were x

Hi Lulu,

A similar article is on the Daily Mail website.

There was also an article on 111, and their vast failings.

The whole job has been a culster f#*k from start to finish.

My GP called me today and suggested I came off all medication to find out whether any of it was doing anything. Valid point she has to be fair because other than the mucodyne I don't think anything else is.

Oh good news I've my CT scan tomorrow at 8:45am and a subsequent follow up on the 17th.

Ah thanks Jo, yes it is so hard to plan anything. I think also the not sleeping well doesn't help. I knew last night that I was heading for a crash and was right! I do worry a lot as to what condition my lungs are - the specialist said overall pretty good just the right lung with small bit of damage but just feel so congested and it seems to move between lungs, throat and head - can't begin to imagine what people must feel like who were worse affected.

I think you are being sensible taking it easy, I am going to try and do the same!

Take care,

Lx

Hi Jim

I have thought of doing the same with the meds - do you think the Mucodyne helps? Ive been on it so long I've no idea. What else do you take which is on prescription?How you feeling generally? Sorry lots of questions!

That is good news about CT scan, assume that is privately? Will be good to find out at least what is going on. How do your lungs feel?

Lx

Hi Lulu,

I take lansoprazole 30mg for acid reflux, which I don't think I need.

Mucodyne substitute, which does thin my mucus. However, I can't tell whether its from lungs, throat or both!

Salbutamol inhaler, which increases my Peak flow by 30-40.

Oh and a whole array of vitamins and minerals.

For me, the mucodyne, a walk, steam for 15 minutes then breathing exercises is about as good as I can do clearing my chest without a physio showing me how to do it properly but they aren't seeing anyone because of covid.

Lulu, like all of us, I have a batch of good days and a bad day follows. I've noticed the more I over do things the longer it takes to recoup my energy.

Today I've done nearly 6k steps, so I'm going in the right direction but it is 18 weeks today.

I've found out to my expense too many times that over doing it really sets me back. I'm of a mind now, a gradual increase and see how it goes.

It's a learning curve as no one knows anything about the virus nor its consequences health wise especially in the long term.

Why don't you see your chest consultant and have another CT scan and have him compare the results. That would be worth doing especially for peace of mind.

Hi Lulu and everyone, I too have been feeling very tight in chest and I've been reading the Mail's article today and someone described it as a concrete slab on chest and that's exactly how mine feels. My breathing's not great either!! I can feel the mucus in my chest throat but it's not coming up. Also getting the internal shakes still WHEN WILL IT END.....Sorry to post doom and gloom. Like you say Lulu it's hard to stay positive when you feel like you've got cotton wool inside lol. Good luck for tomorrow Jim and glad you're not just settling for GP's blub we need answers as we've been suffering for soooo long. Hope some are feeling better than us. xx

Hi Steph,

I was given the knock back for a scan via the NHS but had already put wheels in motion to go privately.

The NHS consultant said everything would settle in a few months. Umm, been fobbed off there. No need for a scan when I asked for one.

We'll see when I've the scan results.

My GP and her colleagues have all said we'll recover from the fatigue in time but the symptoms, who knows.

Being positive, we must be getting better however slowly. We must.

Yep think I've just been overdoing it but just seems ridiculous after all this time that you can't lead a normal life.

I think they are loathe to carry out another CT scan so soon GP told me radiation is equivalent to 400 x-rays (not sure if that is true!) but I have a follow up early September and will ask him then.

Great progress on the steps Jim and agree I just don't know where mucus is from but assume some is in the lungs as feel so woolly.

Hope all goes well tomorrow.

Lx

Me too Steph - it's just so depressing and my GP went down the anxiety road on Tuesday - really p****d me off. These are physical symptoms there is no doubt about it and the internal vibration I always notice in bed at night. I think it is the mucus that is causing most of the problems. I have done much shorter walk today so will see if that helps!

Just heard from my niece who lives in London has a really high temperature and problems with sore eyes she has a test tomorrow am praying she hasn't got it.

Take care Steph, really hope we pick up again tomorrow.

Lx

Yes I think it's so easy for the docs to brush it off as anxiety making us doubt our symptoms but we all know it's something we've never experienced before !! Yes agree it's probs mucus causing the probs but docs should be treating us for that. Like Jim said it's all been a farce from start to finish 111 etc

Sorry to hear about your niece Lulu, hopefully she'll feel better soon xx

Morning everyone right guys I'm not going to beat around the Bush you know that the gp down the hospital said it was anxiety and stress well I think he was wrong because of the gp from my new doctor has only let me see the nurse who told me that my ears needing waxing well a lot of the tension has gone not all I'm still like a few getting it around the nose and eyes my neck and shoulder I've been doing the exercises from the physio and no they are not working so it is maybe just time that sorts this out if we over do it I feel we suffer I've cut out all medication except oils and vitamins and going for mind over matter like your son said lulu the mullein is helping with the mucus but that could be the walking I've got some issues with twitching eyes hands and legs at different times now and again may be caused by the tension but overall am feeling a lot better get that horrible feeling every few days but carry on and it goes so hopefully we will all be better soon Gary

Hi lulu I hope you're niece is okay I like you feel we have been told what the gps feel at the time they now know more about it but so do all of us as you know I never had to use a doctor before this only had a muscle spasm in my back once and basically get on with it with pain relief should have just done the same with this little sugar nightmare and got on with it with everyone else on here anyway still got lots of issues but hey ho going back to work Sunday morning and feel better than I did two weeks ago so will cut out the walking and save my energy for the week after Saturday enjoy the sunshine ☀ and hopefully everyone is feeling better today Gary

Hi Jim think you are spot on just got to up it gradually now and again and don't over do it I've been doing the exercises but feel like it's just going to take time for it to ease gradually I've decided mind over matter and get on with it we will have bad days but now they are being outnumbered by the good ones and I know you have improved considerably since about 6 weeks ago just keep sticking to it Gary

Morning Gary,

I honestly think we have to accept that it is going to take months to be better. Horrid thought but even when we feel okay we must pace ourselves. Small blocks of doing things, rest then a bit more etc.

I've had my CT scan this morning, which took 10 minutes.

A strange day, I actually had a reason to get up and times to adhere to. Bizzare. Just as though covid never happened.

The two nurses were lovely. They quizzed me about covid and my experience.

They were shocked at how we've been left from the beginning to now.

Have a good day Gary.

Exactly Jim I agree with you ive actually been a naughty boy because I saw what lulu said about mind over matter and thought I would try and forget about it and do what I normally do so I went to the pub for a few drinks and then went again the following day and had a few more and I have to say don't feel any different so I'm going to to exercise walk take the vitamins and oil and if I fancy going out I will not too much because the dehydration still worries me and now see how long it will take for the tension to go l hope your ct scan comes back and you will be fine in time because looks like that is what it is going to take Gary *

Gary,

I mentioned to my GP I was going to have a drink. She said take it steady, one or two.

As per her advice I've stuck to that and I've had no ill effects that I can tell.

I've ditched the medication bar the mucoydne and I'm aiming to up my walking by 500 steps a week.

Work will have to wait till October, at which point they will have to adjust my duties to suit my physical status.

Apparently, they can reduce my hours upto two months, so reduced hours are in order I think.

Have you heard from Majeic?

Yes I understand that especially with the acid reflux as well I have tension and tight chest problems still just using oils and gel supplements not heard from maciek I think the page is a problem too far down I did message him a week ago or more but he must be back to normal I hope Gary

Afternoon guys,

How is everyone this afternoon?

This lovely weather seems to make my chest heavy. Anyone else the same?

Also, there is a never ending supply of throat mucus. Err!!

Not me mate but I'm sitting with my daughter in the front room with a fan on Jim I'm afraid I'm getting lots of tension on my head neck and shoulders this afternoon I took some more mullein leaf oil before I came out so it might be keeping it at bay till later on Gary

Thanks Gary.

Hi Jim

Yes still plenty of mucus, and I think the heat affects my chest/stomach. Everything feels harder work, but I guess there's a lot of healing going on, I think that's what's causing the tiredness.

My walk today was a trip to the local shops, that was enough.

Keep cool everyone

Hope your niece is ok Lulu, it must be really worrying for you.

Hi everyone

I literally haven't stepped outside the house today! Ive had the busiest day so far at work and coped pretty well so am happy with that and was good for taking my mind off things.

I have a lot of thick throat mucus and was coughing a lot this morning but suddenly have stopped this afternoon - that is what is so weird about this whole thing the way symptoms start and stop so quickly.

Glad you've had scan Jim and it must be good to be getting looked at finally. Sounds like you are doing well Gary and agree just do as much as you are comfortable with - I knew I was overdoing it Weds but still did it in the hope would get away with it but guess what?? I didn't!! - no-one to blame but myself 🙄

Some days easier to be positive than others but slept well last night and it makes such a difference so as well as pacing we need to make sure we get as much sleep as possible - having said that not sure tonight is looking hopeful at 28 degrees in the night!

Enjoy the weekend everyone, we are probably due to change page - over to you Gary 😂 Should we leave it till Monday so Susan, Steph, Stuart and others see this before we go?!!

Lx

Hi Jo,

I feel your pain.

The drive across Sheffield for the scan and 2k walk when I got home knocked me out.

Fell asleep watching tv with my son.

It's unbelievable what this virus has done.

On a better note I had a walk after my dinner and feel fine, so it's gin time.

Hope you have a lovely evening.

Jim.

Thanks Jo and everyone for asking about my niece she has had test just waiting for result. Hope mucus improves Jo and definitely the heat is not helping us. Let's hope it is not too long before it cools down. I remember us all thinking the same back in April/May but it wasn't anywhere like this!

Take care everyone and enjoy the Gin, Jim!

Lx

Morning everyone yes the heat is a nightmare lulu think you're right moving the page on Monday so everyone knows I was feeling a bit better but for some reason the tension won't go from the head shoulders and neck my eyes are twitching now and again and sore in the shower part and parcel of the healing I suppose I'm back to work early in the morning so just going to chill today going to be a long week if it stays hot Gary

Morning Gary,

It seems as though anything can set bloody symptoms off.

I've done my usual routine and I must have coughed up nigh on half a cup of mucus.

Disgusting.

The old hooter seems to be making more mucus these days too. I've no idea why.

Take it steady pal.

Jim.

Morning Jim yes mate I have given up trying to work it out now I'm not sure what is going to happen next we have ridden it for a long time now so I suppose wouldn't surprise me what happens next anymore try and enjoy your day Gary

Morning everyone!

I am trying a new tactic of not overdoing it and see if it make a difference!! Been to see my mum, did a short walk of around 2000 steps (taking leaf out of Jim's book and not doing 8000 any more!) popped into M&S food and have friends over tonight so am just going to sit around all afternoon and not talk too much - talking definitely affects my throat etc. Have ditched the Gaviscon as was making my throat feel more mucusy carrying on with the Lansoprazole and Mucodyne.

I bailed out and slept in spare room last night and had windows wide open and felt better for it - my partner can hear someone sneeze in Scotland so doesn't like the windows wide open and I wonder if the lack of air makes me feel worse in mornings?

I get a lot of the tension in my shoulders and neck Gary and same as you some days worse than others without any reason. Take it easy today and maybe take some Flarin - it might help if it is caused by the inflammation or if tension will relax you maybe? Anyway hope it eases off for you with work tomorrow.

Am feeling pretty good so far today (watch me jinx myself 😳) so am going to try and forget about Covid today and will check in tomorrow with the outcome of my new not overdoing it routine!

My niece tested negative so good news - do wonder if the testing is accurate though as unusual to have these symptoms at this time of year but she followed all the correct guidance and is now back out on the streets!!

Lx

Yep let's move page on Monday 😜

Hi lulu some good news that you're niece is okay I'm very sceptical about all the tests they do or have done there is now a report saying that they think the vaccine is already only 98 percent knowing our luck we will hit the 2percent the tension is very weird and I feel I'm going to have to work with it as well works easy enough at the moment so I can deal with it hopefully I'm hoping the head tension will go first I can deal with the neck and shoulder oh the joys sorry read the report wrong they don't know what the efficiency will be 50 60 75percent one day they might get one right we can only hope Gary

Morning,

Well, I don't know what the weather is like elsewhere but here it's like autumn. Misty, drizzling and gloomy.

On a brighter note, I walked further yesterday divided into three blocks.

I've got to remember to pace myself.

Have a great day.

Jim.

1. Hi Jim started the same as that getting warmer now at work not too much to do which is good for me the tension on my head head has has eased right down hoping it stays that way good have a day mate Gary

Take it steady Gary and have a good day.

That's good news about your niece, Lulu, must be a huge relief for you all. Hope you're still feeling good and not overdoing it.

I survived a glass of wine last night 😃 Had a mad moment yesterday though when I decided to use some spray bleach. I wore a mask and I'd been ok using it before, but the smell must have lingered and affected my nose/chest for several hours. I won't be doing that again, and there won't be any painting being done here for a while!

Feeling generally more normal though, and like everyone, trying not to overdo it. I have to keep remembering to pace myself.

All the best everyone 😃

Thanks Jo, yes was relieved although she is in her 30s and healthy you just never know.

Good reason not to do any housework I'd say! I am ok with the sprays now but good idea to wear a mask. Funny how we learn everything the hard way.

We had friends over last night and I did pace myself during the day as I said yesterday and felt pretty good and am ok today 🙌 I just have to keep reminding myself as I feel lazy sitting around too much but think it is necessary in between activities.

Still struggling with the mucus in the back of throat/right lung and shoulders very achey- seems better when it shifts which can be at any point in the day but then comes back. How are you getting on with symptoms now and such good news you are feeling more "normal"!!

Lx

Hi Lulu

I'm finding I can ignore symptoms to some extent unless I overdo it or do the wrong thing. I still get the swollen sometimes sore stomach so have to be careful what I do, and blocked nose, chest congestion and of course, mucus.

But it's starting to be more in the background so long as I pace myself. I've had a bit of a sore lung/back, not sure which and don't know what's caused it, maybe walking a little bit further?

Sounds like you're getting there too, I know what you mean about sitting around, I'm not very good at it either! Yes, I'm a bit fed up with the mucus, especially when it decides I need to deal with it late at night. Enjoy your evening x

I am probably same Jo not really stopping me doing anything but am aware of the mucus in back of throat it is worse at different times of day but can't work out what makes it worse or better. I have a bad ache in my right shoulder/lung some days worse than others and sometimes the burn in the windpipe when I inhale so there must still be some inflammation going on.

Anyway thankfully seems like everyone is doing much better and it really does just seem to be that time is the healer.

Take care, don't forget we are going to move onto next page tomorrow - whoever posts first tomorrow is in charge of that - Gary?!!

Lx

Hi Lulu and everyone,

Was writing a whole long post and then knocked my phone and lost it so quick update because I can't rewrite all that.

Doing okayish, a bit jittery today and nauseous, brain fog on Friday, forgot to put salt in my bread recipe and detergent in a load of laundry!

Going away with the fam tomorrow to Somerset for a few days and quite anxious about it, and weather forecast not helping...yikes!

Hi Dane

Great to hear from you. I think the brain fog is a definite thing but maybe we are more aware of everything at moment.I do stuff like that all the time and keep dropping things - wonder if that is a symptom?!

Will be great to get away, am sure it will be lovely being with family and they will help you knowing how ill you've been - it's all about pacing yourself apparently 🙄!! (says me who never does!!) but am trying hard to now as am so fed up with the weekly set backs when I don't.

Let us know how it goes, have fun!

Lx

Thanks Lulu, I'm packing up for everyone so let's hope the brain fog doesn't result in a bunch of things getting left behind!

I'm trying to pace myself too but def notice there are days I can do more and days I can do less, days where I feel like I'm almost back to my old self and days when I wonder why I'm still struggling, but we must be nearly there!

Will let you know how the trip goes 🙂

Have a lovely holiday,Dane 😃

Hope you manage to get some rest

Morning everyone can we move to page 72 please Gary